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annekatherine86
01-09-2007, 10:11 PM
Ohhh… college…. Boy….lol
Well the whole experience in general has pretty much sucked for me, which has made to grow to hate it. We start on the 16th, and I am not a happy camper. I’ll tell you a bit about how my “college experience” has been this far. First, for future reference, my school has an absurd attendance policy, in that the professor makes their own, and puts it in the syllabus. And according to the university, if it is in the syllabus, there is nothing that a higher authority can do regarding absences. Even if you are registered w/ the schools office of disabilities, the prof. has all the authority over attendance. The office of dis. pretty much tells you to avoid teachers with attendance policies like that. To which I have inquired as to why they do not provide a list of professors with ridiculously stupid syllabi. In other words, if the professor’s syllabus says that you can only miss three days regardless of whether or not you have dr.’s excuses, and if you miss more than that you fail, then the school won’t do anything. And you had better make sure you don’t miss more than 3 days unless you are dead. Pretty unfair huh? Unless they have recently declared them interchangeable, the processes of scheduling my classes and guessing-the-professors-attendance-policy are not the same thing. Oh, and in reference to the school recognizing IC as a disability and making accommodations, I tried that. The disabilities office told me the most they could do for me was let me potty during class, and that was only if the professor agreed. This was because, according to the person I spoke with (on multiple occasions), the school didn’t have IC listed as a disability, or whatever. Now, I think he just didn’t feel like dealing with it because it wasn’t something simple like having to have extra test time b/c I was ADD.
So my story goes a bit like this: I was diagnosed my senior year of h/s, but it didn’t bother me too much then, nothing like it does now. My first semester went well until I started with nausea and vomiting nonsense. I missed my final business exam because I was throwing up in the parking lot, and even after they diagnosed my stomach ulcers, he would not allow me to make it up. Strike One. Then the second semester came along. Of course, right before school started I got a cold, which lingered forever and eventually turned into bronchitis. The whole time I was sick ( a period of about a month since the cold began) I was coughing continuously, and about a week into the coughing and cold, my ribs started to hurt. To an extent, that is normal with severe coughing, but when I started hearing things pop, I got a bit concerned. So I went back to the doc for X-ray, which showed no broken ribs, of course, and the doc sent me home in tears with directions to “take some Aleve.” At that point, I decided he was an idiot. The coughing continued for a few more weeks and finally dwindled away. I was so relieved! About a week or so after my cough disappeared, it returned, only this time I got really sick, very quickly. So of course I dragged myself back to the doc, ( a different one this time) he did another chest x-rays for pneumonia, and just my luck, nothing showed up. He sent me home with a z-pack. That night I woke up with a fever of almost 103. The next day, I was back at the doctors office, which quickly became like my second home, and he decided to do some other test for pneumonia, I think a CT scan. Well, sure enough….I had pneumonia. This doc was a bit smarter, I think. Well, yes he is. I like him. All the while, I continued coughing; and with the coughing, came the popping and the tears. So I had another x-ray, but it didn’t show any broken ribs. Growl….more Aleve. Two weeks later or so, I had to go in for a check up, and when he pushed on my ribs, I almost kicked him in the face. Hehe… I thought it was rather amusing. It was like I was saying I told you so! And he had a kind of “oh, geee….maybe they do hurt” look on his face. After his close call to facial reconstruction, he decided to send me to have a test that is much more detailed than an x-ray, I forgot what this is too, but I know I was very radioactive. [This is off the subject, but after that test, I went to my dad’s office to eat crawfish, and he has this hand-held machine thing that measures radioactivity. So, just for laughs, they decided to put it next to me. Well, I was so radioactive, that it was off the chart. To which my dad, with his witty sense of humor says “I could be shut down for having you here!” So, I was the joke of the day! Lol I thought that was funny…] Anyway, this test showed that four of my ribs were broken. So all this time, which was probably about two months, maybe two and a half, I had been going to school with pneumonia and four broken ribs. My professors knew all of this, had talked to my parents, had the doctor’s excuses, and still REQUIRED me to bring my books to class, supported by a set of ribs, four of which were broken. And to top it off, after having missed close to 3 weeks of school, I was expected to take the exams I had missed the day I returned. I was ******! (excuse my language) I’m sure I don’t have to tell you, but at this point I dropped out for the semester. I couldn’t have passed with Einstein helping me. Oh, and the broken bones is how I found out about the osteoporosis. So the summer goes by, and in the fall I am in school, and going to class like the good little student I am. I was still suffering with the IC, but at the time it wasn’t complicated by 34928359 other things, so I was making it. Towards the end of the semester, I started having the pain in my right side again, which ended up being another cyst, but I sucked it up and finished the semester. After the cyst ordeal, it was one thing after another; pain and fatigue, a bladder infection, and the list goes on. All of this really disgruntled my bladder, so I ended up having to have another cystoscopy done, and was told the IC was worse. BUT, I remained optimistic, thinking that I could have it done, deal with it, and get through school. Which I could have, had my professors actually cared. Before the procedure, I told my professors what was going on, got what I would miss, etc etc, and still thought that I MIGHT ACTUALLY have a chance. Well, I returned to school, and went to talk to my English prof. the day before my class. You know, just to keep her up to date on everything, let her know I care and I’m not just a slacker, give her my excuse, AND to hand in a paper that I had written while I was out (and on pain pills). Let me say first, that I had already handed in 2 papers in this class and my grade at the time was an A. So anyway, when I told her that I was there to talk to her, and give her my paper, before I could finish my sentence, her response, and I quote, was “You might as well not waste my time or yours [by being there to talk to her], because you’ve missed 5 days of class, and only three are allowed. So, I’ll fail you anyway.” At that point, I was pretty much in shock that someone could be that cold-hearted, but I figured I’d drop the class and see what the others would say. She would get what she deserves eventually, maybe some ketchup on her shirt that day, who knows…. Well it ended in that the only prof. that worked with me was my algebra prof, and I could just thank him for the rest of my life. It made me realize that some people in the world do have a heart. The thing with my eng. Prof. and me missing too many days of class has pretty much been the story for all of the classes I have had to drop. That was just the worst one. I guess because of how she handled it, it stuck out in my mind a lot. That was last fall, and I took this semester off. And that is just one example.
Anyway, like I said, school starts in a few days, and I am going back, yet again. But I am prepared! Before hand, I was so used to it, I just took what they said and dealt with it. Not to mention I really didn’t think there was anything I could do. But now I realize that they can’t not allow me to get an education just because they have never heard of IC, and I am going to make that very apparent to anyone who tells me that I have to drop the class, they will fail me, or that if I leave class to potty I can’t come back. That is absurd. I am in the process of getting my stuff together to apply for disability, my uncle is my lawyer, and I recently found out that my dad and the VP of the university are good friends. I guess it just recently dawned on my dad that I should talk to him. It’s ok though, b/c my dad is a very busy man, so I understand he has a lot on his mind. So, for any of you who have actually read my short novel here, I have devised a plan of action, and if you have any ideas, throw them at me.
1) First things first, talk to all of them on the first day of school, as well as present them with a letter I have written explaining my condition and a letter from my uro. Even though this has failed ever other try. 2) If I have to potty, by golly, I am going to get up and go to the bathroom! And if they don’t let me back in class, I’ll probably make a scene. I’m good at that when it is called for, and I am just so fed up with all of this, it may be called for. I’m not saying I’m going to be ridiculous or anything ( I hope), but I’m surely not going to hold back from putting them in their place, whether it is in front of the class or not. I know you may think that is disrespectful, which yes, I could see how it could be. But every time I think about how many times I’ve sat in the hall waiting for class to be over so I could get my books, because even after knocking on the door they wouldn’t let me back in, and every time I’ve been asked to stay after class to “talk about my disruptions”, or been asked what “ I thought I was doing, getting up in the middle of a lecture,” I really just don’t care anymore. If it takes me embarrassing a few professors just to stand up for myself, than so be it. 3) If someone gives me trouble about missing class although they are excused, I’ll present a letter from my lawyer (uncle) concerning my condition, as well as it’s classification as a disability. 4) If all else fails…….. I plan to file a lawsuit against the school and whichever professor that decides I’m not worth their time, or that just doesn’t care. I’m pretty sure that would get their attention. This is just until I am approved for disability, which I know can be a long process. After that, they have to accommodate me or they won’t be funded. For as extreme as this may sound, I really don’t have any other options. I’ve done everything. It really is sad, and makes me want to give up, but I want a degree (I don’t know what in yet), and I feel that going in there this semester and not just standing up for myself, but taking action -- however extreme it may be-- is the only way to get what I deserve, not to mention what my dad pays for, and that is an education. I’m not going to let another semester that I invest all of my energy into go to waste. I took this past semester off, which I needed, so this will be fifth-attempted semester. Two of which I had to withdraw from, and the other three have given me a grand total of 16 hours! I feel like I’ve been robbed of the last three years of school. I could almost be finished. I don’t have to go to class to do well, and it shouldn’t matter whether or not I do go, especially if it’s medical reasons. How hard is it for people to just let me go to school and do well like I know I can do? I’m really sorry this is so long. I really needed to vent and get some feedback. If I am being unreasonable, please, tell me. I’m just frustrated and nervous. I just want to be able to go to school and learn. That’s all I ask! Really, is that too much to ask for?
-Anne Katherine

ihurttoo
01-09-2007, 10:58 PM
WOW! You have been going thru alot! It makes me so mad the way that university has been treating you! I think your ideas are right on! I say Go for it! Give him hell! IC IS a disability. I would print it off of Social Security's site and take it to them along with the letter from your atty telling them that if they dont start recognizing that, then you are going to proceed a lawsuit and some very ugly publicity in your local media and to every one who will stand still and listen!!! I mean the NERVE of these people!

Also, I wanted to mention, if you havent gotten a handicap sticker yet for your car, you might want to consider it. I know at my college, it was a HAUL from the parking lot to my classes!

I dont have one now, but I dont leave home much. But, if I were in your shoes, I'd definately have to get one!

I know you have been going thru alot, but I just have to add that I am so proud of you for going after your degree, in spite of the IC and all the obstacles they are placing in your path! You are quite inspiring to the rest of us! Kind of like when you hear about someone competing in the Olympics with one leg or something and winning! Your parents must be very proud! If you were mine, I'd bore the butt off my friends by telling them how amazing you are every day!!! They'd be running when they saw me coming, saying, "Here comes Amy! Bet she's gonna brag about that kid again!!!" :lmao: And they'd be right!!:lmao:

Dont want to scare you, but I just have to say one more thing...have you ever been tested for Lupus? I ask this b/c you have several symptoms that kind of stand out to me...infections that are hard to fight off, pnemonia, kidney infections, osteoperosis, hypothyroidism, endometriosis, achyness, fibro, CFS, etc. I dont know, and I am probobly wrong, but something is just making me think you might want to be tested, just to be safe. For more information, or a better understanding of why I am concerned, take each of your diseases (past and present) and google "Lupus Pnemonia" then "Lupus Hypothyroidism", then "Lupus osteoporosis", "Lupus and endometriosis" and so on, and I think you will understand why I am concerned.

People with Lupus have a much greater likihood of having these than the general population. For example women with endometriosis are 7 times more likely to have Lupus than the general population. For Hypothyroidism, one site says they are 8 times more likely, and another says they are 7 times more likely to have Lupus. Almost every one of yours says something like that! Plus, the likelihood that you would have ALL of those, and most people dont, well, you see what I mean.

I have it, that is probobly why when I see someone with some of those things, it alarms me. Again though, I am probobly wrong. I really probobly am wrong. (But my alarams are going off just the same)But, to be on the safe side, I'd like you to be checked, if for no other reason than to appease me. But, to be certain, wait until you are sick with something to be checked. (I was checked twice and both were neg, but I wasnt sick when they checked me. This was for the LE prep test. However when they checked my Anti-nuclear antibodies, they have always been positive. The ANAs, tell if you have an autoimmune disease, but not which one. The LE prep test is the one for Lupus, as I understand it.That is the one that you need to be sick when they test you. My current Rhem told me this and found it. But, 2 other Drs did the test on me when I wasnt sick and it was neg. But, my current Rhem (at Vanderbuilt) told me that if I wasnt sick when I took the others, it wouldnt really tell them anything.

Again, I am probobly wrong! But, I think everyone should be checked anyway, and if I AM wrong, it wont hurt to be checked! :)

I hope school goes better this semester and you get more understanding Profs.

Keep up the good work! You make us all very proud!!

Many hugs,
Amy

lorihoss
01-12-2007, 10:34 AM
Go get them girl! You have a good plan, and the teachers should show you respect and amend the absent policy for you. Don't give up!

jjt001
01-12-2007, 02:01 PM
My only additional advice is to document everything! Any time ANYTHING happens that you feel is discriminatory related to your disability, write it down.

Also, I'm not sure if making a scene is the best way to go when you're not allowed to return to class, just because it may make the professors angry and embarrased and unfortunately, that may make them less likely to be accomodating in the future. However, if that situation comes up I would immediately write them a succint, non-emotional professional letter that outlines what happened and includes your paperwork regarding IC and your disability. Copy the head of the department, the dean of students, etc.

Good luck, I'm impressed with your drive to move forward! I think about trying to finish college with my IC at its worst and I just don't think I could. As the previous poster said, you go girl!

laurahallie
01-12-2007, 03:48 PM
i think you have a pretty good plan there... have you also considered writing a letter to the editor at your school's newspaper? that would be a great way to make the public aware of the school's blatant discrimination against you - and it might rile some people up (in a good way)!

Berkshire Road
01-12-2007, 04:18 PM
You poor girl; I am so sorry just hearing about all of these terrible struggles you go through just to try to get an education. In my opinion, an education is the most important thing in the world, so it's worth the fight, but you shouldn't have to have the stupid fight

I'd like to share a couple of experiences and a little advice. When I was pregnant in grad school (with IC but not yet diagnosed) I had two professors in the same semester who had bathroom policies. I'm thinking, "Every single student here is an adult. Who do these people think they are telling us we can't go to the bathroom?" One of the classes was three hours long! I talked to that prof, and he was adament about "no exceptions" until I finally just yelled out, "Excuse me, I have a HUMAN BEING sitting on my bladder. When you can tell me what that feels like, you can decide if I need to go to the bathroom or not!" He caved.

More recently I've been on the other side of the classroom, teaching undergrads at Rutgers University. There is no excuse for your professors' behavior, but sometimes from the prof's POV it's really hard. You're hearing so MANY different people's issues and problems and excuses that you never know who to believe. I taught 540 students at the same time (not, obviously, by choice), so pretty much every exam there would be 40 to 50 requests for makeups for one reason or another. I think it can help you to remember that the profs are people too, and they have a lot to deal with it. Maybe if you can try to look at both sides of the issue and discuss it with them that way ("I'm sure you have a lot of requests for special dispensations, and I'm sorry to add to your burdens but I have legal documents here..."), it would be easier to communicate. I don't know.

I do know some things that helped, both during my pregnancy and while I was teaching with really bad IC: 1. Get a handicapped placard. Some universities will give their own, only for campus parking, and they may be easier to get than a state one. 2. Get a rolling bookbag! I know I found every wheelchair ramp and curb cut along my usual routes pretty quickly, and that made getting to classes much easier. 3. Reduce your class load. Unless you need X number of credits for financial aid reasons, I would think you'd do better maybe only taking a half-load per semester. Maybe then you could finish your semesters -- so it really won't take any longer to graduate. And it doesn't matter anyway, really, everyone's journey towards their degree is different.

As a faculty, I didn't get much sympathy from my department either. ONE day in seven years, I could not make it to an exam I had to give. Couldn't do it. Couldn't even get to the bathroom without help, the pain was so bad. My husband went to proctor in my place, and my supervisor called me and reamed me out for 15 minutes, and told me if I couldn't handle the job I should quit. Last warning (no, I did not have tenure). So I quit and went on state disability, and now I'm looking at SSD. But that doesn't have to be your outcome.

I just want to tell you, no matter how angry, even justifiably, you are, in my University as in most, yelling at the prof in class or raising a scene is a violation of the student Code of Conduct, and will result in disciplinary action being taken against you. DON'T DO IT. The consequences will inevitably be worse on you than on the prof. I think it's normal in most universities and colleges for the faculty to have autonomy over their class policies, but they HAVE to comply with ADA and IDEA laws.

Print out the social security ruling that states that IC is a disabling condition. Bring it to your Dean and DEMAND accomodations. But try to stay calm. They see so many students, that if you start yelling, they'll just start thinking, "Oh, great, another nut case..."

I'm trying to give you this perspective because I really want you to succeed. I'm rooting for you. But since I have all this experience on the other side of the classroom, I hoped maybe it would help you understand the situation a little better.

Do something to calm yourself every day. Light a candle, listen to soothing music, meditate, whatever works for you. When you're engaged in so much struggle, it's important to try to keep your stress levels down, or else we all know what happens :)

Good luck to you. Keep us posted; I think a lot of us are interested to hear how it all comes out for you.

annekatherine86
01-18-2007, 04:58 PM
Well, I just thought that I would let you guys know, that I didn't start school. My IC got really bad all of a sudden around Friday, ( school started Tues) so I figured I'd go to my uro and miss the first day of class, but at least getsome relief so I could get off to an ok start. Of course, that didn't happen. Of course! Why would I even think it would? Anyway, I have a kidney infection..........so my semester is down the drain. Again. I guess I'll have to wait for summer school.

Berkshire Road
01-18-2007, 05:33 PM
Anne Katherine -- You are so determined to get your education, I know that you will do it. It takes whatever time it takes.

Sorry to hear about the kidney infection; I know how much they hurt.

I think you're doing the right thing by taking the semester off, but there's no reason you can't use some of your time to read books related to the college subjects that interest you (can you tell I'm a teacher? :) ), and maybe even look into some on-line classes. Your college advisor should be able to tell you whether classes from, say, University of Phoenix, will transfer to your school. The beauty of online courses is that you can go at your own pace. I know you'd probably prefer to be out there meeting other students and having a normal college life, but you can get a BA online. Phoenix is one of the most respected schools offering online degrees.

I'm so sorry this is so hard for you. Try to hold on. There are a lot of us rooting for you to succeed.

annekatherine86
01-18-2007, 05:42 PM
I looked into the college online thing, and I'm really thinking about trying that. At least for a few credit. I'm going to talk to my advisor monday about it. You don't have to worry about me...I'm a book worm. I usually read my biology and history books the the third week of school. Sometimes that gets in the way of studying, but once I start reading, i get so interested and I cant put it down. I know kidney infections can be a big deal, and I'm just happy this is mild. I was once hospitalized for 2 weeks w/ a kidney and blaader infection that was about thisclose to entering my blood stream. Thank you for keeping me encouraged! I'll keep you posted about the online classes deal.
-Anne Katherine :smile tee

kadi
01-18-2007, 09:06 PM
Hi Anne Katherine,
I think you've gotten really good advice from the posts already, but I might add one thing: it might be helpful to carry a few of the IC Restroom Access cards that define IC as a disability and state that it is physically impossible & painful to us to "hold it". It spells out the problem in simple language that a person with no knowledge of IC can understand. Maybe at the beginning of the term you could hand it to your professor & just say that you want your professors to understand that you mean no disrespect if you have to go to the restroom during class, that you will sit by the door to minimize disruption coming or going.

Perhaps a letter from your doctor stating that IC is a severe pain condition and that it may affect your attendance from time to time might be helpful as well.

This past summer I took a lot of classes online (professional development classes for teachers) & was very happy with how easy it was- no driving, no hauling books, no parking hassles, no fusses over restroom breaks or attendance, no silly group projects dependent on flaky people. If there's a way for you to get some credits that way, I highly recommend it.

Sending a hug & hoping you feel better soon. :kissing:

annekatherine86
01-18-2007, 10:38 PM
Hi Kadi,
Well I had all that planned out too. lol I ordered like 6 rr access cards because I tend to lose stuff.But anyway, I founf out tuesday ( the1st day of class) that I have a kidney infection, so my semester is shot. Oh well. Thanks for the tips

Berkshire Road
01-19-2007, 06:11 AM
Anne Katherine, honey, just please, please keep in mind that none of this is your fault, and I am so proud of you for your determination to keep learning. Feel free to PM me if you ever want some book recommendations (or want to share some); I am definitely a bookworm too.

I'm so sorry you have to deal with your cat's illness at the same time all this is going on. I have two dogs and I know how much your pet must mean to you. I hope she doesn't suffer.

UCSB
01-20-2007, 10:01 AM
Anne Katherine

Sorry to hear about the kidney infection, but just a few tips for when you are back on your feet. First, there is a web site (www.ratemyprofessors.com) where you can often read about professors BEFORE taking their classes. The professors are rated and described by students. If a professor is a jerk, it will be obvious. Highly recommended. Second, the disabled student office can usually get you registration priority. This means that you can be in the first group to register for classes. Essentially, this means that you can get any class from any professor. Finally, use ratemyprofessors.com to filter professors for your classes and then go and discuss the class with the professor on their office hours before you sign up for the class. If a professor knows you and commits personally to you, you will not have any problems. Professors are often people of high integrity. Last semester, I heard a story about a History professor that felt one of their disabled students was being poorly treated in the Computer Science department. He personally went to talk to the Computer Science professor to work out the problems for the student. They resolved the problems quickly. Now that is my definition of commitment. The student finished the Computer Science class with a small accommodation and earned an A. If the professor does not understand the concept of accommodation, ask them if they have ever heard of Steven Hawking.

If you are enrolled in a tough 4 year college and dread some of the teachers / classes there, you can work around these problems in many locations by taking the class(es) at the local Community College and transfering them. For example, say that you have to take an intro accounting class that is only taught by a problem professor. Just take the equivalent class at the CC and skip the problem. When you are just getting started, you can easily cut the difficulty of GE classes with this approach. Just make sure you talk to those CC teachers before signing up for their classes also. The disabled students office at the CC is a good resource. Just yesterday, I heard from a disabled student that took a music class in the winter intersession (14 class days in January) and picked up a GE arts requirement for 3.0 units quickly and easily. No homework and only one 2 page paper ... they picked up an A ... but, perfect attendance was part of that grade.

If your kidney infection means that you can not attend spring semester, you may be able to pick up some classes at the CC. They often have stagger schedules and classes that start / stop out of the normal semester schedule.

Good luck.

Berkshire Road
01-20-2007, 02:46 PM
I'm sitting on the other side of the fence (or maybe I should say, the lecturn), having been a college professor for more than ten years. I've been chiming in with my perspective regularly on this thread, and I just have to say a few things about ratemyprofessor.com.

I've been rated on that site, and so have a number of my friends and colleagues. And I would not call it reliable. A lot of students just go on there to vent after they get a bad grade. I'll give you a simple example (this is completely true), but everyone I know in academia has had personal experience with worse commentary than this:

One student's description of me consisted of these words: "She sucked. All she ever talked about was her son." I don't even have a son. And I'm not sure how much information "She sucked," really provides regarding my prospective attitude towards disabled students. Another student posted "Fatty." I had to laugh at both of those posts -- I mean, I'm old enough to be this kid's mother, why does he or she even spend time thinking about my weight (which is normal, BTW). We just look at it as a place for students to go to vent; no one I know, even among the students, takes it seriously. BUT:

My University always gives out surverys to students at the end of each semester, so they can rate the professor and the course. The ratings are compiled and posted on the University's own website. I see this data as more reliable because the majority of students in the class respond to the surveys. Ratemyprofessor tends to attract students who have a grudge.

I do agree with the suggestion about taking some classes in community college, but you need to check with your university first to make sure that the specific course you want to take at CC will, in fact, transfer to the U. That is generally a departmental decision, so if you wanted to take, say, a French class at a CC, you'd need to go to your University's French department ahead of time and ask. It is always true that four-year colleges set specific standards for credit transfers, even from other four-year colleges, and the main issue is whether the course content is sufficiently similar to the one you want to be credited for. The same is true for courses at on-line colleges. I hope this makes sense. If not, PM me and I'll try to be clearer.

Many faculty do not return to campus until just before classes start each semester, so it's not always possible to meet your professor in time to make a decision. But I never mind when students email me ahead of time with questions about the class.

How's the kitty?

annekatherine86
01-20-2007, 04:20 PM
okguys, i promise i am going to reply soon... i just have so much to say snd i don'tt time right now! mabey tomorrow! thanks 4 the support!:smile tee
-Anne Katherine