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View Full Version : I found an amazing uro and an amazing PT who are actually helping me!


fcombs
10-26-2007, 12:31 PM
:hi:
I had to share this with you all. I know after years and years of frustration and things not working, you look at everything with skepticism. That's me - you gotta show me.

A few months ago I went to an amazing uro whom some of you may have heard of - she doesn't practice in my home city of Nashville, but she's in Knoxville, and that's just a few hours away. Her name is Dr. Ragi Doggweiler. I decided to invest the few hours and try her. She worked out an amazing multidisciplinary plan of action for me - work on the diets (get off yeast products and sugar), see a PT that she recommended and start and exercise regimine that involves stretching and very slow movement. I am going to be doing Pilates because my neighbor has a studio and has offered to study up on my "ailments" and work out a personalied plan for me.

The physical therapist is who I really want to talk about. I went in not expecting anything. I was in a position where I could barely stay on my feet for an hour (pain and lots of it), would limp across the floor after being seated for a few minutes, and had excruciating back pain in the mornings. I do have interstitial cystitis - was diagnosed in 1995. I also have fibromyalgia, IBS and chronic fatigue syndrome. Anyway, this physical therapist turned out to be the PT for the Nashville Ballet. She examined the lines of my body, watched me walk, put me on a table and did some manipulations. She then told me that she had treated other IC patients, and that she has seem the same thing in them. The right side of my pelvis was "torked" forward and to the left causing one leg to be shorter than the other and causing the myofascial tissue surrounding the bladder to be pulled on and irritated. I got off her table after one session and walked across the floor without pain. And I've only had ONE bout with pain on waking in my back since. :woohoo:

This young lady is working with me very slowly and gently and giving me very simple exercises to do at home. What she has done in two visits has helped my IC and my pain more than anything I've ever tried. I'm paying her out of pocket - my insurance won't cover it, but to get results like this is worth it.

I just wanted to share this with you because it just shows how complex this syndrome is, and some of you might benefit from my experience. I'm not saying I'm cured, but I sure an a lot better, and I've only been to this PT twice.

My next goal is to begin the Pilates classes and start the slow stretching. I have had this disease now for many years, and I feel like if I don't start moving and moving with less pain that I am going to end up not walking at all or worse yet - dead from a heart attack brought on by lack of exercise. I am excited about the strides I have made recently, and I will be forever grateful to Dr. Ragi Doggweiler in Knoxville for putting me on this course. :pray:

Faye Combs
Nashville, TN

JanL
10-26-2007, 03:43 PM
SHe is a GREAT doctor! She used to be in Memphis and we miss her so much. I am glad you got to see her. I am very interested in your PT info. I have seen a PT in Memphis that Dr. D. used to send her patients to and she is very good, but I am interesteded in her theory about the shortening of the myofascial tissue. Keep us updated about your progress.

Janice

LauraLuLu
10-27-2007, 04:42 AM
That's really interesting because at a mind body and spirit fayre I saw a PT sort of person who did a mini-taster treatment on me, and she noticed my pelvis was wonky and one leg was a little shorter than the other. Crikey.

SharonA
10-27-2007, 05:07 AM
I am so happy for you. I have heard wonderful things about Dr. D when she was here and was sorry that she left the area. I always said that if I needed a Uro I would go to her. Oh well, if I need to, I guess K'ville isn't that far away.

ICstinx
11-09-2007, 05:29 PM
I am a newbie to this site and have been reading the posts.I was diagnosed with IC after a month of severe pressure and pain,Hospialized three times and misdiagnosed with PID an a UTI.I too have one leg shorter than the other which was discovered after I was in a serious car accident in 2003.I am curious if this is related, I think its worth looking into.:confused:

tuazmom
11-11-2007, 05:28 AM
Hi, read your post. I too have a pelvis that is "off kilter" and one leg shorter and I just got a referral to a PT. The problem is that every PT is so different and many have never heard of IC.

Can I have his or her name so my PT therapist can at least call yours to share this knowledge and get my pelvis back on track? I have back pain too and fibro, so I'd really appreciate it.

If you want to contact me privately, e-mail tuazmom@Gmail.com

Many thanks,

Marsha

ICstinx
11-11-2007, 05:40 PM
My car accident was 2003 and I never really had my doctor pay attention to my complaints of my hip hurting and feeling my pelvis was "off"-funny thats how i explain it.It was only after i went to a chiropractor and he measured me that my suspicions were confirmed,He said that can throw your whole body out of whack.Also he said its very common.So I wonder if there is a link between IC and this.Have you ever tried laying on your bed on your back and stretching one leg straight and than the other(almost reching as far as possible) back and forth.I get a pop and not every time,but when I do I walk better,feel better and no low back pain.No more off kilter,only it doesnt last forever,I do it when I wake every am.:idea: Give it a try.