I'm in Remission I think!

[ICyuck]

I feel kind of guilty posting about being in remission while so many others are still suffering, but maybe posts like this will give hopes to the ones suffering that they will reach remission too. And the newbies will know too that remission is possible in many cases.

It seems the Atarax (Hydroxyzine is the real name I guess?) 25mg per day and Elmiron 300 mg per day (three pills per day) are really doing the trick for me.

The main inflammation for me for some reason was in the trigone area (base of the bladder and urethra) so I guess that's why I'm getting relief kind of quick - I'll bet the medicine coats the bottom most easily, like when you put sugar in a glass and it settles to the bottom. Maybe. I dunno.

Anyhoo, I do still take Prelief, I don't even really take it with foods necessarily but take it as almost like a calcium supplement just to help my bladder out. I figure it's a good source of calcium plus it helps heal my bladder.

I'm also thinking of ordering Cysta-Q so that my bladder stays healthy now that it is patched up from the Elmiron.

At this point, I am able to drink juice and eat chocolate without any ill effect whatsoever on my bladder.

I was even able to be intimate again with my husband, will no flare afterwards and no pain during, which in my mind was a real miracle! My husband and I were both so thrilled that this dimension of our marriage was able to be restored.

My fervent hope and prayer is that everyone who has IC will quickly come to the same comfort level that I am experiencing now and that there will soon be a cure for IC so that no one will have to suffer anymore from this.

Love, ICY

[tigger_gal]

WWWOOOOHHHHHOOOOO so glad to here you are in remission :)
I hope you stay there :) grouphug kissing
Brat

[vm]

I agree - do NOT feel guilty!!! That is wonderful and what we all wish for!!! :)

It was messages like this one from you that gave me sooooo much hope when I was new here. Make sure you still come around, OK? We need positive posts about healing, too. :)

[Dianne]

Even if I never get better, I am absolutely thrilled for anyone who does and it gives me hope!

[ICNJess]

That is great news, ICY!!!!! I am so happy for you! That has just made my day! :D


Here's to a very long, and happy remission!

Hugs and love,
Jess grouphug

[auntiedeb]

:D :D :D :D That is such great news. I was in remisson for a week and now I am flaring. I have to get some more prelief that seemed to help my bladder. I should try the samples I have from my ic support group meetings. There is hope with ic. I pray there is a cure soon. Keep us posted on how you are doing.

[ihateic2003]

That is great news, I hope stay that way. grouphug :)

[Iris]

Oh ICY just read your post, and great news gal, that is wonderful. I remember when you were going through a rough time, so it was great to read the latest development. What a nice christmas present to have, remission, way to go, hugs and congrats Iris hi :) :D

[erinaj1997]

I am so happy for you. I'm trying not to be too jealous wink

It's so true, seeing posts like that gives everyone hope. Don't ever feel bad about feeling good. REVEL IN IT!!!

I hope it lasts forever :)

Erin

[readingmom]

Way to go ICY!!! I am so happy for you!! You give us hope that we will get better someday soon.....Christie

[havingsuccess]

I'm very happy for you. I also don't post much because I very seldom have symptoms and when I do they are mild. That makes me feel guilty but just so everyone knows it took me awhile to get here but it's wonderful and I hope and pray that everyone reaches that point. Happy Holidays!!!

Success

[jaime15]

Woohoo!! Wonderful news that you are in remission. Especially right now with the holidays coming up. wink
Thanks for posting that great info. I really think it'll give the newbies something to look forward to! :)

[ICyuck]

Thanks everybody! I continue to pray for remission for everyone, and a cure someday for all of us so we can be well without having to take any expensive medicines.

Love, ICY

[rnewman]

ICY,

I am with everyone else....I AM THRILLED FOR YOU AND THANKFUL FOR THE HOPE YOU HAVE GIVEN ME AND EVERYONE ELSE!!


I hope that you stay this way, and that you have really found the treatment that works for you.
That is wonderful news.

Hugs,
Rachel

[Nicole in ATL]

Congrats ICY!!

Like others have said, reading about people in remission gives me hope!

I am so glad to hear you found a treatment plan that works for you and are feeling better!

Nicole wink

[dawn217]

Great News!!!!
I'm curious, how long have you been on Elmiron? And how long before this good relief?
Thanks.

[ICyuck]

Hi, Dawn, only a couple of months, but I started feeling relief very quickly, after the first month...I was surprised at how quickly I started noticing a difference!

I hope to stay on Elmiron the rest of my life but that probably will mean doing battle with the Army doctors...

Love, ICY

[BobbieB]

Hi...everyone...I'm so glad some of you are in remission..and some are feeling better....and I hope everyone will someday be through with this dreadful disease..It has almost destroyed my life..but today was better and I think and hope it's getting to a point to where I can actually lead somewhat "a normal life"....today was like that...almost. I'm still afraid to eat so many things that I enjoy....chocolate, once the other day was like starting so bad all over again, and I wouldn't think of trying anything with a tiny bit of tomato in it..my favorite food in the world...it's kinda like...OK, this disease is gonna take away all the things you like and want to eat....and give you pain and misery too...so no fruits at all and no most other things....only a few things...and it's hard to deal with the no's and the very few OK's....but I am hopeful, after reading so many ...and knowing some that have "been here" and now doing so much better...that,...... "There is hope" and it's for real, because there are those to prove it. It's post that I read, like these above, that can make you tolerate all of this...To all of you that have been there and to all of you that are there now...thanks for being here.........BobbieB

[Iris]

hi BobbieB and glad to read your post and that you are getting to where you are almost living a normal life. It takes a while doesn't it, but eventually things do get better and life goes on, and it is not so bad.Hey enjoy the good days, and know when that bad day rolls around, we are all here for you. Take care and a hug Iris grouphug hi

[BobbieB]

Hey, thanks.....and hope you and you family..have a great holiday.....BB