Still pain after Cysto/Hydro/Biopsy a week ago

[MLM]

Hello there,

I had a Cysto/Hydro/Biopsy (under genereal anethstisia) a week ago tomorrow. From what my husband said, the doc said it was not IC but maybe something called bladder pain syndrome or something. (I will find out this coming Tues when I go to get my results)

The first 3 days I was pretty sore with pain and burning while urinating, but it was managable. Most of the pain has gone away, but I'm still feeling like I have to pee all of the time. And before and during when I pee, it really hurts. I can feel the pain travel down the center of my bladder and down my urethra on it's path to come out. I also stop peeing in midstream, and then have to stop and start and force the rest to come out.

Is this normal? Will this go away soon? I sure hope so.

They gave me a 2 day course of antibiotics right afterward to ward off infection.

Anyone have similar experience or any info?
I'd appreciate it!:toilet:

[vm]

I was given a 3 day course of antibiotics after my cysto w/ hydro and STILL developed a UTI. You might want to be checked for one just in case. :)

[donnes007]

I have had atleast 15 hydro's. What you feel is exactly how I felt. I have severe IC and am about to have the interstim done next week because hydro's dont work for me anymore. It used to take me approx. 2 weeks to recover from that procedure although my doc said most people recover in 3 days. Painful bladder syndrome is the new pc way of saying ic. I too got uti's after even though i was on antibiotics. Good luck to you!

[humpieumpumkin]

I agree with vm and donnes. :smile tee Get checked for a uti!!! I hope you get some releif soon!:angel:

Erika:hi:

[ICNDonna]

It does sound like you may have an infection. I suggest you call your doctor today and ask to be checked.

Donna

[MLM]

Thanks all, for the input.
Yes, I'm frustrated. I was feeling better on Monday and Tuesday but last night (Tuesday night) It started to get more sore and I was having frequencey. Bleah. Unfortunatly, I had to work today but the Uro's office left me a precsription for Cipro and had me drop by after work to do a urine culture to see if it is an infection. My Uro also told me to up my Elavil to 50 mgs. I just started it (25mgs) 2 weeks ago. I thought that was helping a little bit. Hopefully this will do the trick.

My history :
November 29th (I remember the exact date!) I started a new job, came home from work, went to the bathroom and the burining started and never stopped. Of course I thought it was a UTI and went back and forth from doc to doc until I got an appt. with the uro. We did the hydro/cysto/biopsy last Thursday to check for IC. She said no IC ulcers or lesions but my bladder was "spasming". Apparently, the liter :woohoo: of fluid they put in, it spit right back out during the hydro? :rolleyes:

A week before the hydro I started elavil and alot of the burning went away. It was mostly buring after I voided (although that would last for a few hours, at least it wasn't constant anymore) Then came the hydro and since I haven't had that burning anymore...just that shooting pain when I pee. The one I described in my original post. Where it feels like it follows the urine stream down the center of my bladder and out. I haven't been able to void right since the procedure either. At first I have a stream, then it trickles off even though I'm not finished, and I end up having to strain the rest out. Stopping and starting. Many of you know the feeling, Im sure.

Anyway, I hope that this helps me out. Thank you all for your support!
It's nice to know that I have some people who I can talk with who have experienced similar problems. My husband is a dear soul, and so supportive of me, but he'll never know (Thank Gog:pray: for him) the real torture of how this feels sometimes.

[MARIE29]

I am worried. Ever since I had the cystoscopy/hydro/4biopsies, I have had a stinging pain in my bladder right before urinating--it was real bad immediately after surgery..a little better now but still hurts. Once I sit on the toliet, it takes a second for me to urinate, and right before it flows (I think when bladder is contracting) I feel this stinging pain--It is not burning at all when I urinate. But now, everyday I feel this slight stinging pain in my bladder even when I am not urinating--it is definetly worse when I urinate though. Is this because my biopsies need to heal? I never had this feeling before the surgery. It has been 3 weeks since the surgery. Could there have been damage done? I had no bleeding after surgery, but I was in a lot of pain afterwards.???????? Anyone feel like this?

[Billsbaby]

wow,count me in too.i have the same exact problems.i also have problems keeping the flow going,starting the flow,i have way more urgency now,more stinging and pain,i had retention for awhile,basically all my symptoms are worse and i added a few.it has been almost 2 weeks since mine.i don't understand why everything is worse.so i guess i can't help you,but,atleast we know its not just us.i am sorry for what your going through.i see my doc tuesday for my first instill,she calls me all the time to see how things are going so she knows whats going on,she will do more tuesday.

[MLM]

I had that same pain that you described....it stayed with me for about a week and a half, and then it subsided. It was the exact same pain that you described. And it was a pain that I did not have before the procedures. I had 2 biopsies done....one left lateral wall, and one bladder floor. I had a little bleeding for about 24 hours after the surgery because of it. It may be your body healing slower? After all, you did have 4 biopsies. If you are very worried though it never hurts to ask your doctor.

[MARIE29]

Thanks for the friendly responses. I am new here, and everyone is so helpful and nice.
What do yall think about pyridium? Would that help me? Some people mention pyridium/AZO/Uristat?

[MLM]

I've been taking Azo 3x a day now for a week, becuase it's been helping me actually have whole days where I feel "normal" and almost symptom free. I asked my uro (who is not very helpful) on Tues if this was bad for me, and she said that she'd like to see me wean off of it but that it wouldn't hurt me. I still think taking it as much as I do is not healthy. My insides are probably dyed orange for good by now! I hate the aftertaste when I take it...even with a big glass of water!
I am getting my 2nd opinion this coming Tuesday...so hopefully, he can help me out and give me some more options for treatment.
Anyway, I don't think that it would hurt you to try it!
Good luck!

[MLM]

PS - try laying with a heating pad for a while too....that always helps me! (or an ice pack on the urethra region, if thats the case)

[MARIE29]

Thanks! I think I will try it :pray: I hope that your doctor's visit goes well. Keep me posted. The earliest appt I could get with a new urologist is 032107. I will keep you posted on what he says. I still haven't been diagnosed yet. The urologist who performed the cysto/hydro/biopsy just put me on Vesicare for an overactive bladder and Macrobid since my biposies did not show increased mast cells. I don't feel he knows much about IC so I am getting a second opinion. You can find my story under the"not diagnosed yet forum." Thanks again :flower:

[MLM]

Good luck with that. Maybe you can call around and see if another uro can see you sooner.
I got my test results on Tuesday. Dr. said I dont' have classic IC (which is good) because my bladder can hold alot ( a whole liter!) and I did not have the pinpoint bleeding associated with IC. On the other hand, she thinks I have what is called "painful bladder syndrome" , which falls under the IC category because they dont' know why it happens. My biopsy showed a "partially denuded urothelium" which means that there are some weak spots in the bladder lining. I did not have increased mast cells either (which are also associated with alot of classic IC)

When I first got sick (end of November 2006) I was having lots of urgency and pain/burning. Now I dont have the urgency hardly at all. I still am having pain and burning though, and that's what I want to get under control.

My uro (the one I dont' like) put me on vesicare at first, because she said i had overactive bladder. I took it for 2 weeks and felt bad on it. I couldnt pee at all and it made me very constipated (making matters worse). I went off of it and she got annoyed! I feel as though she does not listen to me, and now I do not have urgency at all...who knows. I just didnt' think vesicare was the answer for me.

I do take Elavil (50 mgs) at night, and I am taking the Azo. I will see what the new Doc says on Tues.

Good luck!