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View Full Version : Things have gone from bad to worse.......


Roxie2007
04-23-2007, 08:53 AM
Well we just got back from the new Rheumatologist. He doesn't think I have Polymalgia because I'm not responding to the Prednisone. He thinks that because I had bladder surgery 4 yrs ago and the dr. used a foreign matter called Durastat and injected it around my urethra that now my body is having a allergic reaction of sorts, to it…..and because I’ve had gastic bypass my auto ammune system isn’t working up to par to fight this reaction off….like normal people could…..anyway…..he took a 7 vials of blood…..and 10 xrays of my body parts………and did a temporal ultrasound (that showed that temple artery to be ok and not be Giant Cell Arteritis) and I go back and see him next week. And he’ll tell me more of what he thinks this problem is. IF this is all right…..that means I’ll have to go back to my urologist who did the surgery and have him undo it and do it differently……UGH!!!!!!!!!!
On one hand I'm releived that I won't have to be on Prednisone and get a moon shaped face with all else that goes with steriod use......but I'm dreading thinking I might need bladder surgery and what that could do to my IC!
Do these health problems EVER stop??? ever get better??? :headbang: Ok I'm just majorly depressed now :( Thanks for listening........Roxie

GriffsMommy
04-23-2007, 09:13 AM
Oh no Roxie, I'm so sorry! :grouphug: I mean it's good that you may not have Polymalgia but obviously it would be really bad if you have to have bladder surgery. I wish there was something else I could say or do, but I will be thinking of you, if you need to talk, I'm here.:grouphug:

ICNDonna
04-23-2007, 09:30 AM
Hang in there. Hopefully one day soon you'll have a diagnosis and you can move on from there.

Warm hugs,
Donna

Trishann
04-23-2007, 09:38 AM
Roxie, I am so sorry. Hope things start turning around for you.

Just sending hugs, Trishann

Sarojini
04-23-2007, 10:10 AM
Ugh... I'm so sorry! But do keep your chin up. Let's hope that after all that blood you gave today, your doc will find a definite diagnosis for you :grouphug:

jen74
04-23-2007, 10:47 AM
I am so sorry you are going through all this Roxie. I am sending you Big Hugs.
Jen

Roxie2007
04-23-2007, 11:29 AM
HI All, Thanks for all the support......I really need it now.
I'm so worried about this new theory the dr. has. I would just die if I have to have bladder surgery again....I'm sure that would start the urethra pain and bladder spasms again....UGH!!!!! Y'all are great! Thank you! Roxie

Kara29
04-23-2007, 11:37 AM
Thinking of you Roxie! :hi:

I hope things start to look brighter.

Kara