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View Full Version : Saw Dr Raz to discuss bladder removal today


long journey
11-07-2007, 04:54 PM
Well I got in to see the wonderful Dr. Raz! He is an extremely generous man with his time and is so wonderful to work with. God put him in my healing path.
Well Dr Raz wanted to try Interstim for a few days prior to agreeing to removing my bladder. Thank God that he insists on a pelvic MRI prior to attempting Interstim... as it turns out I am missing my posterior sacrum bone! Evidently a congenital disease and one that would cause the pain that I am experiencing. The scar tissue that I have, that has been mimicing IC is from my body not telling me that I was having UTI's... is Dr Raz's best guess - with this bone missing my spinal cord is unprotected and not functioning correctly. At this point it is evidently "bulging" at this point and has slipped down. Dr. Raz's insistance on due diligence found my true issue! He did find that along with the scar tissue that I do indeed have small bladder and said that after the nuerologists he'd love to have me back to enlarge it for me... believe me he's the only one I want touching my bladder! Dr. Kim assisted him and she was wondeful, as well. Jean Davis is great! So folks odds are I won't be hanging around here much once I start my new direction in healing. I want to tell you all that you've been so good to me and I would not have gotten to this point without these boards.
Lesson? Please exhaust every assest available to you! Don't listen to anyone that tells you, you cannot get better and there is many things out there that can cause what you are experiencing and not all Dr's have all the answers (just like the rest of us humans) I was diagnosed by 3 dr's with IC! Fight until there is nothing left to fight!

FYI if you do come to UCLA for medical work ... The Tiverton House is great accomodations! Great staff, wonderful rooms, great sense of community with the other guests. I am on the wi-fi now. It is close to everything UCLA medical and has a shuttle.

leelee88
11-07-2007, 05:09 PM
He really sounds like a wonderful Dr. I am glad you got some answers. And ones that make sense..Please keep us posted..I tried adding you to myspace but it want download all your things, going to try again later..

Kara29
11-08-2007, 11:22 AM
I'm so glad he found the root of your problems. Thank God for wonderful Doctors who know what is what!!! You will be in our thought and prayers no matter what you go through. Well Wishes and better, brighter days ahead for you!

Kara:angel:

long journey
11-08-2007, 11:33 AM
I did a bit of reading on this new issue and it can cause symptoms that can look like IC... all along my experience with IC was a bit atypical but they just don't know enough about it to rule it out, sometimes. My new set of issues is normally found before birth with ultrasound and often corrected inutero... just born a little too early for that... no ultrasound during my mom's pregnancy! I've already got a line on a great nuerologist in my area, just need a good pain management team...

My thoughts will be with all my IC'ers and I am sure to check around here from time to time!!

Claredale
11-08-2007, 11:35 AM
That is great news!

Tracey

Judith56
11-08-2007, 01:19 PM
I am so very happy for you. Howwonderful that you found out wht is really going on and now you know what needs to be done. Good luck to you in your journey! Judith

Babs RN
11-08-2007, 02:09 PM
Isn't he just wonderful? Safe travels back to Florida, and I am thrilled he was able to find some answers for you.

Hugs,
Barb:smile tee

Bessie
11-08-2007, 02:10 PM
That is so great that they found out what was going on with you. God bless wonderful doctors :angel:
Check in with us from time to time and say hello.
Take care and may God bless you.

long journey
11-09-2007, 01:51 PM
It's ironic that I had to go all the way across the country to have a Dr. do a test that could/should have been done here to find something out... so important! But that is what sets Dr. Raz apart! He did call the head of nuerology at UCLA while I was there and got more info for me and helped give me a direction to go in, great info and questions for the dr that I chose here at home...

It is good to be back in my home, my dog went crazy... onward and upward