Having problem after bladder instills...

[karenapp]

Hey all! Got a question for you guys. I'm still new to IC (just diagnosed 2 wks ago) and have thus far been through 3 bladder rescue treatments. I am having trouble peeing after these treatments. After the first treatment it took 1 1/2 hrs before I could go, after the second it took 2 1/2 hrs, and after my third tx yesterday I couldn't go for over 5 hours though my bladder was VERY full. It really scared me. I've tried drinking lots of water afterwards but it doesn't seem to move things along. I think it's just that my urethra gets so irritated from the catheter that's why I can't go but I'm not sure what to do about it. Any advice would be welcome, so chime in everyone!
:confused: :loco: :angel: :help: :help: :) :hi: :pray: :elvis:

[ICNDonna]

What are they using in the instillation? You might talk with your doctor about limiting fluid intake for a few hours before the instillation and waiting until you urinate before drinking lots of water. It's definitely something to ask your doctor about.

Donna

[Flosser]

I had my 3rd Tx yesterday. I was told to not empty my bladder for 4 Hr. I feel a little better today. I have started the baking soda aldo half tea spoon. It seems to help.I am also new to this. I just feel like little people are jummpin on my blader. I know the have a dite at this home page. :smile tee :smile tee

[ABliske]

I hurt from the catheter too. I eventually stopped getting installs (after 16 weeks), but some people swear by them. I wish they didn't hurt so much afterwards. The relief was good for me for a few hours.
I hope that you find relief. You should try the diet for sure. It has helped to eliminate coffee, tomato, and soda from my diet. Something told me before that I shouldn't be drinking the coffee, but I never would have clued into the tomato. There are many other things I avoid but I can't be sure they are bad in small quantities.

[karenapp]

They're using lidocaine, sodium bicarb, and heparin in the instillation. They told me not to urinate for at least 30 minutes, and that the longer I can hold it in my bladder the more beneficial. I tried limiting the fluids the first time, but they want a urine sample before they do the treatment each time to make sure I don't have an infection first so I drank more water yesterday so I'd be sure to have a sample for them. They do drain my bladder completely before instilling the meds, so I do have an empty bladder for the instill but it worries me that 5 hrs later I can't go.
What is the baking soda trick that Flosser mentioned?
I've been doing the diet ever since my diagnosis and it's helped a lot. I'm finally getting rid of the caffiene headaches I think so I'll be good to go once those stop completely.

[Page Wigren]

what kind of PT are you going to have? biofeedback? this is yucky! thanks Page

[Page Wigren]

how about biofeedback?:help: Page

[Page Wigren]

what is a bladder instillation and what is ? Steroids? Page

[SandyRN]

My guess would be the lidocaine is numbing the urethra so much that you cant go. I use lidocaine in my rescue instills too and sometimes I can't go either. I have learned to use pyridium first, then use the instills and somehow the pyridium helps me to go...don't know why, but I am usually able to go. If you are still unable to go, sit in a tub of warm running water and go in the tub if you can...it sounds gross, but if you gotta go and it's an emergency, do it. Or change positions on the toilet, run your hand under warm running water. You can get a squirt bottle and fill it with warm water and wash your urethra with it til you feel the urge to go. But the best way to go is the bathtub....sitting in the warm water always makes me go, numb or not.

[karenapp]

I went in to my uro's office and had another treatment today, will try the tub thing if I have trouble today. Will keep ya posted.

I'm going to be getting w/ my insurance to see if they cover the meds for the install treatments soon - was just wondering if you guys had trouble getting coverage, if so what insurance it was with, etc. I have UHC, am hoping they'll be nice and cover this so I can do these at home after next week.

[bbtex]

I tried the bladder treatments once a week for 6 weeks. They never really helped any of my symptoms. But, that is not to say that they won't help anyone else. The nurse advised me to try to hold "it" for as long as I could usually about 2 hours was my maximum. I also asked her to use a smaller catheter. The first time I received a treatment I was in bed all weekend from the catheter irritating my urethra ( I couln't even walk for a few days). After another round of 4 bladder treatments I called it quits. I am now going to a great Physical Therapist. We work on biofeedback and external pelvic massage also stress relief. My uroligist referred me to her. The best thing is that my insurance pays for it. I have gone twice a week for 4 weeks now. I am hoping to get the insurance approved to continue my therapy. I hope the treatments work for you.

[Claredale]

I am one of those that the caths irritate me too. I went through several treatments and got worse each time. My urethra is just way too sensitive. I was like bbtex and ended up in bed for days.

I hope the other postings hints work for you and you can continue with the instills. Every once in a while I think I might try it again, but I remember the pain. Everyone is different and none of us react the same to the treatments.

I highly recommend the hot bath and the squirting water. I dealt with retention due to a flare most of the week and that is what worked for me. I probably took about 4 baths every night.

Best of luck to you!

Tracey

[Flosser]

Hot baths have worked for me.. I recieved the book confident choices,bodie heat packs and :smile tee Prefief:smile tee I had a toastada with beans and white cheese...Tasted so good. The book is great. got a cook book to. If this is what normal feels like or some what bring it on...We will see tommorw how I feel.... stillhave the bodie heat pack on