OwfreakinOW
07-13-2007, 10:27 AM
Sorry if this is all too much information, but really, isn't IC and vulvodynia too much information in and of themselves?
The constant pain and suffering began back in July 1998 when I was 27 y/o...
Let's just say that this one particular guy got a little too close, like they do, although, I wouldn't say he took my virginity... (The gyno did that later - the specula, or whatever it's called, was too big and made me bleed.) During the "encounter," I pushed the guy (who was trying to, ummm, push it too far) away, b/c something inside my pelvic/abdomen area felt a brief sharp pain, which brought me to my senses enough to know I didn't really want what was going on. (And he knew the whole time he made moves on me that I didn't want it, b/c we talked about it many times, and he knew I wanted to stay a virgin until I was married. He wore me down though. I'm not frigid.) Anyway, the sharp pain was only for a moment. However, within a few days of the cursed "encounter," I experienced a pelvic/bladder pain that would not be denied. Quick run down to the student health center (yeah, I was in school at the time) revealed/suggested "Honeymoon Cystitis"... without the honeymoon, of course. :mad:
So right when I started going thru all this pain, guess what happened? He decided then would be a good time to tell me he had no interest in marrying me. And you know what? I was relieved. ;)
Anyway, I survived the guilt, but even to this day feel like maybe I got what I deserved. Being brought up in a Baptist church w/ that all consuming fear of BURNING hell and all, it isn't any wonder, I guess. "I may be done w/ my sin, but my sin ain't done w/ me!"
Well. Maybe I should've just acted like a cold, disinterested snob, maybe it's all my fault for being true to myself and allowing things to go as far as they did...
So I can't feel too racked w/ guilt over the whole incident.
I remember telling this guy about my agony w/ the pain and the docs at that time. "Does it burn real bad in the mornings?" he asked me. Surprised, I replied, "Yes it does!!!" (It did back then - now it just burns all the time.) He'd had prostate infections which were somehow related to his testicular cancer. But it was so odd that he seemed to know just what I was experiencing at the time... :hmm: hmmm...
OK, so I've gone to many docs over the course of the last 9 years, finally got a dx of vulvodynia, but also have the sx of IC. So here goes the litany of symptoms I experience: Constant bladder/pelvic pressure, stabbing/burning pain when I pee, no sign of STD, could pee 40 times a day if I would allow myself... every ripping, burning drop making my "condition" worse and more painful... sitting SUCKS big time, it's the worst, back hurts too, clitoris hurts quite often, UTI meds don't really work, cranberry juice only made things worse, vaginal meds were gawd-awful (metrogel being the worst -I actually had SPASMS in my THIGHS when I was pursuaded to use it the second and last time!!! :mad:), med for vulvodynia makes orgasms pointless (yawn), frustration at not knowing the cause, loss of money over doc. bills, no desire to work (sitting again - agony)... the very thing I went to school for, I can't do b/c it involves 8 hours of sitting a day. Oh, the irony...
I had a thyroid nodule removed before all this back in the mid 90's. I've noticed that ppl here seemed to have some kind of thyroid issue. Docs also thot maybe I had Hashimoto's, but it's not proven.
Constipation is a constant, and I took ballet from the time I was 3 until I was 13, then from 18 - 20 y/o. I was very flexible, able to touch my foot to my head (and I still could, if I weren't so worried about suggestions not to do major excercise from various resources on the net).
Oddly enough, coffee makes the pain more bearable (the caffeine?); Sodas make the pain way worse; I do better over the long term when I don't let myself pee every time I need to; Calcium Citrate seemed to help a little but heartburn from the supplement wasn't worth it for me; the low oxalate diet was too restrictive and I gained 10 pounds on it; walking and standing feel way better than sitting or lying down; when I wake up in the morning, for a brief few minutes, my abdomen is really tight and tense, but there's no pain until I move or get up or start thinking about things - I wouldn't say it feels healthy in those brief moments though, but the pain doesn't seem to be there until I'm really conscious; sex is only painful w/ penetration but the rest of it totally reduces the pain... until afterwards, later (gasp, paaaaybaaaack!).
Overall, my pain has been unrelenting, without remission.
Can anyone related to my story? Thyroid issue, pain sitting, constipation, onset w/ "encounter" (or "MISTAKE"!!!! ...yeah, I'm bitter. :rant:), suspicion that it may be a lurking bacteria or kinda conversely, was an evil pharmaceutical/chemical reaction that's the root cause... suspicion that it could've been that physical trauma... among other things?
I KNOW it's not in my head. But it's just odd that I've read some of your posts and it seems like the very same sx and other conditions I've had.
I also just have this strange, gut feeling (no pun intended) that the cause must've been something quite simple... that could've been fixed by now w/ something equally simple.
Didn't mean for this to sound so aggro. :( It's just that 9 years of this crap is starting to really get to me. ;)
The constant pain and suffering began back in July 1998 when I was 27 y/o...
Let's just say that this one particular guy got a little too close, like they do, although, I wouldn't say he took my virginity... (The gyno did that later - the specula, or whatever it's called, was too big and made me bleed.) During the "encounter," I pushed the guy (who was trying to, ummm, push it too far) away, b/c something inside my pelvic/abdomen area felt a brief sharp pain, which brought me to my senses enough to know I didn't really want what was going on. (And he knew the whole time he made moves on me that I didn't want it, b/c we talked about it many times, and he knew I wanted to stay a virgin until I was married. He wore me down though. I'm not frigid.) Anyway, the sharp pain was only for a moment. However, within a few days of the cursed "encounter," I experienced a pelvic/bladder pain that would not be denied. Quick run down to the student health center (yeah, I was in school at the time) revealed/suggested "Honeymoon Cystitis"... without the honeymoon, of course. :mad:
So right when I started going thru all this pain, guess what happened? He decided then would be a good time to tell me he had no interest in marrying me. And you know what? I was relieved. ;)
Anyway, I survived the guilt, but even to this day feel like maybe I got what I deserved. Being brought up in a Baptist church w/ that all consuming fear of BURNING hell and all, it isn't any wonder, I guess. "I may be done w/ my sin, but my sin ain't done w/ me!"
Well. Maybe I should've just acted like a cold, disinterested snob, maybe it's all my fault for being true to myself and allowing things to go as far as they did...
So I can't feel too racked w/ guilt over the whole incident.
I remember telling this guy about my agony w/ the pain and the docs at that time. "Does it burn real bad in the mornings?" he asked me. Surprised, I replied, "Yes it does!!!" (It did back then - now it just burns all the time.) He'd had prostate infections which were somehow related to his testicular cancer. But it was so odd that he seemed to know just what I was experiencing at the time... :hmm: hmmm...
OK, so I've gone to many docs over the course of the last 9 years, finally got a dx of vulvodynia, but also have the sx of IC. So here goes the litany of symptoms I experience: Constant bladder/pelvic pressure, stabbing/burning pain when I pee, no sign of STD, could pee 40 times a day if I would allow myself... every ripping, burning drop making my "condition" worse and more painful... sitting SUCKS big time, it's the worst, back hurts too, clitoris hurts quite often, UTI meds don't really work, cranberry juice only made things worse, vaginal meds were gawd-awful (metrogel being the worst -I actually had SPASMS in my THIGHS when I was pursuaded to use it the second and last time!!! :mad:), med for vulvodynia makes orgasms pointless (yawn), frustration at not knowing the cause, loss of money over doc. bills, no desire to work (sitting again - agony)... the very thing I went to school for, I can't do b/c it involves 8 hours of sitting a day. Oh, the irony...
I had a thyroid nodule removed before all this back in the mid 90's. I've noticed that ppl here seemed to have some kind of thyroid issue. Docs also thot maybe I had Hashimoto's, but it's not proven.
Constipation is a constant, and I took ballet from the time I was 3 until I was 13, then from 18 - 20 y/o. I was very flexible, able to touch my foot to my head (and I still could, if I weren't so worried about suggestions not to do major excercise from various resources on the net).
Oddly enough, coffee makes the pain more bearable (the caffeine?); Sodas make the pain way worse; I do better over the long term when I don't let myself pee every time I need to; Calcium Citrate seemed to help a little but heartburn from the supplement wasn't worth it for me; the low oxalate diet was too restrictive and I gained 10 pounds on it; walking and standing feel way better than sitting or lying down; when I wake up in the morning, for a brief few minutes, my abdomen is really tight and tense, but there's no pain until I move or get up or start thinking about things - I wouldn't say it feels healthy in those brief moments though, but the pain doesn't seem to be there until I'm really conscious; sex is only painful w/ penetration but the rest of it totally reduces the pain... until afterwards, later (gasp, paaaaybaaaack!).
Overall, my pain has been unrelenting, without remission.
Can anyone related to my story? Thyroid issue, pain sitting, constipation, onset w/ "encounter" (or "MISTAKE"!!!! ...yeah, I'm bitter. :rant:), suspicion that it may be a lurking bacteria or kinda conversely, was an evil pharmaceutical/chemical reaction that's the root cause... suspicion that it could've been that physical trauma... among other things?
I KNOW it's not in my head. But it's just odd that I've read some of your posts and it seems like the very same sx and other conditions I've had.
I also just have this strange, gut feeling (no pun intended) that the cause must've been something quite simple... that could've been fixed by now w/ something equally simple.
Didn't mean for this to sound so aggro. :( It's just that 9 years of this crap is starting to really get to me. ;)