Skin Pain Lupus/Fibromyalgia

[ad8123]

Help. I have had IC for 31/2 years and this last year disgnosed with Lupus and Fibromyalgia (I also haev gerd/acid reflu and IBS), and the pain is so bad my skin just hurts and burns even with a laundry list of meds and sometimes I am so sleepy that anytime I stop moving I fall alseep. Any Ideas for skin pain? Any clothing company that make super soft clothes it is so hard becasue I have to keep my skin coverd because of the lupus ( i live in fl and theflurscent lights at work also flare my lupus and bring out the rash> Any Ideas I am so desperate that sometimes I just can not leave the house becasue my clothes hurt tooo much

[SandyRN]

I'm sorry that you're feeling so badly right now. I'm in the middle of a Lupus workup and have follow up tests next week. My skin actually hurts sometimes too. Out of all of my symptoms, that is the one that people seem to understand the least. I wear comfy, soft, cotton clothes all the time. I seem to ITCH a lot even though my skin isn't dry. I also have fibro/mps/chronic fatigue, etc (the list is in my signature). I wish I had some answers for you, but other than washing your clothes with a dye free and perfume free detergent, I don't know. Light bothers me too....if nothing else I can definately understand your symptoms! Are you taking anything for pain now?

I hope you feel better soon!!!

[PlainJane]

Some of us believe that these conditions are related (IC, fibro, Lupus...) can be caused by a difficult to detect pathogen called Borrelia Burgdorferi. In order to rule this disease out you need to see a doctor who specializes in diagnosing it (usually infectious disease doctors are the worst at diagnosing it).

~plainjane