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View Full Version : Help! MY remission ended with a BANG!!!


tlacey
05-21-2007, 04:53 AM
:help: I've been in remission for almost a year. Unfotunately, that ended with a humongous flare. I woke up in the middle of the night and I haven't stopped peeing since. My Bladder feels full but only a trickle comes out. Makes sense because it's only a few minutes between trips to the bathroom. I haven't seen a Doctor since mine was killed last June. I don't want to start from square one. I started my Elmiron again. Is there anything else I can take? Anything over the counter? I can't find my peridium so it's really really painful. Please help. I can't afford to leave work, but I can't make it through the day like this.

petrie86
05-21-2007, 04:58 AM
ARe you sure it's not a UTI? If it's not maybe try to take some advil. You cant find pyridium? I used to take cystec or uristat. Those are pretty much the same thing. Maybe try drinkin baking soda in water? I know that tastes nasty but it does help. I totally know how you feel, somedays at work the pain is umberable... maybe your boss will let you leave for the day? I hope you feel better.
Hugs
Rachel

tlacey
05-21-2007, 05:03 AM
Thanks. I'll try everything except the baking soda. I've tried that and it plays havoc with my blood pressure.

Moonheart
05-22-2007, 12:13 AM
I'm so sorry Traci!

Does it hurt to take even just a tiny teaspoon of the baking soda?

I hope you get back in remission quickly.

Hugs,
Moonheart

dancemomof2
05-22-2007, 01:38 AM
Maybe you should get tested for a UTI, maybe a tums, and drinking plenty of water will help. If you just started the Elmiron again it could take awhile for it to work again. I think finding a new URO might be a good thing if your starting to have problems again. Hope you feel better soon.

humpieumpumkin
05-22-2007, 02:24 AM
Pyridium or urelle are my best bet for uti-like flares. You may want to get seen like everyone else mentioned. It seems that since this came on all of a sudden it could certainlly could be a uti. I hope that it is(so your remission won't be over and so you feel better faster):angel: If it isn't a uti, I'm truly sorry that you had a tast of success and now your in pain again:(

Erika:hi:

ICNDonna
05-22-2007, 02:48 AM
I can't take soda because of high blood pressure, so I take Tums for flares. I noticed you said you "started elmiron again." It's not something you can usually stop taking --- the way it helps some people is to help repair the bladder lining, but if you stop taking it, the temporary "lining" doesn't last.

You can get a low dose pyridium over the counter.

Sending healing thoughts,
Donna

tlacey
05-22-2007, 02:53 AM
Thanks everyone for your replies. I saw a new URO yesterday. I'm back on all my meds. No UTI. He gave me pyridium. I won't ever stop my meds again. He said it's all the stress I have in my life right now.

humpieumpumkin
05-22-2007, 02:57 AM
I am so sorry:( I hope the pyridium helps you as much as it helps me!

Erika:hi:

amartaingirl
05-22-2007, 06:18 AM
If its food related...baking soda /water then 3 tums & alot of water... helps me.
I have HBP too...but sometimes..you have to do..what you have to do.

if its stress related...well.i havent figured that one out yet

tlacey
05-22-2007, 06:38 AM
It could be anything. I have custody of my 5-1/2 month old granddaughter, the company I work is going through a lot of changes in my department and my husband has been out of work for the last three months.

lasrlsrps
05-22-2007, 08:16 AM
I am so sorry you are having pain, I have been in remission for awhile then it did the same to me, and I am at lost as well in what to do. The Doctor thinks I am having a hormoaral issue and need to see him when I have the flair ups badly witch is a week before my cycle, I just go off the phone with them, the problem is I don't have insurance right now to go in and see him. I love my OBGYN he really lisens to what I have to say, I hope you find a solution to you problem!

Lori

mom_in_ma
05-22-2007, 12:43 PM
Traci,
Sorry to hear you're flaring. I'm going through the same thing. I was in remission pretty much for a couple of years and then stress/hormones brought on a major flare. I'm lost as well this time around and am just trying to get through it day by day. None of my usual meds are working and I finally resorted to getting pain meds from my primary doctor today. At least I can maybe get a small break from the pain. UGH.