I.m Back...

[mum43]

Hi ya,
I just thought I would let you all know that I'm home from hospital and slowley recovering.
The operation went well and there were severe complications just after the op had finished, putting me me in intensive care for 2 weeks fighting for my life.
There was only one bag of blood and I bled very badly, it took the doctors five hours to find more blood, leaving my family frantically worried because at the time the doctors said I was desperatly ill.
I was in a room of my own with my own nurse 24/7.who took very good care of me.
I fell a lot stronger now.
It's all ok now, just means I have now got a very rare blood group group now which will be hard to detect should I need any further surgery in the future.
I am recovering well and slowley getting about, but, the pain is very strong and I am taking some very powerful pain killers.
I don't have much of a appetite these last few days but am keeping up with the fluids.
The mitofanoff and superpubic catheters are stitched in place until I go back in to hospital in 3 weeks to have the removed.
They pull a lot and are sore but I am sure I will live.

I hope everyone is ok and thankyou again for your support.

Love Jill xxxxxxxxxxxx

[ICNDonna]

I'm glad you're home. I hope you continue to recover with no more bad stuff.

Warm hugs,
Donna

[SharonA]

I am really glad to learn that you are home. I hope you continue to recover without any more complications.

[traceann]

That's wonderful that you're home! I too hope that from here it's all good stuff and lots of healing going on!!!!

Hugs,
Tracey

[leelee88]

(((((Jill)))))) I have been SO worried.... Your daughter wrote me on myspace and I posted that for everyone one here... I am glad the worst is over..
I have been praying for you everynight and asking for prayers for you here on the board..

Well thanks for letting us know you are ok..:kiss:

Your friend Ronda

[mum43]

Thankyou ladies,
It's early days yet, but although I am still slow walking about, and walking up the stairs puts a strain on my stitches, I think if I can get the pain under control, then I will be able to concentrate on my recovery.
I have a nurse coming out everyday to clean my wounds.
And my family are taking very good care of me, especially my hubby,he does' all the washing, cleaning, shopping and helping me to wash etc.
He has been so busy since I came home.
I have been totally pampered.

talk soon
love to all xxxxx:smile tee :grouphug: :flower:

[blackcat25]

Hi,
Glad to hear your on the mend.
Hugs
Blackcat:cat: (We have spoken before, but you may know me as Arwen from the incontact board)

[Judith56]

Jill, how wonderful to see you posting again! Hopefully this it now, and as the days go by you will feel better and better. As you said the main thing is to keep on top of the pain and go ever so slowly when doing things. Hang in there, I am thinking good thoughts for you. Hugs, Judith

[Kara29]

Dear Jill,

I'm so glad to hear from you. Been thinking about how things went with surgery. I'm glad you are on the mend and got through that. Sending well wishes and a smooth recovery from the States.

Gentle Hugs,

Kara

[Bessie]

How wonderful to hear from you and to hear you are recovering. It just takes time. Just remember to take those baby steps each day......don't go for the leaps :hi:

[marsi4]

I was also concerned and prayed you got through the surgery safely. What happened to you was very scary and so relieved that you pulled through. Take it slow get as much rest as you need and take it one day at a time and the healing will gradually happen. I'm sorry for the pain you are in. Try and sleep so you won't feel it as much. I pray that you will have a better life now that the sugery was successful and the previous one was corrected. You are in my thoughts and you are one brave and strong woman.

Marsi4

[mum43]

Thankyou everyone,
Sorry it took me so long to reply, been back in hospital.
I had the catheters taken out, but the superpubic catheter got stuck, the nurse never checked to see if it had a balloon on the end.
I did tell her this but she pulled it and split me open.
My uro surgeon had to put stitches in and now I have a hole the size of a large coin in my groin.
I am on the mend, still taking it slowly and dying to go christmas shopping lol:lmao:
I have not done a thing yet, and prefer to buy presents myself, thank goodness for online shopping girls!!
We get there in the end don't we!
I am listening to Westlife's new cd, my hubby brought it for me as agift with a lovley big bunch of flowers.
So I am resting and doing as I am told hehehe !!
I am having a problem getting the catheters to reach the bottom of my pouch, they only go half way down.
I am a little worried because if I can't empty it totally then I could be prone to infections.
My uro said she will do a scan to check for any problems, she is pleased with my other scans and xrays and said I am healing well inside.

I hope everyone is well!!

love Jill xxx

[leelee88]

Oh Jill, You sure have bad luck with Drs and nurses.
I am glad to see your spirits are up though, I hope everything continues to heal well for you. Sending you more healing wishes and prayers and you take care of your self...((((((hugs))))))))

[mum43]

Leelee hugs:angel:
Nice to hear from you hunny.
I just sent you a myspace message.
I'm in alot of pain today, and have some muscle around my neobladder which is tender and hurts, so I will have to take some pain killers and rest won't I?

talk soon sweetie take care ok xxxx

[Bessie]

Jill,
I am so glad you are back at home.......there is no place like home :)
I hope you get well soon and that you enjoy the holiday season. Don't overdo it o.k.? Just rest, rest, rest!! Sorry you are hurting today. It will get better. Sending you hugs, prayers, and well wishes :grouphug::pray::hi:
Take care,
Laura

[Judith56]

Jill, good to see you posting again. That's terrible what the nurse did to you! Can you take any course of action? As for getting down to the bottom of your pouch, how long is the catheter? Mine are 16 inches long so they really get in there. I have never had it reach the inside wall as far as I know, I dont think it needs to do that. I hope the scans tell the story. Does the uro have you irrigate it? I am happy you are taking it easy. Thanks for the update:)

[Briza]

So very sorry for the complications :( but I sincerely hope that you are on the mend! You've been through a lot, a true survivor you are :); keep your mind full of positive thoughts for the future. You will continue to be in my prayers. I truly hope the worst is behind you!:angel:
XOXO:pray:
Bri

[Texas Baby]

Jill,:hi:
I know i haven't posted very much to you, but I am so glad you are doing better! Recovery Time is a b#@$%! I hated the first few weeks , then I remembered it would all be worth it soon. I am so sorry to hear you have had a time of it though! I will keep you in my prayers and pray that this time next year you will be out there with all of us crazy people Christmas Shopping!
Blessings & Hugs,
Eva
PS, I will run amongst the crowds of crazy Christmas shoppers for you this year since I feel really good since my surgery! (feb. 07) how's that sound?