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unicornsintherain
10-07-2002, 09:09 AM
I Started going to the Cleveland Clinic in Ohio which is ranked 2nd in the country for urology. he Dr that I saw there was one that was recomended to me by the ICA.
When I first got there He asked me my history etc.. and I told him that After many long months I had been diagnosed with Interstitial Cystitis via hydrodistention and cystostcopy. He gave me some important information that has absolutely changed my life and I would like to share it with you.
He finds that a high percentage of people that come to his office with Interstitial Cystitis test postitive for a bacteria called Ureaplasma Urealyticum... needless to say i tested positive for this bacteria. I have taken one course of antibiotics and my symptoms are all but gone. He said most urologists do not test for this bacteria because the tests can be costly. I asked him for some information to share with everyone and he sent me a paper with the following information:

Ureaplasma Urealyticum is the smallest free living organism known. It is like no other bacteria requiring special tests for identification. Even with these special tests, ureaplasma can be very difficult to isolate and treat.
Ureaplasma can be found in the genitals, bladder or rectum of 30%-50% of adult men and women. It can be silent or cause a variety of symptoms such as discharge, burning and pain or can even impair fertility or cause complications with pregnancy.
Ureaplasma can be acquired in a multitude of ways many of which are unclear. It is known to be transmitted sexually, thus it is considered to be a sexually associsated disease. A diagnoses of ureaplasma in yourself or your partner does not imply infidelity, but does mean that both of you should be treated.
Your Dr will prescribe special antibiotics for the both of you. It is advised not to engage in sexual activity during the course of the antibiotics (10-14 days) to ensure that the bacteria is completely eliminated. It is important to return to the office approximately one week after finishing yout medication to reculture and make sure that the bacteria is completely gone.
Again this bacteria is a sexually related organism, not a sexually transmitted disease.

I am not promising that this is an all time cure or anything, but so far I have no symptoms anymore, after thinking I would live the rest of my life in pain. My Dr sayes that some not all of his patients show good results by treating this bacteria, but I think it is worth a shot for anyone who wants to try it. Infact Cleveland Clinic is finding that they can eliminate symptoms in over 50% of IC patients by treating this bacteria. good luck.

Gail
10-07-2002, 09:46 AM
Thank you Uni for this message. I will have my urologist check into this, and hopefully he will test for it.

What antibiotics and at what dosage did you take?

Thanks again for this information. It would be wonderful if this were the case for many of us, Gail <img src="graemlins/bunny.gif" border="0" alt="[bunny]" />

thegabrielle
10-07-2002, 09:46 AM
Unicornsintherain,

Do you know if only 1 person would show these symptoms? I mean I have smptoms of IC but my boyfriend does not could we both have Ureaplasma? Thanx for this info I am going to see my urilogist next week and ask him about it.

Take Care,
Renee

unicornsintherain
10-07-2002, 10:07 AM
Yes, my boyfriend exhibits no symptoms and he is positive for it. Most people have no symptoms. Just a lucky few. here is alot of information available online. There is even some speculation that it may cause fibro and cfs.

rikrak
10-07-2002, 10:13 AM
I am assuming that you have to have symptoms of pain, burning, etc. to have this be the cause? I just have frequency, urgency. Can this bacteria cause just those as symptoms?

unicornsintherain
10-07-2002, 10:17 AM
I would ask your dr. All I know is what my dr told me and what was on the paper I quoted. Cleveland Clinic is one of the leaders in IC research though.

havehope
10-07-2002, 10:28 AM
While looking on the net about ureaplasma urealymticum, Doxycycline was mentioned to be 100% sensative/proof. What was the antibiotic you were prescribed?

unicornsintherain
10-07-2002, 11:22 AM
Its a long story but the first antibiotic i had to stop taking and now im on doxycycline.

Mary F.
10-07-2002, 12:51 PM
Hi!
This is really incredible news!! I intend to call my urologist, and hopefully get tested. Thanks SO much for the great news, and I am glad you are feeling better!! You are really an angel
<img src="graemlins/angel.gif" border="0" alt="[angel]" /> for sharing this information with us all!
Mary <img src="graemlins/hi.gif" border="0" alt="[hi]" />

unicornsintherain
10-07-2002, 01:05 PM
I just want to make it clear to everyone that this wont work for everyone, just as every treatment with IC. I just think its worth a shot. Let me know what your drs think.

Sparky2
10-07-2002, 01:06 PM
Hi everyone:

Early on when I first had symptoms, I insisted that my doctor test me for this. She was VERY reluctant to do so because acc. to her 1.) the PCR test for it IS very expensive, and 2.) she had a hard time believing that this bug could be causing me urethral symptoms since about 75% of ALL women walk around with this bug as part of their natural bacterial flora day in and day out.

Well, to make a long story short, I insisted upon the test and subsequently did test positive for it and was treated appropriately [i.e. a few weeks with both doxycycline and e-mycin (as was my husband)]. End result - no significant improvement on either of these 2 antibiotics, though a repeat culture showed no u.u. .

Though I don't want to discourage anyone else, I just wanted to share my experience. In truth, I believe that anyone newly diagnosed with IC should definitely try a few courses of different antibiotics to see if he/she is suffering from some sort of occult infection.

Best wishes,
Lynne

Kara
10-07-2002, 02:24 PM
Thanks for the info I will pass it on to my new uroologist next week!

Kara

thegabrielle
10-08-2002, 02:14 AM
Just wanted to let everyone know that I called my urilogist and they don't test for Ureaplasma Urealyticum. But my gyn does so I made an appointment for Oct. 28th to be tested. So any of you considering being tested should call your doctor to see if they do run the test for Ureaplasma Urealyticum.

Thank you,
Renee

rita45
10-08-2002, 03:28 AM
Unicornsintherain,

I know I spelled that wrong... I am thinking of going to cleveland clinic. Would you e mail me with the name of the doctor that you saw there I would appreciate it so much..

I have several names amd info on drs there.

jennings@velocity.net
Thanks Rita

LT
10-08-2002, 03:41 AM
There are two labs doing PCR testing for mycoplasma and ureaplasma that will accept specimens from your Dr. via Fed-Ex. Their urls are: http://www.imd-lab.com and http://www.mdlab.com

I have done a lot of research on mycoplasma/ureaplasma and found the Cleveland Clinic study online and wanted my Dr. to test me (he wouldn't) but he did prescribe Azithromycin for 6 weeks. I've been on it for 6 days and I'm almost pain free! It's amazing. Another piece to the puzzle though is that you need to treat yeast while you're doing this. Even if you don't have visible vaginal yeast, small amounts can mimic the same urethral symptoms as the ureaplasma. I'm on Diflucan for the 6 weeks that I'm on the antibiotics. It's really working!

Jen_Cole
10-08-2002, 04:46 AM
uni-fabulous! Thanks for the info! What did they do to test you-like a swab or something?

Fields
10-08-2002, 05:09 AM
Could you please tell me how much the test for the bacteria ureaplasma urealticum costs? Is it a urine test? Does it take a long time to get the results? Would it be better to go to a gynecologist or urologist to get this this test done? How can I get information on the Cleveland Clinic study? What did it prove? I know I have asked a lot of questions but this is really an excitng development in the possible cause and treatment of ic. I would appreciate any information any of you could give me. Thank you so very much.

neugass@yahoo.com
10-08-2002, 05:45 AM
LT,

You say the antibiotics are really working. How long have you had IC? Have you tried alot of the other treatments out there? Just curious if you're new to IC. This is great news!!

Beth

Nicole in ATL
10-08-2002, 06:16 AM
Congrats Uni!

Glad this is working for you...

I'd like to try this as well. My impression is my uro doesn't think IC is caused by bacteria, but hopefully she will be open minded to test me or try this method.

What anitbioitcs are you taking and for how long?

Nicole <img src="graemlins/blink.gif" border="0" alt="[blink]" />

LT
10-08-2002, 06:21 AM
Hi Beth,

Fairly new (although it seems like forever). Since May of this year. I don't post here much, but I check out the articles once in awhile. I haven't done any invasive therapies. I started with the Desert Harvest Aloe, Algonot Plus and then became convinced of the bacterial theory and started on natural antibiotics (raw garlic, oil of oregano, goldenseal, olive leaf extract) and saw some real improvement. I took the Cleveland Clinic study in to my Dr. and pleaded with him to let him try me on antibiotics (he wouldn't do the PCR testing) as I really felt I had mycoplasma/ureaplasma issues. He agreed and also has me on Diflucan (I've had major yeast issues which can mimic bacterial urethral symptoms). I still wish he would have done the test, but oh well. I just hope this continues. It's like night and day. I also had a broth culture urinalysis (like they used to do in the olden days before the new "rapid" tests became available) done by United Medical Labs in McLean, VA and they found enterococcus (strep-D) in my urine, so I'm probably dealing with multiple issues, but feel I'm definitely on the right track!

LT
10-08-2002, 06:29 AM
Links for the Cleveland Clinic study:

http://www.drmirkin.com/women/8350.html
http://www.clevelandclinic.org/urology/news/misc/vol6g.htm

The links I indicated earlier to the labs that do PCR testing will give you a lot of info, including pricing:

http://www.imd-lab.com
http://www.mdlab.com

vm
10-08-2002, 07:17 AM
Donna or Jill: I would be very interested in hearing what either of you have heard about this in any of your research or experience. The good, the bad, the ugly. smile.gif

unicornsintherain
10-08-2002, 09:00 AM
The test was a swab test and i dont really know how much it cost. Ohio has health insurence for parenting families of certain incomes and it covors it.
Just to let you guys know... i don't necisarilly claim this to be a cure or anything... think back though when you first had IC, did you think it was a uti? did the symptoms disapear breifly when you took antibiotics? and even if my symptoms do come back... doesnt it mean something that they go away at all. Cleveland Clinic is one of the best hospitals out there... they ranked top in most fields by us news and world reports and second in the country in urology. My Dr sees hundreds of IC patients, infact its almost all that he deals with. I think that this is worth a shot as a treatment just as much as any other. It probably wont work for everyone, but how many treatments do? If we can help a couple of us find releif, then it is worth it. <img src="graemlins/grouphug.gif" border="0" alt="[grouphug]" />

Fraidycat
10-09-2002, 04:28 AM
What do you mean by a "swab test?" Sounds owee.

JOJO
10-09-2002, 05:34 AM
Unicorn
I just wanted to know, did you have a hydro,were you officially dx with IC,nevermind I just printed out your post and see you were. How could something like that cause the pinpointbleeding in the bladder?This is interesting-JoJo

LT
10-09-2002, 06:02 AM
JoJo,

Numerous studies have shown that many patients with every classic IC symptoms have no glomerulations in their bladder upon hydrodistention, while many people with "normal" bladders and no symptoms DO have glomerulations. I'm assuming this is why the latest NIDDK study (that I just read about on this website) that is studying IC are not requiring cyto/hydrodistention diagnosis to participate. They are strictly relying upon the patients clinical symptoms. The NIDDK has always had by far the strictest conditions for participating in their studies, and are now apparently abandoning the "now ambiguous hydrodistention" (a quote from this website regarding the study) as a method of diagnosis. Many other Dr's and researchers are also. When people with healthy bladders display "pinpoint bleeding" on hydrodistention and other people with horrible IC symptoms don't, it really makes no sense as a diagnostic tool.

JOJO
10-09-2002, 06:08 AM
Hi
From what I read this could be a STD,in away . It is known to be sexually transmitted, maybe that is how I should put it. Do they connect this with trichmonoiasis? Its funny cuz in1989 I had that and months later I was at the uro, complaining of frequency.. I did take antibiotics for it. Did anyone else out there have trich and notice there uro problems started. I have to tell you this blows my mind but I cant tell you guys why cuz you will think I am nuts <img src="graemlins/eek.gif" border="0" alt="[eek]" /> -JOJO

LT
10-09-2002, 06:21 AM
JoJo,

Aw...come on. Tell us what you think.

If anyone told me a year ago that I'd be sitting around discussing my bladder, urethra, vulva, vagina and anus with complete strangers, I would have told them they were nuts!

IC makes everybody nuts, so what? wink.gif

vm
10-09-2002, 06:38 AM
Yeah, JO. Spill it. <img src="graemlins/lmao.gif" border="0" alt="[lmao]" />

vm
10-09-2002, 06:39 AM
Oh, and unicorn - congratulations (?) on finding something that has helped you feel back to normal. That is soooooooo wonderful and I bet it just feels awesome! <img src="graemlins/kissing.gif" border="0" alt="[kissing]" />

NB
10-09-2002, 09:53 AM
No one answered the question about how the swab test is taken. Does anyone know?
Do they go into the bladder and take it? OUCHHHHHIE, i don't like that thought but if this is a bacteria that can easily be killed off and possibly end IC for good then i has to be worth it!!!!

unicornsintherain
10-09-2002, 10:08 AM
Hey guys... chill out... it was a vaginal swab.. no pain dont worry i freaked out when they came at me with a swab!

Sparky2
10-09-2002, 10:08 AM
Hello:

Per your question about the swab test: they basically take a Q-tip and swab the urethra or your cervix...whatever you prefer. (The urethral swab makes more sense to me.) It's a little uncomfortable...but I didn't find it particularly painful...takes just a few seconds.

Best of luck,
Sparky

Fraidycat
10-09-2002, 02:00 PM
Okay, I called my gyno and spoke to a nurse. I explained what I wanted done, and she said they don't do that test because it's a bladder-related test. She said to go to my uro. But my uro won't do it!


Was she wrong, and should I insist on talking to my gyno about this in person?

unicornsintherain
10-09-2002, 02:22 PM
Alot of uros wont do the test unfortunately, but try asking your uro if he would be open to the possibility of just treating it with antibiotics and treating your partner. Ive heard some uros will reluctantly do this.

Fraidycat
10-10-2002, 01:29 AM
This is so bizarre and stupid! Why should we have to convince our doctors to do this for us? When will these people learn that they work for us, not the other way around?

It seems to me that if we want this test, we should have it, end of story. Why do they get to refuse us?

JackiePecora
10-10-2002, 03:18 AM
Maybe you could ask your primary care doc for a referral to an infectious disease doctor. Ureaplasma can be found by blood test as well as swab.
Jackie

Mary F.
10-10-2002, 04:49 AM
Hi!
I just got word that my urologist WILL test me for the bacteria (Ureaplasma Urealyticum)tomorrow! I didn't think that he would, since he is very conservative in his thinking. I am very nervous now, though. I want very much to know if I have it, of course, but whenever I take ANY antibiotics, even for a couple of days, I get an almost immediate itching in my vagina. I must be VERY sensitive to antibiotics, and even keep acidophilus in my fridge. Am I setting myself up for the yeast infection from hell? <img src="graemlins/eek.gif" border="0" alt="[eek]" /> I was reading up on one of the doc's lectures yesterday, regarding antibiotic treatments, and he said that some people have to be very careful, because they get hard-to-cure yeast infections. Does anyone have any thoughts on this? I imagine I could ask for Diflucan to go with the treatment, or am I mistaken? If anyone has any thoughts on this, please help! <img src="graemlins/banghead.gif" border="0" alt="[banghead]" />
Thanks in advance...
Mary <img src="graemlins/hi.gif" border="0" alt="[hi]" />

Christa
10-10-2002, 06:57 AM
Hi all-
About the "owee" swab test. I had it exactly today. It cost me 52 Polish zloty about 12 bucks. I also repeated Chlamydia test just to be sure. You know, once I had my pants off... Anyhow, it was a swab of the urinary tract and of course it hurt, but not more than my everyday pain and not more than the one cystoscopy I had live in Germany. Results should be in on Monday. It's always worth a shot.

Now a question- The lab recommended I go to a lab here specializing in tropical diseases. I got sick not long after returning from a long trip to Turkery where I also contracted a bacterial skin infection looking similar to yeast but without any internal itching etc. Any ideas? confused.gif

Christa
10-10-2002, 06:59 AM
That would be Turkey, not Turkery. Sorry.

Fields
10-10-2002, 08:10 AM
LT, Could you please tell me which NIDDK study is now not requiring the cyto/hydrodistention and where you found this NIDDK study on this web site. I would appreciate it so much. I am trying to collect enough credible data to persuade my uro that it is really not necessary for diagnosis.Thank you so very much. Any ideas you have on how I convince my uro, I would appreciate.

JackiePecora
10-10-2002, 12:19 PM
Hi Mary,
I'm on the antibiotics and I'm also on diflucan. I would ask your doctor to put you on so you don't have a yeast problem. I also read that if you take acidophilis... don't take it at the same time as the antibiotic.

Christa... the first question my infectious disease doc asked me was if I ever traveled abroad. He specializes in tropical disease as well. Maybe you should look into that Turkey trip that you took with an infectious/tropical disease doc.

Jackie

JOJO
10-10-2002, 11:01 PM
Unicorn
I tried to send a private message. I was just wondering what is the name of your uro?Could you email me please at Jokule27@aol.com-Thanks-JOJO smile.gif I would appreciate it biggrin.gif

sweetie
10-12-2002, 07:00 AM
What incredibly wonderful news! I hate to ask a dumb question, but I was diagnosed by cystoscopy and the KCL test--if the KCL was positive, is there a chance that the bacteria might still be the culprit? (***keeping fingers crossed***)

Congratulations on your super-duper good fortune--and good health! And thanks so much for sharing this info with us.

lm2
10-12-2002, 11:22 AM
Hi Unicorns, I was wondering if you could send me a private message or email with the name of your doctor? I actually went to the Cleveland Clinic in '99 when I first got sick and am wondering if I saw the same doctor as you. I think he tested me for that but it was via urethral swab and I think it was negative because he wanted to proceed with the next tests for IC. He didn't talk much about the research on this so I wonder if it has come to light more in the time since then. I still wonder if maybe my test was negative because I had just stopped antibiotics and maybe just maybe there is still something there to treat. I wonder if it's hard to isolate though why they don't just treat you empirically. Well I'm wondering now if I should be retested or something...
Thanks

Oceana
10-28-2002, 01:41 PM
I will also see if my Uro will test me on this. I always thought that somehow there is a bacteria that is causing this.
O this is an amazing piece of information. I am from NH & both my Uro & GYN is @ Darthmouth Hitchcock in Lebanon,anyone knows who can perform the test around my area. I will share with you people around the area what hospital or Drs. is accepting this concept. Cleveland is a little of a distant but if it is worthwhile,why not. I would definitely give this a shot.Absolutely.

It's great to know that people are still caring others. You earned my respect.

My gratitude,
Li

Melanie R
10-30-2002, 12:53 PM
Hi there,
This is very encouraging! I know that it is not helpful for everyone who has IC, but it great to always have new information!!!!! I am going to get tested for this smile.gif Thanks so much smile.gif
Melanie R.

Oceana
10-31-2002, 12:40 PM
My Uro won't go for this concept.Any ideas what direction I should take......

Li

leesaw
11-24-2002, 06:04 AM
To: Unicornsintherain

It has been about 1-1/2 months since you posted your message about the Cleveland Clinic and ureaplasma. Are you still without symptoms? Does your IC still seem to be gone? I had my GYN test me for ureaplasma last week. The results haven't come back yet ... I hope to find out tomorrow. But if it is positive, I need to consider whether to do a "second opinion" consultation with Cleveland Clinic (they do that on-line) to check into an antibiotic treatment. I just wanted to know whether you are still doing fine?

Leesaw

lm2
11-25-2002, 08:09 AM
Leesaw I think it's good that you asked to get tested for this - I don't understand why anyone would not be interested in exploring every possible route. When I switchd to my current family doctor 3 months after I got sick in '99, this was the first thing he thought it was (and I had already done online research and was prepared to ask myself). Sadly, it wasn't the answer for me but it has been for other people. It freaks me out how people could waste their whole life being sick with something that was treatable.

rnewman
11-25-2002, 01:35 PM
This new information is sure helpful in ruling out things and hopefully it cures some!!

I am going to be tested too, I hope my insurance will cover.... the only reason I think that it COULD be U.U is because often when I have urine cultures done (and I have dipsticks at home...) it says that there is some bacteria present but not enough to meet UTI criteria or to treat. frown.gif And my bloodwork is sometimes off too...

But I have a lot of pelvic floor problems- sitting here right now I can feel that the muscles on the right must be tighter because my right leg aches a bit...from the top down...almost like sciatic pain.....

I dont see how it could be bacteria with that!! I suppose this disease just really will never make sense! Haha. You think you have an answer.... confused.gif

Rachel

Christa
11-26-2002, 09:08 PM
Hi-

I had my test done in Poland in a private lab and it cost me $12. So I'd think it shouldn't be so expensive. Does anyone know how much it costs in the States?

Chris

JackiePecora
12-02-2002, 06:42 AM
Hi All,
I don't know how Unicornsintherain is doing. She was on doxycycline and did not get better and then went for a hydro.
I also was on doxy and did not get better. My infectious disease doc changed my medicine to azithromycin (zithromax). I take 250 mg once a day. I've been on it for 1 week and am seeing a slow improvement. My husband tested positive to mycoplasma pnemonia and chlamydia pnemonia like me and is on the zithromax as well.
My infectious disease doc spoke at my Palm Harbor Support Group meeting two weeks ago and said that there are a number of bacterial and viral infections that could cause IC symptoms.
I'm 40 yrs old and if you looked at me you'd be shocked that I feel as ill as I do. I have IC, IBS, infertility, chronic fatigue, fibro symptoms, urethral-bladder-vaginal-rectal irritation, etc. etc. etc. I have thought for 2-1/2 years that I had chronic systemic yeast and have been on a yeast free diet for that amount of time and still I have been ill. I have been thru uro's, gyno's, internists, alternative gurus, chinese acupuncturists etc. I finally found a primary care physician who sent me to an infectious disease doctor because he knew that he could not help me and that it wasn't all in my head. How could it be... my husband had a lot of the same symptoms.
I'm writing to you because for the first time in a long time I feel ok. It's been a week on the zithromax and I don't want to jinx it but I feel better.
If anyone would like to personally email me... my email address is jpecorapg@aol.com. I want to tell the whole world about these bacterial infections but I think I'll get better first so I have more ammo. For the first time I really feel that my husband and I are going to get better.
Well wishes to you all,
Jackie

sunbean552003
12-11-2002, 01:27 PM
I have another theory about what started my IC. I have been exposed to many types of insecticide during the years, after having worked in greenhouses, worked in orchards, had bug sprayers around my house, etc. My symptoms started in my forties very suddenly, and it took me three years to get it dianosed. I believe that IC is an autoimmune disease in which the body turns onitself. Possibly, my bladder was damaged because of this. I have also been hit in the cervix with HPV - so perhaps, a certain part of the body is damaged. It is just an idea, that the environment could play a part in this, what with the chemicals I was exposed to. rolleyes.gif

jodee
12-22-2002, 09:58 AM
I will be going back to the Cleveland Clinic for an entire month for pain rehab and treatment with my uro. I pray that my results will be as positive as yours. I will certainly discuss this test with him. Thanks for your post. wow...some hope! jodee

JackiePecora
12-26-2002, 05:11 AM
Hi Jodee,
I don't think unicornsintherain posts here anymore. She uses another IC board but hasn't even posted there in a long time.
Could you please let me know how you are doing with your treatment. My infectious disease doc is treating me for c.pnemonia and mycoplasma pnemonia. I've had to change drugs a few times as the bacteria were not affected by doxy or zithromax. My husband and I are now on cipro. I'm hoping this will do it. If you would like to email me the address is jpecorapg@aol.com.
Thanks and great luck.
Jackie

sanctuary
01-25-2003, 02:22 PM
This is amazing! It could be something..it got my attention. I will look into this first thing monday. Sounds a lot like my early days, but they tested me to death, I recognised I feel better on antibiotics too, but only for a few days. What a great find this article was, thanks for posting it/ glad I came in here tonight , Hugs, Sanctuary

lm2
02-10-2003, 01:57 AM
I've been reading up on this stuff the past few months and it's making me kind of neurotic. How does one catch these bacteria? It sounds like bacteria could turn out to be at the root of lots of medical conditions that we don't currently even think of that way. I asked my doctor and I asked that he not dismiss this right off because I said when you think about it, medical science doesn't really know anything...and he cut me off and said "oh it sucks, it totally sucks". So I'm glad he agreed with me but I'd almost rather he have been able to say something to dismiss these theories. He said he's read the research I was referring to but all he could say was there's nothing we can really do so I should just try not to worry about it. But I am. :(

I am just wondering how concerned I should be about these things. I'm not clear how they are transmitted.

Vampireness
09-19-2007, 08:03 AM
Really old thread but I have a question. Does Mycoplasma and Urea only effect those sexually active?

Jenny76
09-19-2007, 08:29 AM
and just how expensive is this?

Vampireness
09-19-2007, 08:47 AM
Jenny I read all four pages and not one had price though the price was asked repeatedly but I think, there are two websites and maybe you can contact them and ask for the price, since they do provide the test.

http://www.imd-lab.com and http://www.mdlab.com

katjonez
09-25-2007, 07:52 PM
I don't remember ever reading a about a bacteria that seems to be in many (50%) of ICrs
Is there any new research ?? And still no info on what the cost could be. I'm sure it is more than it was in 2002 :smile tee. Sure sounds hopeful :dance:

glassd18
09-27-2007, 04:56 PM
This post seems to have died out. I wonder why. Did anyone being treated find long term success? I would hate to take antibiotics unneccessarily. It is not good for the system, and leads to resistant strains of bacteria.

Vampireness
09-28-2007, 06:08 AM
As long as you get repeatedly get infections, it's best to treat it. I take antibiotics and have been for a year, I'm in a better state than I was. I am also, planning on trying out other things to help kill the bacteria, stuff like Olive Leaf Extract etc

I also take ALOTS of probiotics and am still increasing them, and finding better products to help with yeast (I don't get it all that much but I still do) and boosting the immune system.

I also take Cod Liver Oil, to help with building resistance to infections.

But, to test and know for sure if you have a bacteria, would be best. Long ago, like five years back, my E.Coli strain was resistant to penicillin family but two to three years later, the E.Coli strain was sensitive to it. My doctor gave me the explaination, that different batch have different resistance and bacteria can pass on their resistance to their offspring, or they not have been able to.

My Klebisella strain was sensitive to Cefaclor a year ago, and now it's resistant and I took Cefaclor for several months, maybe....seven months mainly to deal with Group B Strep. I get Klebsiella again, this year and I took Bactrim for it, for three weeks. I have to check if it's still there. To me, what my doctor says, makes sense, that different batch of bacteria have different resistance, though they are the same species.

Vampireness