Interstim is coming out! I think on Friday!

[Kara29]

After all has been said and done Today, My Interstim is coming out. I just got off of the phone with my doctor in Boston. It was an upsetting conversation because he told me that he didn't understand why I could not find a Urologist here in Syracuse to remove it. He knows my whole story and how hard I have struggled to find professional, competant, caring doctors to take my case. I told him that it was only right that he remove it because he was the doctor who put it in for me. I've been nothing but loyal to him for 8 years now! He hemmed and hawed over it for a few minutes and then agreed to do it. He said he wanted it out soon if I was in so much pain. I mentioned that it would take me years to find a doctor elsewhere to do it for me. He said he didn't think we would want to make the 5 hour drive and that it would be a hassle. Not in our opinion. We'd rather do that then wait a year to find someone else to do it.

He asked me if I could leave Syracuse tomorrow to have the Interstim removed on Friday. IF HIS SECRETARY AGREES that it can be done then. He said he just had a cancellation today for that time slot and that I would fit in perfectly.

So if the secretary says its a go: I will be leaving tomorrow afternoon/evening for Enitire Interstim Removal. He said it would be done under General and would take 15 minutes.

I am so tired! But this needs to be done. I just hope it works out. I know how some secretaries can be about scheduling last minute surgeries.

Thanks for your support! You all have been so good to me this week and I really appreciate it.

Love and Hugs,

Kara:angel:

[ICNDonna]

I'll keep my fingers crossed for you. And I sincerely hope this will help your back pain so you can sit.

Warm hugs and prayers headed your way,
Donna

[tigger_gal]

I never knew you had the interstim.. Keep us posted on how things go for you. no since of keeping it if it isn't working.

[ChrissySunshine]

Hi Kara, What wonderful news! I hope that secretary gets its scheduled for you. I used to schedule surgeries, and it would drive me CRAZY when the doc wanted to do an "add on" or unexpected surgery. Since HE was the doc though, it was up to me to work it out with the hospital, lab and patient to get it all done, even immediate surgery. USUALLY what the doc says goes, and if he's got a cancellation, it shouldn't be a problem. Good Luck to you!

[dancemomof2]

:pray:

[aprilmae]

Yippee!!!! Good news at last. I am so happy for you and so glad he finally got back to you.

[Emma's Mommy]

have a safe trip and a speedy recovery!

[SharonA]

Hope this works out for you and relieves that back pain. :)

[Bessie]

I am so glad the doctor finally agreed to help you out. He should be the one to take it out since he is the one who put it in. It always amazes me how willing doctors are in the beginning to help and then when they can't figure things out they get frustrated and don't want to do anything.

I am sorry you have to drive so far to get it done but I know it will be worth it. I pray this will get rid of the pain you have been in.

Have a safe trip and when you feel better please let us.

[Judith56]

Good luck tomorrow:pray: . Hope this ends a lot of the pain you have, though I do realize it is not the whole problem, just a part of it. Is it same day surgery or will you need to stay in the hospital over night? I will be thinking of you tomorrow. Sending you a big hug, Judith

[Moonheart]

It's amazing how much pain those can cause. My dad had one and it was shut down for a few years because he became tolerant to the meds. But anyway, he was in excruciating pain daily, couldn't sleep, was swelling everywhere, had sores on his skin.

Anyway, they removed it and it was just filthy. It had created some sort of reaction to the implant all around it and developed scar tissue, mucus, unhealed tissue, all sorts of stuff in there and it had literally been poisoning him that whole time. No wonder he had been in terrible pain! Yuck!

So, thank God you are getting it removed, I hope it solves alot of your pain issues and you feel well afterwards. :)

[Kara29]

Everything has been set for tomorrow in Boston. The pre-op has been done; the pre-admission testing has been completed. I just need to meet with the Anesthesiologist before I go in. I am scheduled for same day surgery but if things don't go as planned they will keep me overnight. I will be Interstim free by Tomorrow night! I hope this helps the back pain. It's been rough! I am NOT looking forward to traveling 5 hours. I will have to lie down in the back seat. My parents took off of work to take me. I am grateful that I have them and that they are so supportive!

Thanks for your support!

Kara

[DebbieB]

Hi Kara ;

I wish you all the best and hope that this surgery goes fast and you have
a speedy recovery as well ..
I will be thinking of you Kara..

So sorry that you have been through so much Kara ..
My thoughts and :pray: are with you Kara.

Tender hugs, Debbie

[Mel53H]

Better days ahead, Kara. I will be thinking of you today. Hang in there.

[Emma's Mommy]

kara have a safe trip! if you need anything when you get back let me know!

watching me limp around with my broken toe will give you a good laugh if nothing else!

have a safe trip!

[ICNDonna]

I'll be thinking of you.

Donna

[marymove]

I will say a prayer for you-Godspeed, Kara

[Sarojini]

Good luck, Kara!!!!!

:grouphug:

[Bessie]

Glad you got it all set up for tomorrow.
Please let me know how you are doing. I am praying for you and I pray that you get some much needed relief :pray:

[Kara29]

Thank You ALL for your kind words and support!

I am all settled in my Hotel and resting. I am nervous about the Anesthesia. I am afraid they won't believe how hard it is to put me to sleep. I really don't want to wake up, no matter how short of a surgery it is. My Parents are standing behind me on this. My Dad is not going to let them take me in until they are fully aware of the anesthesia awarness. I always get scared of any surgery since my fall out in May of 2006.

I pray that it's over and I am in recovery soon!

Love and Hugs to you ALL!

Kara:pray:

[ICNDonna]

You have lots of people rooting for you. I'll be anxious to hear from you when this one is over.

Sending gentle hugs,
Donna

[Trishann]

:woohoo: :pray:
Sending hugs, Trishann

[ICLori]

Wow, Kara, this is great news!!! I am so excited for you! Good for you for sticking to your guns and insisting he treat you! Oh I will keep you in my prayers! I wish I would have logged on earlier, yesterday was my volunteer day and I didn't get out until after five, and then we went out to eat (Indian food, it was really good!) and then I didn't get home until almost 8 and I was so tired I just went right to bed. Then today I have been running around like crazy. So I just saw this now.

Oh, I hope so much this will end the pain! It would be great if the nerve block worked for the urethral pain, then the interstim surgery relieved the back pain so you could feel much better!

Woo hoo!

I'm so excited for you!

Oh, you are going to think I'm such an idiot when you read my PM to you, because I wrote it before I read this message, d'oh!

Blessings,
Lori

[humpieumpumkin]

Curious to see how your doing Kara! :angel: I hope it went well, and you are feeling decent! Keep us posted when you feel up to it!:smile tee

[ICLori]

Just talked briefly to Kara, she made it through the surgery okay (woo hoo!!!) and she's maintaining a positive, hopeful outlook on things!

(I forgot to ask her, but I hope she won't mind me posting that she made it through okay. I know everyone was hoping just like me she'd be okay!)

Blessings,
Lori

[aprilmae]

Thank you Lori for the update!

Wonderful news Kara!!

[tigger_gal]

hope everything went well..

[ihurttoo]

This is great news! I hope that this gives you much needed some pain relief! I am sending you a PM. Love, Amy

[Mel53H]

I hope everything went well, Kara. I am thinking positives thoughts for you.

[Kara29]

I just wanted to say a quick Hello. I am back at my Hotel and working on resting. The surgery went well and I stayed asleep. This hospital was great with everything! The wires were buried and took him some maneuvering to get out. I am not surprised, after all it was in there for 7 years! I am glad it's out.

I am not looking foward to the drive home though. I will be happy when I am back in my bed in NY. I hiope I recover well and move forward with my PNE diagnosis. Just had to pass a speed bump along the way. Praying that I will be able to sit when I heal. Trying to stay positive but know that miracles are hard to come by lately....

Kara

[tigger_gal]

glad everything went well.. Have a safe trip home.

[ihurttoo]

Kara,

Soo glad that the surgery is over and the interstim is out!!! Hope it brings you some relief from the terrible back pain. Be careful going home. Hope you are able to sleep thru the trip! Hope you feel better soon!

Love,
Amy

[Emma's Mommy]

Im glad everything went well!!!

[SharonA]

I'm glad you made it through. I am keeping everything crossed that will cross that this will help. :)

[Bessie]

I am so thankful that the surgery went well and you did not have any problems. That is wonderful. I hope this stops the back pain you were having and that you have a speedy recovery.
Take care :)

[sandramac]

Kara
OMG, I had no idea you were having all this done, Im so happy to see all went well! I have been very busy at work & have not been online to see whats up, Hon Im so sorry, I did not know you were going through this.I will call .When will you be home?
Sending you love & hugs
Sandra & family:cat: :cat: :cat:

[Mel53H]

I wonder how Kara is doing today after the road trip and all? Anybody hear from her today??

[sandramac]

Hi all.I did call Kara about half a hour ago.She just got into the door.She had to lay in the back seat all the way home & was in alot of pain, It was the longest 5 hour for her, She said she could not talk long.Very Understandable ! I told her to not worry go and relax , And I will call her tomorrow night. She is such a amazing woman, this girl has gone to hell & back.And still keeps her chin up ! She is such a angel:angel: .I value her friendship so much! Rest well Kara .I will call you tomorrow , Hugs to your family as well ! All the support they give you is amazing !
Love Sandra & family:cat: :cat: :cat:

[Kara29]

The car ride home was a nightmare. We ran into a snow storm and it took us an hour and a half longer to get home. I was in the backseat praying that the trip would be over soon.

The pain from this Interstim Surgry is worse than the pain I had when I had my whole entire bladder reconstructed, urethra removed, and Indiana Pouch made with a Stoma.

I can only lay on one side and that gets tiring after awhile. I can take Vicoden but it makes me extremely jumpy at every little noise and it upsets my PNE really bad.

I seem to remember that when I had the Interstim placed it took me 3 weeks before I could sit again.

The pain I was having in my back is exactly where the 2nd incision is which tells me that the Interstim was what was hurting me. Process of Elimination I guess.

I am standing to write this, so I will go for now.

I wanted to again thank you all so much for your love and support! I am not done yet. Trying to get there though and your words are so helpful!

Love and Hugs,

Kara

[sandramac]

Hey Kara
I called today when I got in but got your machine, Hopefully you are resting comfortably ! Just wanted to see how you are today.
Love & Hugs Sandra& family:cat: :cat: :cat:

[Judith56]

Glad you got it over with and that you did have any bad experiences with the anesthesia. Hope the next step for you does the trick. Hugs, Judith

[Bessie]

Just wanted to say :hi: and to let you know that I am praying for you :pray:

[Emma's Mommy]

how are you doing now that you are home?