Grrrr. My Doctor makes me so mad.....Can someone help?

[leelee88]

Ok I need some advice,

I have been doing really good on Cymbalta and Elavil, But I am having some breakthrough pain..I usually take a half of Lorcet Plus and it goes away and does not happen again for a few days... But I ran out of the lorcet and the doctor will not prescribe me anymore, I dont understand..

Now since I have no pain meds my pain is getting out of control..I called my uro, but the doctor will not give me anything, but yet he says now let me know if the pain is getting out of control, because if it gets out of control its harder to calm it down and takes longer....So I let him know its OUT OF CONTROL...and he says well thats just part of IC and I am not going to give you a narcotic, because you can become dependant on them...:cussing: I dont think a half of a lorcet every now in then is going to make me a dependant drug addict...Im just so mad....Oh yeah I have Ultram, but there useless, because you cant take them with Elavil.........

Could anyone tell me what I have to do to get into a pain clinic?
and didnt I see somewhere on here that they have a list of clinics ..?

[waterflow]

Ronda, Ugh. :mad: Another doctor who won't give out pain meds. What on earth do they even make things for? Most medical people do not want to give them out. Oh, and I don't believe everyone gets hooked on them. i've been taking mine for a while now and if I don't have it it's fine. Sometimes I forget to even take the thing and I'm not banging down the doc's door wanting more. Ultram for me did nothing by the way. I don't know what to tell you with pain clinics. Haven't been to one but I wanted to say I hope you can get through to one of your doctors, or find another one, and get some pain relief help. :grouphug: Goodness, you have enough on your plate. They should let you have some pain relief it seems to me.

[leelee88]

Thanks Waterflow for the hugs, I really needed that.. :smile tee

I just feel so helpless, I can always tell when my pains out of control. because I start thinking things I wish I could do to my Uro, Like just going up to him and kicking the crap out of him and say noooo.... That dont hurt, Its just a part of patient ****** off syndrome, something you are going to just have to live with...hehehe:evilsmile

[waterflow]

You invented the PPSO Syndrome. :biglaugh: Now all you have to do is market it. ;)

[Kara29]

Ronda,

The ICN has a great list of providers...

This has a list of Pain Mangement Clinics by State. If you go all the way to the bottom right hand side of the page you can type in your State and Info.

http://www.pain.com/

Do you have an IC Specialsit or have you seen one yet?

http://www.ic-network.com/md/doctorlistings.html

There is also a list by State of Pelvic Floor Doctors:

http://www.ic-network.com/md/ptlistings.html

I hope you find someone SOON to help relieve your pain!

Kara:angel:

[ICNDonna]

I just checked my list and it didn't say you can't take both ultram and elavil; I suggest you ask your pharmacist or doctor about taking the two.

Ultram is a very effective pain reliever for me.

Donna

[Trishann]

Ronda the doctor that gave you the Lorect Plus can check your chart and see how many the doctor gave you and how long it last. Just like the vicodin my doctor give me 3 times a day but I only take it one daily at night and seldom during the evening, then when I get a refill he can tell I'm taking less then what he orders by looking at the chart and see the date he gave me the RX.

If the doctor tells you, you are addicted prove her/him wrong, make the doctor check your chart.

I don't know if this helped you or not but I thought I let you know.

Hugs, Trishann

[leelee88]

Thanks Kara, and Donna for the info...

Donna I called the pharmacy and they said taking ultram with elavil and cymbalta could make you have siezures, thats why im scared to take it..

Trishann,

The doctor gave me the lorcet after my bladder ruptured, he only gave me 20and that was in Nov 2, so that just proves I dont abuse them, because I just ran out.. I would only take a half of one for breakthrough pain.
When I talked to him yesterday, he said he would not give narcotics for bladder pain, He said it makes things worse (bull) that was just an excuse, I really just dont understand. I also talked to my GYN and ask her if she could give me something, she knows I have endo and IC and vulvadynia, all she said is to up my elavil,, now thats funny because 25mg knocks me out, I would be a zombie on 50mg..I am just so confused, both doctors have told me not to let the pain get out of hand, because then its harder to get it under control, How do you get pain under control if they wont give you pain meds?

[Babs RN]

Ronda,
Oh, have I been in your place soooo many times. I have heard the same lousy excuses for not prescribing pain meds too. As a patient, you have a right to pain relief. If this ya-hoo flat out refuses, turn him in to whomever is the "patient representative"(hospital speak for mediator). Suffering is just not fair and if you are able to make 20 last for 3 months you are certainly not abusing the med. Good grief!

Hugs,
Barb:smile tee

[leelee88]

Thanks Babs..
I am ready to go over his head, I have one more person to ask about pain meds, thats my gp she knows I have IC and endo..If she fails me then I am just going to have to change doctors..

You know I didnt have any pain, until I had the cysto/hydro and my bladder ruptured, so even if my uro does not prescribe pain meds to his reg patient he should take in to concideration that I just dont have IC or endo, I am a complex case who will never be able to have another hydro done and that my bladder is still healing from when it ruptured..and hes the one who ruptured it!!!! Think I need a lawyer...lol not a doctor....

[waterflow]

Ronda, I didn't know your bladder ruptured! I must have missed your posting of it. Good grief!! What is wrong with him! He's the reason you are in pain. Maybe mention that to him and give him a good reminder! :mad:

[leelee88]

Yes Waterflow,
I dont like to talk about it to much, because I dont wont to scare the newbys, and it is very very rare to have this happen..
But on Nov 2, 2006 I had a hydro/cysto.. and after the surgery I was in so much pain, screaming and crying.. the nurse said it was normal and told me I needed to go pee, so I could go home.. I begged her to get my dr. she said they could not locate him and sent me home..well about 2 hours later, I thought I was going to die. My stomach had swelled up and it look like I was 6months pregnant, My husband rushed me back to the hospital, where they confirmed it had ruptured, I stayed in the hospital for a week and then was sent home with a catherter and had to leave it in for 14 days...It was a nightmare, also why I was in the hospital, I had an reaction to the meds they were giving me and went into convulsions... whew that was rough, I thought for sure I was dying...

[Trishann]

Ronda, he is the one that gave it to you in the first place because of your bladder. He is contradicting himself. I would ask him again and tell him you are really in so much pain and this medicine did help with the pain. Tell him you can't bear it, it is making you miserable. Also tell him that if you up the dose on the other medicine, it makes you drowsy to much. If he don't help with the pain issue, I would definitely seek for another doctor. I lived in pain for over 20 years and I definitely would not let a doctor overlook a pain issue I have again.


When I hear doctors do things like this, it reminds me of what someone said here on this site. " I would like to kick the doctor, you know, where it hurts, and continue to do so, and then tell them to deal with it.

I don't know if something is going on about these drugs or what but it seems like doctor are refusing to give out pain pills. I hope we don't all give up and quit fighting, because without these pain pills, most of us, cannot have some life. These pain pills are what safed my life. I wish these doctors that don't understand about IC, would educate themself about IC. If they do understand, they simple don't care. Not all doctor are like this, there are good doctors out there that do care about the pain issue and will help you.

Ronda I hope you get help soon. My heart goes out for you.
Sending hugs, Trishann :pray:

[leelee88]

Thanks Trishann,
Oh im not going to give up.. Im mad as heck...He will either treat the pain, or I will have to remind him, why I am in so much pain, because of my bladder rupturing, If he would of tested my bladded capasity before he done the destention. He would not of over extended it.....Its his fault, because like I said I didnt go to him for pain, I went to him because of the urgency... Hes the one who suggested the hydro, I even told him I didnt feel right about it, but he gave me his word I would be ok...well im not!!
Now I have pain...So he needs to help me...

[Moonheart]

I think you need to remind him why you are in pain and then tell him if you run out of options you may need to consult your lawyer.

[kimaurk]

That sounds like a very viable option. I can't fathom what could happen in a lawsuit of this nature. Remember though that if you are going to threaten, you should be prepared to follow through. Comments of this nature could be perceived as blackmail.

[SandyRN]

This is the same doctor that ruptured your bladder and he won't give you pain meds??? I did read that right didn't I? I definately think he needs a reminder of what he did to you and the reason you are in pain. He has no right to withhold pain control from you, especially since he caused the pain in the first place. It's SO rare for that to happen....I think you might have a very good lawsuit on your hands! Not that I think lawsuits are the answer for everything, but in this case you deserve at least to be treated for your pain!

Unbelievable!!!!! :rant:

[leelee88]

Sandy,
Thats all im asking for is just some relief..When I talked to him yesterday he said he would call me something in.. You know what he called in?..lol He called in Peridium and Detrol La..I told him I already had peridium and im already taking Enablex..My bladder is not having spasms, I know the differance, its pain, you know like sticking a ice pick in you pain...I dont know what else to do...He was the main one who told me I should never let the pain get out of control, because its harder to treat when your pain gets out of control, so I dont know what to do...

I wish he understood, I would NEVER abuse drugs, Thats how my kids dad died.. Im sitting here crying because this just makes me so mad..I know what drugs can do to a person, I would never put my kids through something like that again.....

Thanks all again for your support.. You all are so great!!!

[Trishann]

Ronda, just thinking about you, I hope you are feeling alittle better than you did.
I know Grrrrrrrrrrr, I wish I could do something about this situation. Hope you are able to get this doctor to understand soon.

Sending hugs, Trishann :pray:

[Elle]

Ronda,
I'm sorry you're going through all of this. I did want to share with you that I've been on elavil, Cymbalta and Ultram all at the same time without any bad side effects. My Dr just said not to take the elavil and ultram any closer together than 3 hours. Of course, you need to do what's right for you. I just hate to see you hurting so much.
If you still don't feel comfortable taking the Ultram, this is what I used to do when I didn't have pain meds, but was taking the elavil and cymbalta...I'd take 600 mg of advil liquid gels (3 liquid gels) and 1,000 mg of tylenol at the same time (the regular ibuprofen causes flares in lots of people, but I've found that the brand name advil in the liquid gels does not, at least for me anyway). And, then repeat it every 6 hours. It really does help a lot, and is a lot better than nothing. I just really hate to see you in so much pain. I think many of us have been where you are, and it's not a good place to be. Hang in there... :grouphug:

[leelee88]

Thanks Trishann, Your suuport means so much, just knowing people cares helps:) ..

Elle, I am going to try the Ultram, thanks for the advice..I take the Elavil at night, so I will just take the Ultram around 10 in the morning..Thanks again for the advice:smile tee

[pingpong]

Be careful with Tylenol - too much can damage your liver.

[Elle]

Typically a person can take up to 4 grams, or 4,000 mg per day. If you take 2 extra strength tylenols every 6 hours, you should be fine. But, of course, it's not intended for continuous daily use.

[tkdrew]

Hey! I hope you're doing better. If you're not, you should go to the ER. Tell them everything. I've known of ER doctors calling your regular doctor and scolding them for not treating you. Even if they don't call him, you will get some sort of relief. I hate for you to have to go the ER but NO ONE deserves to lay in pain. While you're at the ER, ask the doc if he can recommend someone else to treat you. What do you have to lose? Good luck. You're in my prayers!
Kristi

[tlksalot7]

Rhonda,

I know how you feel too ,, i cant get any doc to help me with the pain ,, no one wants to prescribe narcotics they say its not good for ic,,, so what the heck our we suppose to do when it gets out of control and i can barely work anymore... Im just as confused as your are ,, they tell us we have a very painful chronic disease and yet wont give us nothing for it,, hopefully we will get help sometime,,,, christy