Gisèle
09-07-2007, 11:45 AM
Hello everyone!
I can't believe I found this site with others who are like me.
Well, I would love to share this story with you(since you are the only ones who would really understand), and would love some advice.
I am going to start from the very beginning, so please bear with me.
About five years ago, I had symptoms of a UTI, all the symptoms, I also had an AWFUL pain in my lower back and abdomen. This was like screaming pain. I went to countless doctors, about 6 emergency rooms, and two specialty hosptials in Chicago, none of which could find anything or give me a diagnosis for this awful pain. The only thing that showed up was an abnormal urinalysis(nitrites and red blood cells.) I went from antibiotic to antibiotic and nothing helped. I then went to a urologist, who is my current one, and he was the only understanding doctor throughout this whole ordeal. I was getting better when I first saw him, and although he said he wanted to do a cysto, he said since I am getting better what's the point. He was the only doctor to recommend this, and pretty much the only doctor who didn't say "it's all in your mind" and to not refer me to a psychologist. My mother at one urologist mentioned if I could have IC, and he said no, there are no juvenile cases of it(I was under 18 at the time.) So, I gradually got better on my own.
Fast forward to today. About a month ago, I began to have UTI symptoms, the burning, frequency, etc. I figured it's nothing to think about, so I ignored it. About two weeks ago, along with the UTI symptoms, I began to have these AWFUL pains in my back by my kidneys. This went on for about two days until the pain seemed to move down to my lower back and abdomen. I have had mild diahhera on and off, and loss of appetite, and constant nausea. The only way I would describe this pain is bad menstrual cramps(not near that time of the month.) I went to my family doctor, and she did a blood test, which came back normal. She also did a urinalysis which came back normal(pretty much water coming out of me), but told me to come in with a sample in the morning. This sample showed nitrites, WBCs, gluclose, and protein, so she sent it off for a culture, which came back normal. I got a CT scan, which showed slight bladder wall thickening, and possible cystitis. There were no kidney/bladder stones, no kidney infection, just that. So, my family doctor told me to go to my urologist(the same one who I had last time.) But, of course, this family doctor mentioned it could be "all in my mind." So at my urologist, I told him my story, and he looked at the lab results, and concluded to swith my antibiotic(from Macrobid to Levaquin, and from Pyridium to Urelle.) He said he also wants to do a cysto next week, but if this antibiotic works, then we will do it at a later date(it's not working.) So, here I am with this pain(Vicodin doesn't even really get rid of it), and awaiting a cysto for next week. My mom's friend has the exact same symptoms as me, and she has IC, so I did some research on it, and found it a possibility. I found this site, and was amazed at the information I discovered. So, does this sound like IC, is it anything similar to what you experienced? Please don't tell me it's all in my mind, I know it's not. Thank you so much for reading!
Also, could you tell me what I am in for with this cysto(I am opting for general anesthia.)
I can't believe I found this site with others who are like me.
Well, I would love to share this story with you(since you are the only ones who would really understand), and would love some advice.
I am going to start from the very beginning, so please bear with me.
About five years ago, I had symptoms of a UTI, all the symptoms, I also had an AWFUL pain in my lower back and abdomen. This was like screaming pain. I went to countless doctors, about 6 emergency rooms, and two specialty hosptials in Chicago, none of which could find anything or give me a diagnosis for this awful pain. The only thing that showed up was an abnormal urinalysis(nitrites and red blood cells.) I went from antibiotic to antibiotic and nothing helped. I then went to a urologist, who is my current one, and he was the only understanding doctor throughout this whole ordeal. I was getting better when I first saw him, and although he said he wanted to do a cysto, he said since I am getting better what's the point. He was the only doctor to recommend this, and pretty much the only doctor who didn't say "it's all in your mind" and to not refer me to a psychologist. My mother at one urologist mentioned if I could have IC, and he said no, there are no juvenile cases of it(I was under 18 at the time.) So, I gradually got better on my own.
Fast forward to today. About a month ago, I began to have UTI symptoms, the burning, frequency, etc. I figured it's nothing to think about, so I ignored it. About two weeks ago, along with the UTI symptoms, I began to have these AWFUL pains in my back by my kidneys. This went on for about two days until the pain seemed to move down to my lower back and abdomen. I have had mild diahhera on and off, and loss of appetite, and constant nausea. The only way I would describe this pain is bad menstrual cramps(not near that time of the month.) I went to my family doctor, and she did a blood test, which came back normal. She also did a urinalysis which came back normal(pretty much water coming out of me), but told me to come in with a sample in the morning. This sample showed nitrites, WBCs, gluclose, and protein, so she sent it off for a culture, which came back normal. I got a CT scan, which showed slight bladder wall thickening, and possible cystitis. There were no kidney/bladder stones, no kidney infection, just that. So, my family doctor told me to go to my urologist(the same one who I had last time.) But, of course, this family doctor mentioned it could be "all in my mind." So at my urologist, I told him my story, and he looked at the lab results, and concluded to swith my antibiotic(from Macrobid to Levaquin, and from Pyridium to Urelle.) He said he also wants to do a cysto next week, but if this antibiotic works, then we will do it at a later date(it's not working.) So, here I am with this pain(Vicodin doesn't even really get rid of it), and awaiting a cysto for next week. My mom's friend has the exact same symptoms as me, and she has IC, so I did some research on it, and found it a possibility. I found this site, and was amazed at the information I discovered. So, does this sound like IC, is it anything similar to what you experienced? Please don't tell me it's all in my mind, I know it's not. Thank you so much for reading!
Also, could you tell me what I am in for with this cysto(I am opting for general anesthia.)