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View Full Version : Hello to All !! Prayers continue for yooooz!



Curlyfries
01-29-2007, 05:04 PM
Ok, I went to see specialist today and she took one look and said "OMG how long have you been like this and what happened to you to cause this?"
I finally got validation!!!! It's not just IC but alot of horrible scarring from several previous surgeries to remove ovarian cysts, previous botched bladder and bowel lift, childhood sexual abuse, pesiotomies (don't know if I spelled it right, lol) from child birth. 5 children and hysterectomy. I asked her why none of the many other docs never seen it and she basically chalked it up to them being men. One male gynie told me "that's just the way you are made". Sheeeeesh! So she tried to put one of those rings in to push up my bladder but had to take it right back out. She wants to try to avoid any more surgery but it doesn't look good. But when I get through with all the docs that let me suffer so badly for the past 6 years, the last being excruciating, they will wish they had helped me before I got so bad.
At first I was really upset and crying uncontrollably, but now I am mad. There's a reporter from our local tv station, waiting to hear from me after my appointment today and I will be calling him tomorrow. I haven't been able to sit in a chair or walk for over a year now and they have the nerve to kick me out of the hospital last month???!!!! OH BOY am I mad. If I have been suffering all this time, being told I'm a crazy woman and I need to go to mental health, and I am a drug seeker, how many more "me's" are out there? Every time I went to a doc, my records followed me with all those lies and influenced what the docs thought about me. I can't stand the thought of how many other women like me are out there in this suffering. The thought of doctors ignoring thousands of other women like me and making them think there is no hope just drives me up a wall and down the other side.
So PLEASE don't give up! Keep fighting for recognition and pain relief. I have finally found a great family doctor and he sent me to this wonderful female gynie today. She said that she will find a way to make me well. You all can do it too! THERE IS HOPE. We all just have to find the docs who are docs because they care about people and not so much the paycheck. I am praying for ALL of you and the tears that are falling down my face are for each one of us! KEEP UP THE FIGHT!
PRAYERS AND BLESSINGS FROM GOD TO EVERYONE! LOVE AND CARING IS THE KEY!

kimaurk
01-29-2007, 06:37 PM
I am so glad for you!! I pray all things go well for you:smile tee
I can't imagine how some people do it without having a doc that recognizes and know what IC is. How you keep on till you find the doc that is bright enough to find out the truth behind it all. I was very fortunate in that ever since my hysterectomy 2 years ago, I ended up with a doctor who was able to pinpoint and figure out I had IC when the pain intensified after my surgery.
Kim

dodgewoman
01-31-2007, 11:02 AM
Congrats to you!!!! I understand. I went through 7 freakin' years of pain b/c every said that nothing was wrong with me!!!! I finally found a wonderful wonderful doc. that finally justified me. TG for good people!

Sarojini
01-31-2007, 11:06 AM
I am so happy that you finally found a doctor that is going to help you :grouphug: :)

Berkshire Road
02-03-2007, 11:16 AM
Nine years of being told I was a headcase...

Curlyfries, I'm so glad to hear from you, and didn't I tell you that you were due for some good luck?! :woohoo:

So now you're going to be an activist. All I can say is ... you GO, girl!

Peace,

Trishann
02-03-2007, 12:22 PM
Curlyfries, you are an inspiration, you did it, you got the help you deeply deserve. :woohoo:

Trishann