designermillion
10-02-2007, 05:37 AM
Hi everyone,
I was diagnosed with IC about a month ago. I have been dealing with what I thought was UTI's for the last 10 years, and was misdiagnosed by 8 different healthcare providers. I finally found a Uro-Gynecologist and I'm sure glad I did! I have had much success since I saw him. I was in so much pain the day of my first appointment, that he did an instillation in the office. Unfortunately it just didn't do much for me, so I have opted not to do that again. It only lasted a few hours and I don't want to have to deal with the catheter over and over. It wasn't pleasant. Anyway, he prescribed me Hydroxyzine and Macrodantin while I was there. I take the Hydroxyzine twice a day and the antibiotic once before bedtime. He didn't prescribe me anything for pain, so I contacted him several days later, and he put me on Neurontin 300 mgs 3 times a day. My only complaint is it makes me so drowzy sometimes that I feel like I could just pass out. It makes me feel like I am on drugs! Other than that, I have been pretty much symptom free ever since, so I think I can deal with being sleepy. I have had a couple of days here and there when I felt something, but overall I am doing great. I even forget I have it some days! :woohoo: I guess I would be considered as having mild IC compared to some of you out there, but I would say my pain is at a 10 when I am flaring. It's just miserable. My only concern is that I am 35 and my husband and I were planning to start having children soon. From what I understand, I cannot be on these med's while I am pregnant, so I am so worried about having flares. What can they give you during pregnancy to control the symptoms and pain? I just couldn't live with myself if I knew I took something that would cause my child ay harm. My follow up visit is tomorrow, so I need to talk to my doc about that. Has anyone else had success on Nuerton and Hydroxyzine? Thanks!
I was diagnosed with IC about a month ago. I have been dealing with what I thought was UTI's for the last 10 years, and was misdiagnosed by 8 different healthcare providers. I finally found a Uro-Gynecologist and I'm sure glad I did! I have had much success since I saw him. I was in so much pain the day of my first appointment, that he did an instillation in the office. Unfortunately it just didn't do much for me, so I have opted not to do that again. It only lasted a few hours and I don't want to have to deal with the catheter over and over. It wasn't pleasant. Anyway, he prescribed me Hydroxyzine and Macrodantin while I was there. I take the Hydroxyzine twice a day and the antibiotic once before bedtime. He didn't prescribe me anything for pain, so I contacted him several days later, and he put me on Neurontin 300 mgs 3 times a day. My only complaint is it makes me so drowzy sometimes that I feel like I could just pass out. It makes me feel like I am on drugs! Other than that, I have been pretty much symptom free ever since, so I think I can deal with being sleepy. I have had a couple of days here and there when I felt something, but overall I am doing great. I even forget I have it some days! :woohoo: I guess I would be considered as having mild IC compared to some of you out there, but I would say my pain is at a 10 when I am flaring. It's just miserable. My only concern is that I am 35 and my husband and I were planning to start having children soon. From what I understand, I cannot be on these med's while I am pregnant, so I am so worried about having flares. What can they give you during pregnancy to control the symptoms and pain? I just couldn't live with myself if I knew I took something that would cause my child ay harm. My follow up visit is tomorrow, so I need to talk to my doc about that. Has anyone else had success on Nuerton and Hydroxyzine? Thanks!