Waves
07-05-2007, 02:52 PM
Hi,
I can't believe it, but I've had some good nights of sleep and less pain for almost a week. It's hard to know exactly what's helping.
I've been good on the diet since being diagnosed a month ago, but didn't see much help. But about two weeks ago, I'd started the marshmallow root tea, and then a day or so later the citrus free Quercetin. I found my doctor's various medications not to be very helpful.
Though I definitely am taking alleve + extra strength tylenol at night. I'm also taking 1 desipramine, though I don't think the desipramine has made the difference, as I had started that earlier. I may try to discontinue it and see how I do, as I have to be careful with medications that affect mood and alertness. (Just realized I need to change what I listed for my meds . . .)
At the same time, I've become more assertive with my family, very hard, and just said I cannot do certain things. That has alienated some, but it had become a choice of going under myself, in every sense of the word or taking care of myself. (Obviously a lifelong issue.) I've upped my exercise (which I love), and I've started talking about IC to many, many people -- almost wherever I go.
I was very proud, I had 2-way zippers installed in my hiking/kayaking/climbing shorts that go all of the way around. And frankly, I'm going to wear those without binding undies. Somehow when I went ahead and did that, I felt like: I can beat this pain, this frustration, rotten airlines personnel, IC or people who don't care won't do me in.
I know I will still have very tough times ahead, and I am nervous about my trip, but I thought others could use some rays of hope.:angel:
I can't believe it, but I've had some good nights of sleep and less pain for almost a week. It's hard to know exactly what's helping.
I've been good on the diet since being diagnosed a month ago, but didn't see much help. But about two weeks ago, I'd started the marshmallow root tea, and then a day or so later the citrus free Quercetin. I found my doctor's various medications not to be very helpful.
Though I definitely am taking alleve + extra strength tylenol at night. I'm also taking 1 desipramine, though I don't think the desipramine has made the difference, as I had started that earlier. I may try to discontinue it and see how I do, as I have to be careful with medications that affect mood and alertness. (Just realized I need to change what I listed for my meds . . .)
At the same time, I've become more assertive with my family, very hard, and just said I cannot do certain things. That has alienated some, but it had become a choice of going under myself, in every sense of the word or taking care of myself. (Obviously a lifelong issue.) I've upped my exercise (which I love), and I've started talking about IC to many, many people -- almost wherever I go.
I was very proud, I had 2-way zippers installed in my hiking/kayaking/climbing shorts that go all of the way around. And frankly, I'm going to wear those without binding undies. Somehow when I went ahead and did that, I felt like: I can beat this pain, this frustration, rotten airlines personnel, IC or people who don't care won't do me in.
I know I will still have very tough times ahead, and I am nervous about my trip, but I thought others could use some rays of hope.:angel: