New to all this......

[mommy-2-reegan]

Hi everyone, I'm Lindsey and I have just been diagnosed with IC in september.I have been suffering with IC since 2005 and just recently found someone to listen. I had surgery in Sept for my ovaries and had my IC Dr. coem and do his diagnosis with a hyperdistention. I am so happy I finally know what is wrong and why I am in pain almost everyday along with frequency and urgency. I have alot of anxiety about going places and won't unless I know there's a washroom CLOSE BY!!!!


I am very excited about talking to people about their IC and how they deal with it everyday......

[Roxie2007]

HI!
I'm glad you finally got a diagnosis. It's such a relief just to know you aren't wacky! LOL
I hope you can get on some good medication now to get your symptoms stablized. It really helps when you can sleep all night and not run to the little girls room all day! Good luck to you!

[Michelle25]

:welcome:

[Bessie]

:welcome:
We are all here to support you.

Roxie,
It is good to see you on the board. I was worried about you!

[leelee88]

Hello and :welcome:

[Berkshire Road]

:welcome:

I'm sorry you have IC. The most important thing now is to get a treatment program in place, because it sometimes takes more than one try (different meds or procedures) before each patient finds what works for her. But really, most of us do get better.

If you haven't already, I'd recommend reading the Patient Handbook (the link is on the top left side of the page), and especially the section on diet. Just getting on the IC diet helps some people a lot.

Good luck with it all, and know that we are all here to support you and share our experiences, any time you need us.

[mommy-2-reegan]

Thank you for the welcome!!!!

I was put on Elmiron and was on it for about 4 wks. I wasn taken off of it because my husband and I want to have another baby:kissing:

So right now I get nothing..I like to have a drink of vodka to wind down!!! Vodka is my wine.... But the next day I am soar and peeing like crazy:tsk: I know I should just quit it but come on, sometimes you just need to wind down!

The elmiron was just starting to take effect. Elmiron hasn't been tested in pregnancy and I'm not going to test it NOWAY. I am the type of person that won't even take a tylenol when with babe..... Any ways I'm not sure what else to do, I'm going to have to read that book I guess and PRAY ALOT MORE!!!!!!