Feeling down and sad..

[mimimama]

Hello Dear Ones,

I am feeling really down lately. My IC is doing ok..no flares the past few days. I have a DMSO treatment today..not sure if these are really worth the trouble and pain I have afterwords. I am taking Elmiron..it's been causing me to have hot flashes. I know it is the Elmiron because I've never had hot flashes until I started the Elmiron. My paxil doesn't seem to be helping my depression right now. Please keep my in your thoughts and prayers. I just feel like I am so young to be having all these issues. (i know many of you are going thru MUCH more than I am at a younger age..my heart goes out to you)

I am so down on myself and feel so sad lately. I don't get out of the house much..I'm just so tired and always feel lousy. Wondering if I have Fibro since everyday something seems to hurt. I could lay in bed all day but have to work from home so that makes me have to be productive.

Wating for an appt still with the pain clinic. It sounds like they are clueless about IC. I hope they take me seriously and my pain is valid. I should hear today whether the DR wants to take me on as a patient.

Well, that's all for now..please, any warm words would really be appreciated right now.

Love to you all,

[leelee88]

:grouphug: I hate having days like that when everything thing seems so grim and nothing makes us happy..I guess we all go through that from time to time with IC..Just remember though we are all here for you and you are not alone:angel:


Ronda

[Kara29]

Mimi,

I am 31 also. I hope that the pain managment specialist can help you with all of your pains. Maybe a Rheumetologist could help diagnose the Fibromyalgia. Each medication can cause side effects that are different to everyone. If you really feel that the Elmiron is causing these hot flashes, maybe you could talk to you doctor about switching to a different dose or med to try.

I know it sucks in this day that we have to wait for Doctor to accept us as patients. It's awful to have to have these feelings. It's not the way it used to be, even 10 years ago things were different. Doctors would take your case no matter what because they actually wanted to try to help. I think the insurance companies as good as some of them are to us are what is causing these doctors to have to "take our cases"......

I hope you get some positive news today about the pain clinic.

Kara

[petrie86]

Hey sweetheart... I have those days alot. I just turned 21 and think about this all the time. This disease really takes a toll on our bodies and minds. I have a mild case of Ic but sometimes I swear it's not mild. I feel bad for those who have it worse and am thankful for the help I am getting now. I wanted to tell you that we are all here for you and cheer ya up! I will pe praying that god gives you strength to get through this. BIg Hugs!

Rachel

[ICNDonna]

:grouphug: Please know I'm thinking of you.

Donna

[aprilmae]

Mimi,

I hope you are having a better day today. I totally understand the fatigue and pain. I am in the same boat these days. I try to be productive and run an errand or do something around the house and that just makes it worse.

I did the DMSO treatments and second guessed myself the entire time. As for the Elmiron - my body temperature is all messed up - I actually wake up now in the middle of the night because I am hot!!!!

Hang in there girl, you can do this!! We are all here for you.

Please remember to take extra good care of yourself - I know it is hard when there are other obligations.

Let me know if you need anything.

Hugs,

April

P.S. Your little boy is absolutely precious. :smile tee

[vm]

Depression sucks. :(

Do try to get out each day - even if only to sit outside in the sunshine or take a very short walk. I know when I am depressed I just want to lay in bed and pull the covers up - but making myself get out always does help a little bit.

Know that this will pass - it really will. :kissing:

[mimimama]

I am SO thankful for each and every one of you. I want you to know that every time I post something, no matter the subject, I just feel so much better! I have told my friends and family about this forum. I feel very blessed to have you dear women as my support system.

I love all of you! Thank you, thank you, thank you!

[tigger_gal]

so sorry that you are feeling down.. its great that everyone here is so supportive :) and makes us feel better.

[kari1980]

:grouphug: Wishing you better days ahead...........

Kari

[GriffsMommy]

Mimi (((((((((hugs))))))))))) I'm so sorry that you're having such a hard time. It sounds like we really are at the same place with our IC.

I hope that you feel better soon. There are some days I wonder if I have fibro too because I get so sore, I may ask the dr about that too on Friday. I hope you get into the pain management clinic soon. :grouphug:

[Bessie]

We are all here for you. You are a beautiful woman with such sweet little children. Sending you lots of hugs:grouphug: :grouphug: :grouphug:

[Waves]

Just by reaching out to all of us on the network is a strength. I'm hoping you feel better too. Even if it's a little bit each day. Set backs are very hard. We're here for you!

[sandramac]

:pray: I pray you will feel better soon. Hugs Sandra:cat: :cat: :cat:

[Briza]

Hello Dear Ones,

I am feeling really down lately. My IC is doing ok..no flares the past few days. I have a DMSO treatment today..not sure if these are really worth the trouble and pain I have afterwords. I am taking Elmiron..it's been causing me to have hot flashes. I know it is the Elmiron because I've never had hot flashes until I started the Elmiron. My paxil doesn't seem to be helping my depression right now. Please keep my in your thoughts and prayers. I just feel like I am so young to be having all these issues. (i know many of you are going thru MUCH more than I am at a younger age..my heart goes out to you)

I am so down on myself and feel so sad lately. I don't get out of the house much..I'm just so tired and always feel lousy. Wondering if I have Fibro since everyday something seems to hurt. I could lay in bed all day but have to work from home so that makes me have to be productive.

Wating for an appt still with the pain clinic. It sounds like they are clueless about IC. I hope they take me seriously and my pain is valid. I should hear today whether the DR wants to take me on as a patient.

Well, that's all for now..please, any warm words would really be appreciated right now.

Love to you all,
MImi. sorry you are feelng so down, even wth my symptoms under control, suffering from depressions affects me more than anything else. Even without other physcial conditos bothering us, depression can affect so badly. Have you considered a different antidepressant? I have tried many but always go back to Prozac because it's the only only one that helps me. I've never found one to help wth anxiety or pain, so thank god my gyn prescrbes other meds to help with help my IC and VV.
When is your pain dr appt? I know we spoke before about dilaudid and that it was the only thing that helped your migranes and
also your IC. You seem to be on the protocol ic meds, so that is great..if u can determine if
one of your meds is causing your migranes. would great if you could stop that med...fewer meds. less cost..always great;) HUgs and best wishes. I understand. :)

[anniepie1976]

My thoughts and prayers are with you. I agree with Kara also...there is a dramatic difference in Dr's from 10 years ago when I was just starting to go through this IC stuff...Dr's were much more aggressive and not a fraid to check things out and give tests and such. Now we have to fight for a Dr to take us seriously! Anyways, it's tough. I hope my best to you. This is a great community on here and it's nice to feel a sense of belonging. I'm 31 also, and I wish I could live my life the way I had planned to, but life seems to have other plans for us. I believe some day this will all make sense to us. ~Ann