Ureaplasma and mycoplasma

[Gspot]

I read a post about a clinic/doctor in Ohio that believes ureaplasma could be causing IC. I am just wondering if anyone has had any success with this method. Also would like to know if any had the "BROTH CULTURE"? Any improvements with treatment after the "broth culture"?

[PlainJane]

I was diagnosed with ureaplasma but unfortunately have not had any relief after months and months of treatment. I also did a broth culture that detected klebsiella and enterococcus but didn't have any relief after months and months of treatment. Then I was diagnosed with Lyme disease and co-infections but also haven't had any relief after months and months of treatment.

But there are people who do get relief with ureaplasma treatment. You might get some feedback in the antibiotics section.

~plainjane

[dawn217]

Especially with urethral symptoms, I believe that ureaplasma may play a role. United Lab in VA will culture for it.

[OrlandoP]

I read a post about a clinic/doctor in Ohio that believes ureaplasma could be causing IC. I am just wondering if anyone has had any success with this method. Also would like to know if any had the "BROTH CULTURE"? Any improvements with treatment after the "broth culture"?

Just thought it's important to note that I did the broth culture with United Labs in VA many years ago. It came up totally clean. I still have IC. I don't think the mycoplasma theory is definitive. But IC is different for different people, it tends to be a catch-all diagnosis for a lot of pelvic pain syndromes that range from nerve damage to Hunners ulcers. These two things are as different as MS and neuralgia.

[jen74]

I was tested for ureaplasma and micoplasma and it came back negeative. I do not think it is a broth culture though. I know they did mine usine a agar plate ( what ever that is),only they let the culture grow for 18 days or so.
Jen

[OrlandoP]

I was tested for ureaplasma and micoplasma and it came back negeative. I do not think it is a broth culture though. I know they did mine usine a agar plate ( what ever that is),only they let the culture grow for 18 days or so.
Jen


Another interesting aside: both of these bacteria are considered "normal" in the US and are part of healthy urinary, digestive, and vaginal tracts. In Europe, they seem much more concerned about them: I tested positive vaginally for both in Europe. When I came back to the states, both my GP and ObGyn thought nothing of it, and didn't suggest treatment. Complicated.

[jen74]

Also, we have to remember, Europe is supposedly way more advanced than we are, and also more open to research when it comes to certain things. I was taking a medication for my motility issues of the stomach a while back, and it was not FDA approved, but was available in Europe over the counter like tums are. Our FDA said that the medication was not safe( domperidone), but in all reality, it is that the FDA did not want to approve a med that was inexpensive and one that worked better than the one they offer here( reglan) which is a God awful drug, it has some of the worst side effects, it can even cause parkinson's disease. It is sad, but the FDA is only interested in the $$$$ they can make, that is all.
Hopefully one day things will change and get better over here as far as health care goes.
Jen

[OrlandoP]

Also, we have to remember, Europe is supposedly way more advanced than we are, and also more open to research when it comes to certain things. I was taking a medication for my motility issues of the stomach a while back, and it was not FDA approved, but was available in Europe over the counter like tums are. Our FDA said that the medication was not safe( domperidone), but in all reality, it is that the FDA did not want to approve a med that was inexpensive and one that worked better than the one they offer here( reglan) which is a God awful drug, it has some of the worst side effects, it can even cause parkinson's disease. It is sad, but the FDA is only interested in the $$$$ they can make, that is all.
Hopefully one day things will change and get better over here as far as health care goes.
Jen

Interestingly enough, this was in Eastern Europe--definitely NOT more medically advanced, but less capitalistic! Your description of the domperidone makes me furious!! But in the case of mycoplasma, it would be in the interest of the US med establishment to peddle more antibiotics, no?

[mich2604]

Generally speaking there isnt much money in antibiotics. This is one reason why new antibiotics are not being developed. The money is in the other treatments and medications. Treat the symptoms not the cause.

IVe already found the labs to be inaccurate for yeast cultures, so Im sure it goes for other testing as well. There is no way a test can have 100% accuracy.

I do feel that for some reason so of us have an overgrowth of what some labs concider 'normal flora' and it is causing our symptoms.