bucketybuckety
01-21-2007, 03:51 PM
Hi,
I know from what I have read so far, patients w/IC often seem to know more than drs about what IC is really like. I would like to give my story to you all; any input would be exceedingly valuable!
*I've been prone to UTIs my whole life, but generally was able to flush them out on my own--my family was too poor for dr visits :(
*I got married 1.5 yrs ago (am almost 20), and UTI frequency has increased, although I hear this is expected. I am taking every precaution I can think of!!
*In August, I got a really bad UTI, finally went to see a doctor, and got a scrip for Septra (am allergic to amox). I turned out to be allergic to Septra, then tried Cipro and it didn't work. Then macrobid; didn't work. Then Levaquin; (kind of worked). Each time, there was a minimal amount of bacteria in the culture--the dr. was getting tired of me coming in with UTI symptoms, I think, so finally she prescribed Levaquin as I mentioned, and boy was that expensive for a college student, even at Costco! But mild discomfort during urination lingered.
She suggested that because they could barely find any bacteria, and I don't respond well to antibiotics, I might want to look up something called "interstitial cystitis." (And see a urologist...ha...like I can afford that.) Well, I have read about IC, and am totally freaked out. Right before and all the way during my period I have had the most awful pain, and have been living on pyridium. I am afraid to eat anything, hearing how symptoms can be diet induced.
Do you all think I have IC?? Also, the drs say don't take pyridium for more than two days. Is there any good reason why I shouldn't? Like, will it cause immunity to it, or a bad reaction. Also, I am on Ortho-Cyclen for birth control. And since I am baring all, these things may be random or not, who knows, but: I have an odd hip formation (displasia of the symphisis pubis) and was born without a clitoris. Strange, huh? Well, your input is worth its weight in gold to me.
God bless you all.
Rachel
I know from what I have read so far, patients w/IC often seem to know more than drs about what IC is really like. I would like to give my story to you all; any input would be exceedingly valuable!
*I've been prone to UTIs my whole life, but generally was able to flush them out on my own--my family was too poor for dr visits :(
*I got married 1.5 yrs ago (am almost 20), and UTI frequency has increased, although I hear this is expected. I am taking every precaution I can think of!!
*In August, I got a really bad UTI, finally went to see a doctor, and got a scrip for Septra (am allergic to amox). I turned out to be allergic to Septra, then tried Cipro and it didn't work. Then macrobid; didn't work. Then Levaquin; (kind of worked). Each time, there was a minimal amount of bacteria in the culture--the dr. was getting tired of me coming in with UTI symptoms, I think, so finally she prescribed Levaquin as I mentioned, and boy was that expensive for a college student, even at Costco! But mild discomfort during urination lingered.
She suggested that because they could barely find any bacteria, and I don't respond well to antibiotics, I might want to look up something called "interstitial cystitis." (And see a urologist...ha...like I can afford that.) Well, I have read about IC, and am totally freaked out. Right before and all the way during my period I have had the most awful pain, and have been living on pyridium. I am afraid to eat anything, hearing how symptoms can be diet induced.
Do you all think I have IC?? Also, the drs say don't take pyridium for more than two days. Is there any good reason why I shouldn't? Like, will it cause immunity to it, or a bad reaction. Also, I am on Ortho-Cyclen for birth control. And since I am baring all, these things may be random or not, who knows, but: I have an odd hip formation (displasia of the symphisis pubis) and was born without a clitoris. Strange, huh? Well, your input is worth its weight in gold to me.
God bless you all.
Rachel