Question Re: vision

[MakinIT]

I have a strange question for you all....I've been recently diagnosed with Sjorens and I don't know if this is a symptom or something all together different.
I've noticed in the past few months it is difficult for me to keep my eyes focused, and in my PT eval with the nuero department, they found I lose my balance because I cant my eyes from moving independently (a mild nystagmus) So at any point during the day my eyes just suddenly lose focus and i struggle to refocus them. I am at a lose to figure out what is going on. Maybe the morphine? Maybe the sjoren's, or maybe nothing to dowith IC?
I gotta stop typing cause my eyes are freaking out now...Oh yeah..I also have noticed I have to wear sunglasses everywhere, even inside places if they have flourescent bulbs.

[Sally939]

I am also having vision problem but to less a degree. I am going to see my doctor about it this week. I think it is a side effect to one of my meds.

[hdb1982]

I am having blurred vision and just read on drugs.com it is a side effect of ditropan. Just thought I'd mention it 333

[MakinIT]

Yeah...I don't take ditropan....itreally bothers me because my eyes are so gritty and hurt. I can't focus well. I'm drinking water like it's going outta style. Egads, I certainly hope it's nothing else. I'm going to bed...nighty night

[ICNDonna]

Did they prescribe eye drops for you? Any advice on how to keep your eyes moist? Some people with your condition need to blink their eyes frequently as well.

Donna

[Kara29]

What do the Doctors say could have caused this syndrome? Sometimes some of our medications can bring the symptoms of this syndrome around. Maybe you could call your pharmacist too and ask if some of the meds could be aggrivating this. I hope you feel better soon and get some advice on how to care for it.

P.S. I've had to wear sunglasses all year long. I hate the sun. I never open my blinds. I have not been diagnosed with this but wouldn't be surprised in the least if I had it as well. I know I have a hard time wearing my contacts. They dry out fast and blur. I can't wear them for very long. Before I got married we tried 6 different brands of lenses until we found one that I could wear for my wedding day. I've used this brand since then but I still feel more comfortable in my glasses.

Thinking of you and hoping you have a pain free, happy day today! :smile tee :smile tee

Hugs,

Kara

[MakinIT]

My Eye doc, who is an M.D. and surgeon, did prescribe special drops and a night "goo" to put in my eyes. She tested my eyes (screened) for sjoren's by seeing how quickly my tears evaporate on some special paper and they disappear as soon as they hit they air, so it sucks. My eye drops are in daily doses (like those OTC daily tear things) so I have to twist a plastic top off. Unfortunately they leave a little sharp plastic edge behind so in addition to my fear of dropping the stuff in my eyes (I could never wear contacts) I am always scratching my eye with the edge so it has made me not want to use them. It Hurts. Owie. So I've just been using the lovely goo. I might try to find the microscopic scratchy edge and file it off each dose but man, who has time? (yeah, I know...do what you have to but what a stupid design)

I was reading up on this disease more last night (I just thought it was dry eyes, mouth and skin ....I already deal with the skin....) It can be pretty nasty. My eye doc told me to only drink water. nothing else and tons of it. Women who have it have a very high chance, vs. normal pop., of Lymphoma, and organ problems. Yipes. She toldme then to stop coffee, so now I have.

I do know my meds can cause dry eyes as well but they haven't caused this problem before, (or the wierd vision with the balance and focus). I still have 20/20 vision..prob because as a kid/young adult my vision was better than 20/20...but I have an astigmatism so its sorta like that only rather than just a halo, it's like a multitude of halos....glasses haven't helped.

I'm off to Physical Therapy...Time to twist my foot somemore....My tummy really hurts today, bad IC day so we'll see how that affects my performace. I had to take an Oxycotin (along with my MS Contin that is my daily routine) but I'm still feeling icky. I'm looking forward to the part in this rehab program where we start working on pain relief/ endurance and strenghtening.

Talk to you later and thanks...