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View Full Version : In remisson for over a year now!


jen48446
08-11-2007, 07:30 AM
I wanted to post with an update, it's now been over a year since I found the right birth control pill for me & I am loving it:smile tee It was a very long journey to get to this point however I'm glad I'm finally here!! I encourage everyone to educate yourselves as much as you can, I spent a year & half reading every book I could get my hands on & using my own instincts. I've been through 3 fertility specialists that kept telling me my hormones were fine & that I was depressed which couldn't have been farther from the truth. NONE of them were willing to test the Estrogen & Progesterone either.

I had alcohol (wine coolers) for the 1st time in April 2007, I was nervous since I hadn't had anything in probably 6 years or so. I was very happily surprised when I didn't react in any way when I drank it!

Anyway you can PM me for my IC story that I have in MS Word. You will need to give me your e-mail address as I no longer put it in my signature line due to too much spam:cussing:

THERE IS HOPE!!!

I will help anyone in any way that I can:angel: :cat:

sandy199
08-11-2007, 11:51 AM
please email me at
sandy199@aol.com

Thanks so much!!!

I am 30 years old and am only FMLA from my teaching Job because of IC.

I really need help!!!

I can't take the bladder instills and I can barely take one Elmiron pill a day.

I have been diagnosed with Moderate IC. Please help me!

I reall want my life back!

vgoux
08-11-2007, 12:14 PM
hello Jen,,

I find myself in intense pain as I type this, and yet I'm a little woozy from the Marcaine in my last instillation.

My email addy is vgoux@yahoo.com.

Thanks for being willing to help.

Vicki

Smokey
08-11-2007, 08:48 PM
Hi Jen,

Please send me your story at loridi@optusnet.com.au


Thank you

Lorena

sweetness7104
09-07-2007, 11:46 AM
Hi Jen,

Please send me your story. My email is sweetness7104@yahoo.com. Thanks!

Jessica

Jenny76
09-08-2007, 05:47 AM
Hi Jen,

I am about to lose my job because of IC. PLEASE HELP! My e-mail is jjnavara@hotmail.com

hdb1982
09-08-2007, 06:40 AM
I would love to read your story. My email address is hdb1982@yahoo.com. Thank you for your kindness in sharing your story with us.

marycat2007
09-09-2007, 06:54 PM
Please send my your story. I have very severe IC. I urinate 70x/day and constant bladder pain. I've tried everything. Thus far prayers, physical therapy,and moderate excercise have helped. Just started with lupron injections last month and seems to be reducing my endometriosis and accompanying pelvic pain.
Thank you
Mary K
hailmfull@yahoo.com

Zygala87
09-10-2007, 01:46 AM
I also would love to have your story on your trip through IC. nanaone@adelphia.net Ziggy

ICNDonna
09-10-2007, 02:11 AM
I'd love to read your story.

Donna

donna@ic-network.com

laker46580
09-10-2007, 06:49 AM
Please include me when you get time. It's always great to hear other stories. It helps us when we feel all alone in a world that does not understand.

mom_in_ma
09-10-2007, 10:41 AM
Ok folks, I got the story and it does give some good hints (I especially appreciated the site about hormone testing), but beware that it also has a bit of a sales pitch feel to it for Shaklee products and such. No offense to Jen. I appreciate her sharing her story.

OrlandoP
09-10-2007, 11:32 AM
Ok folks, I got the story and it does give some good hints (I especially appreciated the site about hormone testing), but beware that it also has a bit of a sales pitch feel to it for Shaklee products and such. No offense to Jen. I appreciate her sharing her story.

Agreed. I tried the Shaklee GLA product. It's mostly just borage oil, which is considered less easily assimilated by the body than Primrose oil, for instance.

I was, however, glad to hear about hormone testing, something I will pursue!

Motherof2
09-10-2007, 02:44 PM
I would also love to hear your story. My email is rayers98@yahoo.com
THANKS

Chatypaty
09-15-2007, 02:18 PM
I too would love to hear from you Jen.. please email me your story when you have time .. at Chttyptty02@aol.com

mherrerias
09-22-2007, 02:07 PM
I would love to hear your story. Please email me maiteherrerias@yahoo.com
I have been diagnosed for 1 1/2 years and been severe for 8 months, having to stop work last week. I have been on Elmiron for 5 1/2 months with minimal response.

ejovan
10-08-2007, 04:44 PM
please send me your story at ejovan@hotmail.com. i would be so blessed to read it. many thanks

tlavarro
11-06-2007, 09:21 AM
Please send me your story at tlavarro@smartcity.net. Good luck to you and so glad to hear you are feeling good.:)

ejovan
11-14-2007, 08:59 AM
oh my god jen, i looked at this a while ago and i did not give you my email address. i would so blessed to read your story please, my email is ejovan@hotmail.com thank you so much for your time and generosity. ejovan

zipp8515
11-15-2007, 04:18 PM
Hi Jen,

I have too much estrogen (have uterine hyplerplaisia) and noticed your note said that you were tested for hormone levels of progesterone and estrogen.
Is this what was caused your ic? Were they out of balance or did you have too much? And did taking birth control pills control it?

Appreciated your reply...

Kathleen Zipp
zipp8515@hotmail.com

Chatypaty
11-16-2007, 03:03 AM
thanks for your message of hope for all of us .. could you please email me with your story... I would appreciate it so very much .. my email address is Chttyptty02@aol.com

glassd18
11-17-2007, 05:51 AM
Why not share your story in the share your story thread. We all would love to hear it, and it would be easier than having to send it to everyone separately. Thanks!!

sarahm
12-14-2007, 02:42 AM
I would also really like to hear the story please- sarah_muncey@yahoo.co.uk.

I think hormones are very involved in my case so would be interested to hear how the contraceptive pill helped you.

Many thanks,

Sarah

painfree4me
12-30-2007, 02:03 AM
Hi there, I have been doing well for a few years, but I do still have flares on occasion. I'd love to hear your story. jeannalich@sbcglobal.net

Anjita
12-31-2007, 11:45 AM
please send me your story as well: anjausa2000@gmx.de

Thanks
I am very happy for you and wish you all the best
anja