Ive been here before, Pain meds due

[Dora]

I know you probly hear this all the time but I am just ranting. My pain meds are almost gone and I have to call my Dr tomarrow to get that refill. I am so Dreading it. The nurse as she tells me its to soon again(by one day and He told me to take 2 when I need to.) and the way she makes me feel. After the last time My Dr told My husband he needs to speak to me personaly from now on even tho all this time hes preferd talking to him. Hes told me to call when I need refills and never had a problem until last time with filling it and the problem was when I asked for something else( I just asked what he thought of trying percacet excause my spelling) and I heard a lecture about how Elvis died because basicly he couldnt have a bm because of all the pain meds. Well Im not Elvis and I dont drink/smoke or take any drugs that arent prescribed for me and I am very sure Elvis was on more then just a few pain killers. But the fact is My dr was upset I had located info on my illness on the internet and I think It hurt his ego. He is a wonderfull careing Dr when face to face but on the phone hes short and very busy. He has never once not refilled any of my prescriptions as of yet and I am just ranting. Thanks for listening I just needed to vent. I will let you know how tomarrow gos.:cussing:

[donnadb40]

Any doctor that feels threatened by information that you look up on the internet doesn't need to be a doctor! He should feel confident in himself and his treatment procedures and be glad that you are resourceful enough to try and help yourself and become knowledgeable about your disease!!! For heavens sake, get yourself a new doctor:loco:

[ihurttoo]

If you have a problem and they wont refill them today on the phone, then call tomorrow and make an appt and tell them you are in a really bad flare and need to get in to see him. (After all, with no pain meds, you probobly will be!) Then, do you remember that link I posted for you in your other thread about the conversation I had with My Dr. when this happened to me? Well, go read that conversation that I wrote out there for you, (verbatim). Then, try to memorize it, and say the exact same thing to your Dr. tomorrow. (EVERY SINGLE person that I know that has done this has either gotten there Dr. to r/x meds regularly or send them to a pain clinic. (And you OBVIOUSLY need one or the other, and the pain clinic would honestly be prefereable.)

I had the exact problems you are having (both in this thread and your other threads.) My Dr. was good otherwise, but the pain meds issue was our only problem. So, when I got to the pain clinc and they took this part over, I was able to salvage this Dr. and he has been invaluable to me! I am SOO glad I did this!

As for the others that have told me they were helped by that thread, so far, I have been pmed by 17 people that told me it worked for them. (YEs, I wrote down all of their names, in case anyone wanted them to ask them if they deviated from the "script" at all.) Because I honestly dont remember if they did or didnt. But, the point is that we ALL had "the talk" and you have got to do the same! After all, you are already having "the talk" every few weeks anyway! Why not bite the bullit one time, and get this over with?

Anyway, I hope you get relief soon! And let us know what hapens!

Love and hugs,
Amy

[Dora]

Would you mind posting that link one more time I for the life of me cant find it! Thanks, I would love to tell you I am not this absent minded normally but The truth is I am a mess hehe. I will say this, That post changed the way I felt and I no longer feel as guilty about the way I feel, I just cant seem to locate that post again!:bonk:

[Claredale]

Please let us know what happens. It is such a scary thing to run low and especially out of meds. I hate calling my doctor's nurse as well. I have found it easier to call the on-call doctor since my file indicates to prescribe my Lortab. He gives me enough for 4 a day, but back when I was needed 1 every 4 hours, my doctor took care of it. As far as Elvis, like you said, you aren't him and you have a real pain issue going on here.

I am waiting for Amy's info too.

Tracey

[Dora]

The dr just called and he talked to me for a few secs and incressed my prescription and he gave me a month supply and said see if this will get you through. Of course me bad at math said I didnt know and started crying like a baby and he said sweety I cant give you any more of the vicoprofin then that because its all your body can take. If this dosnt work we can talk about trying something else....So I hung up and called my husban who is great at math and he helped me understand thats exactly what I needed to make it. I was completely honest with him about how I felt and I rememberd alot of the post that hurt had asked me to read and just sorta winged it. I have an apointment in feb and he wants me to try and go like I have been and give the other meds a chance. This is going to give me a couple months to memorize that post. I wish I wasnt so emotional when I talked to him I used to pride myself on being strong! Its just so frustrating not to be able to express how I feel and it boils up to the top when I finaly talk to him and I ruin it by sobbing but I did get him to ajust my prescription and he didnt give me a guilt trip about it. Thats the bigest thing is sometimes hes so careing and others hes so busy. So anyway to keep a long post short here He gave me a better prescription ( same meds that work) and I should be ok and pain free for a month. This means my dishes get done and my house stays clean and I can actually enjoy going to the store once in a while.:smile tee I just want to say Thankyou to all who read and posted its still so new to me to have so many people support me it just means so much you will never know. I am hear as well for anyone who wants to talk about anything and everything, Just remember my math skills suck hehe.

[ihurttoo]

Glad he came thru for ya this time! But here is the link, in case he doesnt next time: http:www.ic-network.com/forum/showthread.php?t=228935#post228935

Hope you get some relief this month! But, when it comes time to refill, have this post memorized by then, and use it if you need to!

Many hugs,
Amy

[ihurttoo]

:hi: Formom! :welcome: to the ICN! I hope that you like it here as much as I do! Everyone here is very caring, helpful, and compassionate. I hope you feel right at home. Let us know if any of us can help you in any way! (I saw you replying to this thread, so I decided to try to welcome you and beat you to it! :))

Many hugs,
Amy

[formom]

hi everyone! i am new here just diagnosed last week with mild ic-if [B]there[/Bis such a thing. I began all symptoms after having my son in June. My mother had ic but I don't think she ever knew how bad it was because she was with a real idiot dr who just prescribed pain pills and levaquin and nothing else but surgeries after surgeries. Well, she passed away on oct 8th this year from a mishap during an operation. Anyway, now I know why she needed those meds, the pain gets unbearable. My doc put me on elmiron 3x day -i just started on sunday-it's only been 3 days. So far, so good. Anyhow, I called my doc to see what i can take in the meantime and he said prosed ds but honestly, that really did not work before I was diagnosed, and he did not offer me any pain meds. I too feel stupid to ask, because I think he will think i just want pain med. I hate that they just don't get what the pain is!!! I have 3 children and just want to get thru the holidays for them. well, thank you for listening and i am soo glad i found this site.

[formom]

Amy, I thought I was seeing things, you are soo funny!! Thank you soo much. I was nervous about replying because i am soo used to reading and comfort from that, but then i thought, maybe i too can someday help someone. Thank you again.

[Dora]

Please let us know what happens. It is such a scary thing to run low and especially out of meds. I hate calling my doctor's nurse as well. I have found it easier to call the on-call doctor since my file indicates to prescribe my Lortab. He gives me enough for 4 a day, but back when I was needed 1 every 4 hours, my doctor took care of it. As far as Elvis, like you said, you aren't him and you have a real pain issue going on here.

I am waiting for Amy's info too.

Tracey

wanna know whats funny is I did a check on how Elvis died and I read everything from he died from taking a bunch of different things all at the same time! fourteen drugs in Elvis' system, ten in significant quantity. And not once did they mention Percecet as one of them. And further reading had me read this (In 1994, the autopsy into Presley's death was re-opened. Coroner Dr. Joseph Davis declared: "There is nothing in any of the data that supports a death from drugs [i.e. drug overdose]. In fact, everything points to a sudden, violent heart attack.) hehe I love google! I have been taking 6 a day and it just didnt do it. I normaly need to take two in the mornings to jumpstart me and then god help me if I need to go out somewhere walking. I take two knowing ill run short but like this thanksgiving I had to keep up with everyone and traveling was a nightmare. I got a hotel room in shreveport and spent honestly most of the time there. ( I had to stay close to a toilet because of that nasty side effect of elmiron hit me while I was there. Thankgod It didnt hit while I was traveling.) But anyway I guess again I blabbed a blue streak hehe again and posted like a mad woman hehe. I better get this posted before I exceed the post word limit of they have one!:bonk:

[Bessie]

Formom,
I am sorry to hear about your Mom :pray:
Will keep you in my prayers.
Love,
Laura

[Dora]

hi everyone! i am new here just diagnosed last week with mild ic-if [B]there[/Bis such a thing. I began all symptoms after having my son in June. My mother had ic but I don't think she ever knew how bad it was because she was with a real idiot dr who just prescribed pain pills and levaquin and nothing else but surgeries after surgeries. Well, she passed away on oct 8th this year from a mishap during an operation. Anyway, now I know why she needed those meds, the pain gets unbearable. My doc put me on elmiron 3x day -i just started on sunday-it's only been 3 days. So far, so good. Anyhow, I called my doc to see what i can take in the meantime and he said prosed ds but honestly, that really did not work before I was diagnosed, and he did not offer me any pain meds. I too feel stupid to ask, because I think he will think i just want pain med. I hate that they just don't get what the pain is!!! I have 3 children and just want to get thru the holidays for them. well, thank you for listening and i am soo glad i found this site.

Dont feel stupid! I know exactly how you feel and trust me you have nothing to feel stupid about. You have a right to live pain free and the fact is for me and alot of others here pain meds work. We dont get high and all freaked out by taking them, we live normal lives and enjoy the pain free hours. Thats what I tried to tell my Dr today while sobbing like a freaking baby ( I am still mad at myself for that) I get up in the morning and I just hurt and 1 pill dosnt do it. I read the http://www.ic-network.com/handbook/painmed.html and I also read hurts post and I felt so much better about asking for pain medication. I think we are much harder on ourselves and the stigma of pain meds has ruined us from being comfortable in asking for help when we need it. Theres no reason to suffer when a little pill can make our suffering less and let us lead normal lives. You didnt ask to get sick and you didnt ask for this pain. Its not your fault you hurt and if something can be done to make it easyer then do it! If your Dr dosnt understand that I know its hard but get another one. Your not an addict just because you need pain meds. If your Dr gives you the Elvis speach hehe remember googles your friend! Let me know how your doing and keep me posted. You have a right to live pain free....Dont forget it. Oh and welcome to the site!!! :woohoo: <--I Love these little icons!!!

[ihurttoo]

Sorry the above link didnt work! :( I tried to fix it but something is still wrong with it, so I notified the administrator. Meanwhile, since the link still works in your other post, you (and the others) can go there to go to the link and read what I want you to. To do that, click on your name, then go down and click on your threads, then, you will see threads you have written. The name of your thread where I put that link is called "Pain Med Suggestions" I think you wrote in on 11/21 (But dont hold me to that date!). Then, go down to my post, and click on the link and it will take you to the transcript of the conversation I had with my Dr.

Good luck to both of you! Hope this helps!

Hugs to all!
Amy

[formom]

Thank you Laura, Amy and Dora. Does anyone know if it is ok to take a couple of supplements in one day? I was going to try aloe vera, fish oil, glucosamine with msm. I already continue to take Bladder Q and colosum(sorry not sure of spelling) along with my Elmiron, but thought I would add these since I heard they helped soo many people. I just don't want to take too much.

[karen10]

formom,
Because I'm sooooo chemically sensitive, I've had to try natural supplements first. I use aloe, glucosamine, MSM, quercetin, fish oil, and take a probiotic and natural fiber. I know others who take the aloe with Elmiron. I love the aloe, it helped reduce my symptoms by 80% and it was the first thing that I started with. It's good for other things as well, like constipation! :)

[Dora]

All I know is after a few days on the Elmiron I had ( to put it nicely) The screaming Demons, But the aloe sounds awesome to try! I have never tried supplements before so that one sounds good for a first. I have changed my eating habbits sadly, I miss bbq and spagetti sauce and tomato products! Also My "demons" arent to bad, Its just when they hit there better be a toilet handy! Small price to pay if this elmiron works! I have been on it for a few weeks now and so far I dont really notice any difference in my ic symtoms but I know it can take a while for it to kick in.
Let me know how your doing Formom with the supplements. :angel:

[formom]

Karen, thanks for the positive with the aloe, I cannot wait for it to come in the mail. Dora, I will definitely let you know, I have been taking Bladder Q for 7 weeks now and it did help with the frequency. I believe cycsta q is the same thing but not sure. You can get both on here under sponsors. Have a good day everyone!