GriffsMommy
11-17-2007, 05:49 AM
Okay, so yesterday I got the write up on my first appointment with my new pelvic pain specialist last week. They wrote up everything from the visit and sent a copy to my PCP, my GYN and myself. In the report it mentions that we had talked about Lupron for my endo and that I would tell them what my decision was when I came back for my follow up appointment the Monday after Thanksgiving.
I had endo diagnoised when it grew through my bladder and they had to remove the mass in 2003. I had a lap in 2005 to remove a large ovarian cyst and the operative report showed they didn't see any endo but did remove alot of adhesions. When the IC really started up I started have really really painful periods that were worse than I had ever had before. Dr. E thinks that the reason my periods are so painful is because the endo is responding to my period and my bladder is flaring from the endo.
He told me that his office has had great success with Lupron with the add back therapy to reduce the side effects. He only does the 1 month injection so if the side effects are horrible then you're only stuck with them for that one month.
I have read that some people that tried Lupron had a horrible time with their bladder and that worries me but I figure I'm already miserable anyway and maybe it will help. I would love to hear some experiences of Lupron with the add back therapy of hormones which I know I will do because my mother has osteoprosis really really badly for someone who's not even 60 yet and I don't want to risk the bone loss.
He did say that if the Lupron didn't work that we might do surgery in the furture weather that be another lap or a hysto. He said he would never do any kind of surgery now because it would just throw my bladder into a tizzy.
I think I've decided to at least try it for one month but I want to know I'm not going to be on the ground doubled over in pain from it or the side effects really aren't that bad. Ugh, I hate having to make decisions like this.
I had endo diagnoised when it grew through my bladder and they had to remove the mass in 2003. I had a lap in 2005 to remove a large ovarian cyst and the operative report showed they didn't see any endo but did remove alot of adhesions. When the IC really started up I started have really really painful periods that were worse than I had ever had before. Dr. E thinks that the reason my periods are so painful is because the endo is responding to my period and my bladder is flaring from the endo.
He told me that his office has had great success with Lupron with the add back therapy to reduce the side effects. He only does the 1 month injection so if the side effects are horrible then you're only stuck with them for that one month.
I have read that some people that tried Lupron had a horrible time with their bladder and that worries me but I figure I'm already miserable anyway and maybe it will help. I would love to hear some experiences of Lupron with the add back therapy of hormones which I know I will do because my mother has osteoprosis really really badly for someone who's not even 60 yet and I don't want to risk the bone loss.
He did say that if the Lupron didn't work that we might do surgery in the furture weather that be another lap or a hysto. He said he would never do any kind of surgery now because it would just throw my bladder into a tizzy.
I think I've decided to at least try it for one month but I want to know I'm not going to be on the ground doubled over in pain from it or the side effects really aren't that bad. Ugh, I hate having to make decisions like this.