Night sweats anyone???

[ICBurnz]

Hello everyone :hi: Though I've visited here several times, this is my first post. I have a question:

I've had IC most of my life, more (extremely) severe for about 7 years now. For the last 5 years (and worsening each year) have experienced severe night sweats. The last year my "night" sweats have gotten to be pretty much all throughout the day too. The worse my pain is, the worse the sweats.

Has anyone else experienced this?

If so, do you know what might cause it?

Thank you, ICBurnz

[tigger_gal]

:hi: :welcome: to the boards. I have night sweats, and hot flashes. I contribute that to the hysterectomy I had in 2005. You may be going thru menopause. If this is new to you, it might be a good idea to call and get an appointment to see your doctor.

[leelee88]

:welcome: I agree with Tig.. Sounds like something is going on with your hormones..

Ronda

[SharonA]

:welcome: Burnz ...Okay, here's another vote for hormones. Just in case, please check with a doctor so see if this is the case or if it is something else. I don't have problems with flares causing sweats, but that does not mean that is the case for you.

[mimimama]

I am also experiencing hot flashes. i think it's the Elmiron but who knows? my uroGyn doesn't seem concerned.:confused:

[jenleigh]

I've had night sweats for 13 years. Started with effexor. Have them with every ssri. Also much worse on Yaz and Yasmin. Dr. refuses hormone test. I don't know if the Elmiron is causing them for me also. So maybe it is the IC. Not sure.

[sami4]

A simple estradiol and FSH test will tell you if its your hormones. This would be standard procedure for night sweat complaints to rule out hormonal problems regardless of your age.
If you have a Doc who refuses to do this simple inexpensive test for you, then he probably is working for a group or HMO that get paid on how much money they save, not always what is best for the patient.
My personal feeling is that you should find another doctor, one who will practice minimal routine, sensible care to find out why you are having night sweats? If you live in certain states, like here in AZ you can order your own tests for about 30.00. You can also order them yourself from labs in states that allow this. This is not illegal or unusual in many of the states, but you do have to pay for them and insurance will not.
Sammi

[mary124]

I have night sweats, but I contribute them to the hyster. that I had in 2000. I am taking Effexor for it, which isn't doing too much for me. Going for my yearly checkup next week, will talk to the doctor about it at this time.

[jezebel]

my night sweats are from Celexa

[ABliske]

I get it too and I take Effexor. ...Wondering if that has anything to do with it. I think I sweat more though when I'm in a lot of pain, so that might be what the root of it is.

[CST]

I agree about getting a basic FSH hormone test. If it's not hormonal related, it might be related to a drug you're taking. Also, test your thyroid function. I have Grave's disease (hyperthyroid) and that can cause sweating and a feeling of overheating of the body. Or (just reaching here), maybe it's connected to your central nervous system in some way. It seems your sweats happen when you are in pain. Maybe your nervous system is very sensitive to pain and stimulates your brain in some way. Perhaps a neurologist could look into that. Just some thoughts.......

[ICBurnz]

I am just now able to get back here and check replies today and am happily surprised to see how many replies there are. I feel so very "supported"!

I probably should've mentioned I had a total hyst./bi-lat ooph in '01. Have never been able to take HRT or even natural replacements (except for progesterone cream) due to severe from of Endometriosis.

From that, I suffered horrible sweats and other symptoms suddenly and severe. But it "leveled out" within 2 years. But since that time, the progesterone cream helps all other symptoms. It's just the profuse sweating, which seems in direct relation to my pain levels. Hmmm? :confused:

I did see my GYN about 6 mos. ago. Tests were done and of course it shows all my hormones are what they "should be" (nil) given my history. Dr. said this does not explain my problem, especially having gotten worse after all these years.

I have just read these replies quickly. Most of them are about the hormones. (So sorry, I forgot to explain) One is different so it stood out to me; By "CST" that it could be related to a pain syndrome. (In effect)

I think I will talk to my (wonderful) pain managment doc and see if she thinks that's possible. If so, I'll go see a neurologist. It does make sense. Maybe my body has been under such severe constant "pain signals" for so long, it's on overload or more sensistive now?

Another thing... When I had my hyst... The biopsies showed (among other things) that certain substance in there that's usually only related to TB. They then did a skin test, which was negative, then they let go of the idea. I have no cough or anything. Howver I've read it's possible to have TB of the bladder. I don't know what the chances of that is though?

Oh well, I just need to get on the ball and start investigating... Going to some doctors.

Thanks all! I am so glad for this website and I feel very supported. I'm sorry we all suffer to some extent or another and hope that someday there will be a cure for IC. But am glad to have the support here and not feel all alone like no one understands.