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Kara29
02-07-2007, 12:10 PM
I am having no trouble from the Interstim Removal, it went smoothly and my incisions are healing nicely.

I do still have the horrendous tailbone pain and can't sit. They have found two cysts on the bottom of the sacrum via a CT scan. They are doing an MRI next week or the following week to further investigate it. (This may be the cause of the tailbone pain, thus not being able to sit)

I do still have the Pudendal Nerve Pain and can't sit. (This will be looked into and my final test for it is March 13th. in NH)

I also have a 4.5 cm left ovarian cyst. I’ve had them before (the ones that disappear with my cycle) but never this big. (My Chronic Pelvic Pain Specialist will look into what to do or not to do about this on Feb. 23rd.)I can not take hormones at all to reduce it or to prevent further ones.

I have been having this awful unrelenting headache in the back of my heed that goes into my neck and shoulders for 8 days now. I've been to my primary 2 times in one week and to the ER last night. CT showed nothing visible. They wanted to do a spinal tap and I had to refuse. I have had one in the past and ended up with a spinal headache from it for 3 months.

Urine Culture came back Positive for a massive Urinary Tract Infection. They put me on Ampicillin. I thought I had the infection starting last week but the nurse who checked my urine insisted that it looked fine and would not send it for culture. I insisted on Monday that they do another one. I am glad I was persistent. This could explain the headache. I often get terrible headaches with UTIs.

One day at time, One Pain at time....Complex Case is Right! I have to keep moving on and find the way!

Kara

Babs RN
02-07-2007, 12:15 PM
Kara,
I hope you feel better soon and that they address that headache properly! Hang in there!

Hugs and love,
Barb:hi:

ICLori
02-07-2007, 12:43 PM
Oh, my goodness, you poor thing. I hope so much now that the UTI is being treated, you will be more comfortable and the pain from the headache will go away at least.

The cysts at least explain why you can't sit. I mean, it's awful that you still can't sit, but I'm glad at least they've found the cause of this. I know it's really been a long path for you, but hopefully soon they will fix things, one at a time, and you will be comfortable again.

Blessings and hugs,
Lori

Mel53H
02-07-2007, 01:16 PM
Gosh Kara!! What part of your body do you not hurt? I am sorry you are going through so much pain and pray for all of it to cease.

Hugs,

Mel

aprilmae
02-07-2007, 01:52 PM
Kara,

Been thinking about you a lot. Hang in there. Things have to get better - they just have to.

Hugs,
April

sandramac
02-10-2007, 04:03 PM
:headbang: :headbang: :headbang: OmG you poor thing! Hugs Sandra:cat: :cat: :cat:

ihurttoo
02-10-2007, 06:38 PM
Sorry you still arent feeling better. I wish I could take the pain away. I hope that the cysts go away soon and that the pain leaves with them. Sending you big hugs! Love, Amy

Sarojini
02-11-2007, 03:14 AM
:grouphug: :grouphug: from me... and headbutts and purrs from Paddington!!! :)

I hope you feel better soon. I know that your doctor appts can't come fast enough -- but I hope when you do have them they are able to help you out so you can sit again...

ICNDonna
02-11-2007, 04:10 AM
I'm sending well wishes and warm hugs.

Donna

Trishann
02-11-2007, 05:15 AM
Me too Kara, warm hugs.

Trishann

sandramac
02-11-2007, 06:29 AM
Hey Kara, I called you last night.Where are you? Ive been busy at work did 12 hours yesterday , but wanted to know how u were doing.Call me ! Hugs Sandra:cat: :cat: :cat:

TRINKLES
04-29-2007, 04:35 PM
Good afternoon,
I am reading all of your med intake...can I ask if you are on social security?
good luck and God Bless,
Patrice Coleman
in the bathroom in Texas also

Kara Isabel
04-30-2007, 03:21 AM
Kara,

:( I'm SO sorry you have to go through all of this! It seems like its one setback/pain issue after another! So unfair, and YES, so complex!

We need to chat soon! :)

Hugs,.
Kara

bahhumbug941
08-21-2007, 11:50 AM
Kara,

I found it interesting that you mentioned you have severe headaches from the base of your skull that spread down into your shoulders when you have a UTI. Those are the exact kind of headaches I have, and no one has ever been able to explain why I get them. Do you also experience this with flares? I'm in a constant flare, and I ALWAYS have a headache. I wonder if there are connections between IC (and it's sidekick conditions) and headaches....

BEST OF LUCK!!!!

Kara29
08-22-2007, 02:00 PM
The headache thing is so strange but it's consistent with every UTI that I have that gets out of control. I never get fevers though so it takes a mountain to get a doctor to treat the infection with antibiotics. They always say you have to have a fever and be throwing up before they will treat. I understand because they worry about eventual antibiotic resistance but it sure sucks when the UTI makes you so sick.

I haven't had a UTI in a long time but I have enough of everything else to make me nuts.

Kara

mimimama
08-23-2007, 11:36 AM
Kara,

I am very sorry you continue to suffer. My heart breaks for you. Please know that you are not alone. I know brighter days are around the corner.

:angel::angel: :angel: :angel: :angel: :angel: :angel: :angel: :angel: :angel:

I wish I could give you a big hug..you've been thru so much.

christinaw
08-23-2007, 09:30 PM
Hi Kara,
Praying for you - hope you get better and stronger each day. I just read your story on your blog, etc. and we have so much in common! Would you like to chat sometime?
Wishing you wellness,
cjw

Kara29
08-27-2007, 01:43 PM
Christina,

Feel free to PM me.

Kara