Urethral instill?

[Charisse]

I was reading Dr. Moldwin's book last night and noticed he talks about having used urethral instillations for people who have a lot of inflammation in the urethra (which is me). He said he takes a tiny catether and uses a steroid, lidocaine and antibiotic mixture and injects it through the urethra. I am going to ask my dr about this but just wondering if anyone else has heard of this or if it's outdated? And do you know what kind of steroid he would use? My dr agrees that the bladder instills may not have helped me because most of my inflammation is in the urethra and the liquid doesn't come into much contact with the urethra except when you pee it out.

[SandyRN]

I would imagine that is the same thing as a bladder instill because what goes IN the bladder has to come out through the urethra. I know some people have had Kenalog instills while others have had solu-medrol instills. I'm sure there are others but those are the two I can think of off the top of my head. I've had a lot of success with the heparin, sodium bicarb, lidocaine mixture I use mostly as a rescue solution. This flare I've been in for about a week now has been terrible and they've really helped keep me from going totally insane from the pain.

I don't really know how he would do JUST a urethral instill because I can't figure out a way to stop it from flowing back out after you pull the catheter out. You can't use a blocking device like a balloon that is used in a foley cath because it can cause damage to the urethra. Did he explain that part to you?

[Charisse]

Sandy I haven't asked my dr about it yet but I will. His whole point was that whatever medication you are instilling, it really doesn't come into contact with the urethra except when you are peeing it out. Does that make sense? Thanks for the information on the different medications. I have never heard of Kenalog or Solu-Medrol. Are these steroids? I've had two Heparin instills before and neither worked for me. Dr. Moldwin's book talks about how this instill with a tiny catheter specifically targets the urethra but he didn't say "how" he does it. If there is a protocol I can pass on to my dr, I'd love to know about it.

[L. Thomas]

I would have trouble stopping before getting into the bladder. I guess you won't be able to do home instills.

[ICNDonna]

I have had my urethra medicated before. What the nurse did was to insert the catheter to be sure it was empty, then while she was taking it out, she put medication in the catheter. They can also use a syringe at the opening of the urethra.

I have had SoluCortef instilled and it felt soothing.

Donna

[Charisse]

Thank you Donna. Is Solucortef a steroid? I am just wondering does the medication just run right back out of your urethra?

[ICNDonna]

SoluCortef is a steroid. And the stuff they put in my urethra was much thicker. It did kind of ooze out, but not like liquid would.

Donna

[icbop]

I am interested in this too--even brought my book to the Dr--but he said he thought rescue instills would help the urethra too (so far, no luck).

I wonder if Dr. Modwin would mind entertaining calls from our phyicians or from us? I have thought of calling him aboout this, but then I thought he probably did not want to hear from every patient in the U.S.!

Thanks

[newbyIC]

Hello everyone!:hi:
This Friday I was diagnosed with IC and I was shocked...to say the least. I am an LVN graduating with my RN in Dec. and the last thing needed. But, at least it explains what my body has been feeling. That day my GYN did the Heparin/bicarb/lidocaine instillation, I don't what it was suppose to do, but I really didn't see any difference. I havent' had a chance to read much on the subject so I feel ill prepared for what I am experiencing. I am in good health overall. Had a Hysterectomy(uterus only)due to endometriosis back in 2004. He told me there was a connection, that both were considered an autoimmune disease. So here I am looking for support, information, whatever, as I am still in shock. :grouphug: I'm schedule to have instillations twice weekly for the next six weeks...looking forward to that! (not)

[purpleviolet]

Hi _ I got so sore, especially in urethra had to stop for a week. Then I had several attempts where nothing went in due to spasms or equipment failure ( I boiled a syringe and it touched the side of a hot pan and so it had a hole I didn't know about until all meds ran out during instill - the uro gave me a cath to try that didn't fit any of the plastic syringes and I didn't realize that until I had the cath in - I tried some one time use very slippery caths twice and my body pushed them out without me knowing so the meds just ran out on the floor, etc. Totally frustrated and sore. Oh, well. What's new? How ya all doing instillers? PV

[Charisse]

I was wondering the same thing about having my dr call Dr. Moldwin to see what the protocol is. I am wondering if Dr. Moldwin plans to write an update to his book? I think the most recent copy was published in '99 or 2000? Seems like there may be some updated treatment by now.