Periods and Menopause and Interstim and IC and PFD

[Sandy]

Think I got enough of them up there????? I have all of them coming up with the period.
The question I have and I am sure I have read it before but... Does anyone with the Interstim in(mine being in for 6 months now) have major flares and urg/frg bloating etc about a week to ten days before their period? I did before but never this bad and am stressed that it is not going to let up. Had a large glass of milk the other day whcih really seem to set it into a major flare. Going to see my uro in two dyas as I feel there may need to be an adjustment done. I have never really felt "right" since my last adjustment. three months ago. In between that time I fell,(not on the mimplant side) and have been to see the uro, but things are getting worse., but my main question is as the above with the period thing. Like I said this is the worst one.
Sandy Sounds like a repeated statement but I am soooo tired having to pee every 1 1/2 hrs not getting much sleep

[Maureen]

Sandy,
Hi! I hope you got my email last week. I am sorry you are not doing so great. Dr. H put me back on Detrol (as needed) last week so maybe he will suggest that to you as well. Take care Maureen

[Ruth N]

I always flared that time of the month beforre interstim. After interstim that was still my flare time, but not as bad as before interstim. I had a hysterectomy 7 months ago (not because of IC) and must say that I love not having monthly IC or joint flares BUT I am not recommending a hysterectomy, just saying that you will still have hormonal flares even with interstim. But if yours are worse sounds like you need to see your interstim doctor. Good luck.

[Sandy]

Had the adjustment done yesterday and last night (all night) was the night from hell. Had to pee every 20 min. Just wondering if I drank too much water but I don't think so, had some blood show up in dip previous to the appt so taking macrobid and it was quite an adjustment. I had it so low that he could not get a reading on his computor tuner. Guess that is not good either. Twenty four hours later just starting to feel better but constipated. I could eat a whole bran field I think at this point and it does not seem to make a difference. I am finding that I can only drink small amts of water at a time not the big glass like I am used to doing. Anyone else find that or your bladder goes in to overdrive. When he tuned me it was so high I felt the sensation quite strong but left it that way for awhile and now have turned it back. Debbie, you know those eyes!!!! But I concentrated hard on the sensations yesterday as I was in a bad way and LEs was with me so Dr H spoke to him how he does the adjustments all the techy stuff I never get right(duh, because I can't concentrate lol lol) you know why....lol lol
Sandy
By the way milk is still a problem but not ice cream or maybe it is just coincidence because it is period time coming (I hope, menopause seems to be a hit and miss with it you get all the symptoms but not the results)
Had an ice cream cone yesterday and it did not seem to give me grief. Hard to really tell as I was going off my nut by the time I got home anyway.

[Maureen]

Sandy,
How are you feeling today? I had a horrible night last night. I took the detrol and then I could not pee. Oh if only doctors would listen when you tell them that. I tried detrol before and that was the results. I do not not know why he is not making any more adjustments with me. Two appointments ago he made a few adjustments and some of them I could not even feel. Other were way out in the butt check area. So he said that he would have to turn it back to the original setting and that it was the right one. I have found that I do not do well with his crank him up in flare method. Cranking it up causes my bladder to flare more. It is better in the lower volume that I can just feel it. I am surviving and my bladder is holding about 100- 110 ml (when not flaring) so that is better than before the interstim. Hope you are feeling better!

[Maureen]

Debbie, I didn't say that he wasn't listening about adjustment. He feels that this is the best setting and is satisfied with the 110ml. "That is 100% improvement after all." For some reason he made adjustments that I could not even feel. Maybe due to all the pelvic surgeries I have had (bladder lift, hysterectomy etc.) I do not know, I just thought of that.
He did re-do urodynamic tests in December but could not find any problems.

[DebbieB]

Maureen, I am glad to hear that you have improved "100%" that is great to hear!!!
I am so happy for you !!!

Debbie

[Maureen]

It is funny that a patient's 100% improvement means they are back to normal( for me a bladder capacity of 450ml. would be normal) a surgeon has his own calculations (110 ml for my bladder capacity would be 100% improvement in his literature to collegues).