How do you all know where your bladder pain is?

[jjj2007]

I know this may seem ignorant... but, how do you know that your bladder specifically hurts?? :smile tee Is the bladder pain felt right inside the vagina kind of? Please educate me!!! Thanks!!!

[born2swim]

I guess I would find a support group in your area (or near) and see who they recommend! http://www.ic-network.com/forum/showthread.php?t=30094

[leelee88]

My bladder pain is right below the belly button...

[jjj2007]

Ok, thanks leelee. That's really high up there then... I thought the bladder was right above the pubic bone...

[RobinD]

My pain is very far down in front, right in the pelvic bone area

Robin

[leelee88]

Well let me clarify something its right below the belly button all the way down to the pelvic, sorry I should have finished..

Ronda

[JanL]

My bladder pain goes right above the pelvic bone and across my lower back . According to my PT bladders can be located in different areas in different people. They are in the same general area, but one person's bladder may be more on the left and another person's may be more on the right. Strange--huh?! It has taken me awhile to figure out what is pelvic floor pain or VV and what is bladder pain. Physical Therapy has actually helped me to figure it out.

Janice

[jen74]

My bladder pain is insdie the bladder right where the urethra meets the bladder and in the base of the bladder. I can tell exactly where it hurts. When my urogyne took the pictures of my bladder when he did the regular cystoscopy, sure enough it was all inflammed where I have the pain.
Jen

[kari1980]

I hurt every where below my belly button! That includes the lower back area as well.

Kari

[SandyRN]

After a while you just know. I always say how weird it is to say, "my bladder hurts"...how many people are even aware of their own bladders unless they have to pee? Not many.

[izazen]

Mine is above the pubic bone.

If you ever go to a Pelvic Floor therapist - she will put her finger up your vagina and point out to you where everything is. For me the "trigone" area of the bladder (where all the nerve endings are) is the most sensitive - it seems to be right at the top of the vagina.

[Silverfox]

For me in the urethra and trigone area where there are lots of sensory (afferent nerves) sending messages of painful sensations to my brain. My pain doctor says this pain is not coming from the surrounding tissue but is coming from within the damaged sensory nerves. Nerves themselves are affected. :help:

[chinson]

My bladder pain is mostly vaginal and is a stabbing, burning pain. Also, less frequently it hurts right above the pelvic bone and all the way through to the urethra.

[jjj2007]

Ok, thanks for the info! I will ask the physical therapist next time I go to direct me to all my parts! :smile tee That's a good idea!
Thanks again..

[Briza]

If you lay down on your back and gently press on all the areas below the belly button on down to you pubic bone, kinda of like when a gyn does when you have your annual exam, you may be able to find where your pain is originating from. Mine is dead center above the pubic bone, right above the hairline, but the pain radiates out to all areas, vaginal, lower back, butt, and pretty much my entire pelvic area. But I have vulvodynia and vulvar vestibulitis as well, and have learned which condition is causing which symptom and where. Usually all things start in my bladder and then create havoc from there! Before I was diagnosed, I had NO idea my pain was coming from my bladder, because I hurt everywhere!

[icbop]

Hi,

I have had urethral pain for three years now--until Sunday my only symptom.

Now I have what feels like ovulation or period cramps, just to the right of my pubic bone (but I'm not ovulating or having my period).

Is this an IC symptom? If so, does a new symptom mean my bladder is actually getting worse (in terms of scarring, glomerulations, etc)?

I had my cysto/hydro done a month or so ago, and my capacity is 600 cc, I have glomerulations, and scarring. I was surprised to see the latter two things since the pain was all urethral (and not clearly distinguishable from VV).

The diet did nto work for me the first time around, but I may have to try it again now that my actuall bladder may be hurting.

Also, does anyone know if 600 cc is normal or low?

Any tips and ideas?

Thanks!

[Briza]

Maybe this is some residual pain from your hydro? Just guessing here :) I've read here people reporting pain after the hydro that they didn't have before.
That said, my first year with symptoms, the first six months or so were mainly vv, vulvodynia, and ic belly....during the second 6 months my symptoms progressed to cramping, shooting, stabbing pains in my bladder/abdominal area. My ovaries were really sore during that time, but I don't feel that anymore, even with other symptoms, it seems the bloating and sore spots have calmed down.
I'm going to go with 600 ml being normal, but I may be wrong. Someone correct me if I am. Can't ever remember:rolleyes: I was distended to 1275 ml :evilsmile so I'm assuming I have normal capacity , but I still have IC and all the symptoms of it.

[ICNDonna]

Normal bladder capacity when awake is approximately 500cc; under anesthesia that can double. I had my last hydro nine days ago and I still have some discomfort in my bladder --- it does feel like menstrual cramps. It's not nearly as bad as before the surgery and hopefully in a few more weeks it will calm down even more.

Donna