PDA

View Full Version : Depressed and tired of dealing with all this


Ann228
01-27-2007, 06:51 AM
I have been getting very depressed lately as it has been very slow progress in treating my pain. I have IC/endo/VV/pelvic muscle disfunction. I had such horrible exerience in past with MD's staff. Have been told by two different NPs that since I didn't respond as expected to their treatment I was imaging all this. After these ordeals, I did not want to see anymore docs but my husband nagged at me til I agreed to see one more. I feel very hopeless and am afraid my current doc will drop me like others in the past because I have had such slow improvement . I get very nervous and anxious when I have to go to MD. Blood pressure goes up and I start shaking. I am afraid to tell my doc about depression or ask if he can increase elavil to see if that helps. I don't want him to think I am a mental case and stop treating me. Pyridium plus helps my bladder spasms, but I used all thirty pills he gave me back in July and I am afraid I will be called a drug seeker if I ask for more and he wom't see me anymore. I need some advice on how I can ask him for these things? Another problem I have is the NP there is very rude and hateful if he asks her to give me a coctail. She treats me like I am a real problem and a burden to do this for me. She is pleasant to me in front of the other staff, but is very hateful when in the room alone with me. I would rather hurt than have to face her again. Any suggestions about how to handle this situation?

I also had a situation at a uro my doc insisted I see because I had a lot of blood in my urine and I have a history of UTI's. I went to see uro even though I dreaded going. He was nice and wanted to do office cysto just to make sure I didnt have cancer or something. I told my doc this during followup. He was wanting to do cysto/hydro on me again and sent a letter to uro to ask if he could just do that instead of office cysto. My doc didn't want me to have to go through two procdures. The problem started when I called to cancel office cysto til heard back from uro. Lady that took call was very nasty and rude. She got irrate and wouldn't cancel appt. even though it was still almost a week before. I explained what my doc said and about the letter to uro and that made her even more hateful. She wouldn't let me cancel and told me to call back next day. She said she was going to tell uro about me!. I called back next day and she cancelled the appt but said very threateningly that some one from the office would be calling me about this!! Over a week went by nobody called so I figured matter was over. My doc could just do cysto/hydro. Well uro called me Thurs but I was sleeping (work night shift). Hubby took message. Uro said he was calling about cancelled cysto and he had talked to my doc about me!! Also said I needed to call him back. He was gone when I called back but nasty lady told me call next afternoon. Luckily nicer lady answered phone when I called and left message for him to call me Mon. I really don't know what to say to him when he calls? I am so upset he called my doc before talking to me. Any suggestions on how to handle this situation?
Also have been having other medical issues: legs swelling, rash across cheeks and nose won't go away, knee and hip aching and joints on finger and toe swelling. I guess I need to see a GP but am afraid I will again be told I'm making things up even though you can actually see these problems. I do not know how to get over this horrid complex. I went to see psychologist before when I was told all my pain was imaginary. The psychologist said I was a medical case not mental but did help me in dealing with chronic diagnosis. I would go back to see if could help me with doctor issues but am afraid my doc would find out. I don't want him to think I am a nutcase.

Sorry that post so long but am tired of dealing with all this and don't know what else to do. I would so appreciate anybody that can give me advice on this. I just find this all so confusing the way docs and their staff act. I am a nursing supervisor and I make it clear to the staff they either treat the patients kindly or they will be out of a job. Our manager expects the patients to be treated respectfully no matter what!!

Sarojini
01-27-2007, 07:49 AM
I'm so sorry you have been treated so badly by doctors and their staff. Unfortunately it's all too common -- a lot of us here have had similar experiences. :grouphug:

Please know this is NOT all in your head. The symptoms you describe are very real -- and you DO need to see someone about the new ones. The rash across the cheeks and nose is a bit worrying as it can signal lupus; I'm not a doctor though, so you need to see yours again :grouphug:

Finally, Pyridium Plus should be pretty easy to get from your doctor -- just ask and see. If he refuses to prescribe THAT, then it is definitely time for another opinion. I know you're sick of seeing doctors, but don't give up. There ARE good docs out there even though they are hard to find!

tigger_gal
01-27-2007, 02:58 PM
:welcome: Hi there,
Tie a not at the end of the rope and just hang on, you have found us, and believe me when I tell you, you will find a wealth of info within these pages. You will meet people worse off and better then you. But we are all the same and respect each other and how we feel.. We have all had the its in your head and hoped from doctor to doctor..
You will be ok, things can only get better... remeber what don't kill ya makes ya stronger.. I should be able to lif my house up any day with all my strength.. :lmao:

Ann228
01-29-2007, 11:01 AM
Thank you both for replying. I have read just about everything on this website and find the info very helpful. I think I will just see if I can leave a note for my doc when I see the PT this week telling him never heard from uro, frequency/urgency getting worse and see if he will just go ahead and schedule cysto/hydro. Uro never has called. I know they are busy people, but why can't a doctor at least have someone call and say he will call as soon as has a chance. It might cut down on calls if they at least had someone acknowledge he got the message. I had several people tell me to write down what I need from doc for next visit and be polite but very blunt. As far as NP, a friend told me to be very nice but outright tell her I get negative vibes from her and ask if there has been an issue that offended her. Again thank you so much for replying. Hubby has been main support but I think I need to take some of that burden off him.

Lenee
02-04-2007, 10:31 AM
Ann,

I think we can all atest to the many and I mean many docs we have seen. It took me many years to get diagnosed with IC. My best advice to anyone with their health is to realize they are in charge of their own healthcare. It is your life and if you're not satisfied with the service you get from a doctor or his staff then I say move on, they are not worth their pay. I do take into consideration that everyone has a bad day and their offices are really busy but once you've found a doctor that you feel comfortable with you will know the difference. If I hadn't have kept searching I wouldn't have found out about IC, I didn't fit all the symptoms so even my primary care doc didn't think of it, and I really like him a lot. With that said though, he was supportive of me continuing to search out doctors to explore all possibilities of my pain and never made me feel like it was all in my head. I have seen a doc that made me feel that way and quite frankly that was the last time I went to him. Now the whole thing about not wanting to see "yet another doctor" is so familiar and is so hard to get beyond sometimes but what I have found to help is to make a list of my symptoms, my meds and all my history on a separate piece of paper that I just refer to when they give you that long list of questions for every new visit. Also remember for every doctor that doesn't understand there is usually one out there that does. Another thought is to get suggestions for docs in your area from your local IC group, I find word of mouth to be the best reference for a doctor for me. Just remember not everyone's personality is the same though so not everyone will like one doc's style like another, we are all different. Please don't give up on getting help, you deserve it!!

Lenee

Ann228
02-07-2007, 02:15 PM
I really appreciate your advice. I used the word of mouth approach for finding a new family doc. I am going to make appt with one I got very good remarks about from many people at work.
Uro turned out to be very understanding after spoke with my doc and is going to do cysto/hydro under anesthesia. He was very reassuring that he would not leave me in pain. A couple of coworkers suggested letting office manager know if I have a continuing problems with staff at any doc. offices. Suggested most people just put up with bad behavior of staff and doc/office may not be aware there is a problem.
Again thanks for your advice. I feel much better. I keep reminding myself that I am not alone in my experiences. I also realize that doctors are like what my mom told me about men: there are plenty of fish in the sea, you don't need to settle for the first one you catch.
Again, thanks for helping me out of my mood and getting me to think a little clearer.

tigger_gal
02-07-2007, 03:01 PM
when areyou going infor the hydro? please ask himfor something for pain for afterwards just incase. you may flare a bit afterwards.
good luck and do keep us posted