What is going on with my body????

[serendipity]

I am STILL not diagnosed with IC. In the process with my current urologists who thinks it may be endometriosis and/or a mild case of IC because of my symptoms. I don't have frequency or urgency (well urgency is a day here or there but not constant). I never wake up at night to void. My pain is located only on the left (but its the suprapubic left) and my lower back. I feel tender there, say if my cat sits on me or if I lay my laptop on it, or if my pants push against it. Also if I eat or drink something I THINK I am reacting too...it doesn't cause me to void more but I get menstrual like cramps high up...like in my stomach or abdomen. I can have sex and feel fine (but not in missionary...I have anterior wall pain then and that's where I have it during an internal exam as well) but a few hours later my whole pelvic area aches. Right now I have my menstruation and my buttocks and inside thighs area ache. WHY???? WHAT IS GOING ON WITH MY BODY???

[traceann]

I sure know how you feel - and I wish I had answers for you too! It totally stinks when it feels like your body is against you, the one thing you depend on to work right suddenly does it's own thing, it can be downright miserable! Not only the way it's making you feel, but the not knowing what is going on and why - sometimes I think that's worse!

Hang in there, and keep your chin up - I am sure you'll soon have some answers and can then move forward to getting that body to behave! ;)

Hugs,
Tracey

[ICNDonna]

I think the time before diagnosis is the worst time of all for any disease. Somehow once I know it becomes easier.

I hope you get a diagnosis soon.

Warm hugs,
Donna

[sickofmybladder]

I know exactly how you feel - I had very similiar symptoms and it took too many doctors to count and almost 2 years for them to figure out why my body was turning against me :angel:

I really hope you get a diagnosis soon - and that you begin to feel better soon.

Have you tried the IC diet - it couldn't hurt.....

[mbhbarb]

Serendipity,

I'd be interested in knowing if you get an answer to your symptoms. For years I have had a pain on the right in my pelvic area. I didn't know if it was uterine, bladder or colon pain. Now that I've had a hysterectomy and eliminated the uterus but continue to have the pain, I still can't pinpoint it. I have a lot of other symptoms in both my bladder and my colon. Often if I empty one, both feel better for a time. I know I have endometriosis because when I had the hysterectomy my uterus was stuck to my intestines. The lab report came back that endometriosis was the cause. I suspect there are other adhesions, including one between my bladder and my colon and that this may be causing the pain on my right side. I do not know how a diagnosis of this would be made short of surgically with a laproscopic exam. I have had a colonoscopy and a sigmoid exam and neither showed any abnormalities. However, when I had the sigmoid and the scope passed the place that hurts I felt tremendous pain.

If you get any more information I hope you will post it. It is unnerving to have pain and not know why.

barb

[sandy1020]

Barb, I think I posted my reply on the wrong post. Forgive me I'm still quite new at this and not good w computers.Well, here I go again. I too have pain on the right side (it feels more like bladder pain to touch) But the pelvic pain on my left side feels ovarian. I also had a hyst in 2000 but left my ovaries in. 2 mo ago I had such deep pelvic pain that it radiated to both sides,toward my back,into my groin and down my upper legs. It was the most excrutiating pain i ever had and I had 5 vaginal deliveries,2 w no drugs for pain at all.the pain is dull when standing but nothing i can't handle but when I lifted my legs to walk it literally sent me to my knees. Went to ER and spent 9 hrs doing cat scans ultrasounds blood tests, urinalysis and finally got admitted and on Dilaudid every 4 hrsfor days and finally did a laparoscopy and found a little adhesion on the left side of my abd to my sigmoid colon but my dr said that should'nt have caused unbearable pain. I also had my ovaries taken by request cuz of recent fam diag w ovarian cancer. After the surgery I got up to the toilet and lifted my legs with NO pain.My Dr was still puzzled. Then 2 mo later it happened again. This time every kind of dr was on my case and could'nt figure it out. The pain got better on its own this time but not completely. so they sent me home with no diagnosis and a walker. I'm 47 and using a walker and don't know why.By the way that pain on my left lower pelvic region is still there. I could swear it's my ovary but all my parts are gone! Anybody out there ever have this much of a problem? Sandy

[phudsicle]

Sandy - know where you're at. My ovaries have been removed for 22 years now, and I have these sharp pains that shoot down both sides; however, left also shoots down into the left side of the vaginal canal. I was diagnosed moderate to severe, and have degenerated quite significantly in the last year. I am 42 and use a cane, and have a wheelchair at my office - makes getting around my work station more comfortable (I work in computing at a university here in Arkansas). I don't know why it feels like ovary pain, but it does - I have both IC and PFD, and can't figure out which one flares the other - but am currently home today because one just came out of nowhere. It's VERY discouraging; the unpredictability and lack of docs that really know what to do. I just manage my pain and try to continue working - but it gets incredibly depressing. There are no specialists here in Fayetteville, AR. And God bless my partner. Watching all of this pain, being able to do nothing about it, and having to think of all sorts of things when we travel for me, wears one out. My partner is wonderful, but our lives have changed significantly because of this diagnosis.

Anyway, I hate my canes and I hate my wheelchair, but if I don't use them, I pay a higher price. I've finally submitted myself to that, and just try to move through stuff as best as I can. But it feels ludicrous and embarrassing because I am so young....I do have a permanent disability tag in the car. If you don't, you can go online and download the form and take it to your doc for him/her to sign. The handicapped parking has saved me many times, especially on campus.

Pam