Opinions please

[funinsun18]

I went to the doctor's yesterday and at first she said no.But then she called a uro and he gave her the go.I had to follow her back to the hospital 1/2 hr away.My appointment was at 3:00 and I got home at 8:30.
I don't know why I went into all that, but.
I layed down so she could insert the cath.We thought the first time I should just relax and let her do it.Anyway,she used a strait cath non latex when it went in it hurt,like a ice pick going in.She put in the meds and I held it for about 1 hr.When I went to empty I couldn't go.I sat there till I did and just little bits came out.I then got dressed and went home.The ride home was so bad I was in tears.All day today I've been on the couch with a heating pad.

So what I'm wondering, is all this normal?Should I be feeling pain after the first time?Should I go back?I have a appointment tomorrow and then 3 times next week.Am I one who this doesn't work for.

Thanks
Hugs :)

[ihurttoo]

Was this a rescue instill or DMSO? That would make a big difference on whether or not you were in pain afterwards. A rescue instill should be soothing to the bladder and make you feel better, not worse.

Did you smell like garlic or have a garlicy taste in your mouth? If so, you had a DMSO instill, not a rescue instill.

Either way, talk to your Dr. about your experiance and ask what can be done to make the next one more comfortable. For example, most Drs will write a prescription for Lidocaine that has a cone applicator to shoot it into the urethra. This will numb it up so it wont hurt so bad when the cath goes in. Do this about 10 min before they cath you. Also, you can bring a small ice pack and apply this right after the nurse leaves the room and keep it on you until the Dr comes in and does the treatment. I always did that, (and still do these things when I do home instills), and they help alot.

Also, ask them to use Lidocaine to lube the cath. That helps too!

If you had a DMSO instill, ask your Dr to prescribe you some pain meds to take after them in the future.

But, do talk to your Dr about your experiance and ask what can be done for next time, or if you should continue with these.

Hope this helps!

Hugs,
Amy

[funinsun18]

I knew I wasn't going to get all details and sound a little off.I took Lorazapam before I wrote it.It helps to knock me out for the night :woohoo:

Anyway,it was a recue instill.I still don't feel good this morning.
I have another one this afternoon.
Thanks for the help with the cath.I'll have to talk to my doctor about that.
Plus we didn't leave the lidocain on but 2 min.

The only problem I see with asking my doctor about if I should do this or not is she is only a practitioner.

I feel I should give it another try,but if I should be getting relief I should quit.

Thank you
Hugs

[ICNDonna]

It may take several treatments before you know if it's going to help.

Donna

[ihurttoo]

One more thing, if the cath hurt going in, that would have tensed you up, and obviously would irritate your urethrea. Having the urethral pain, would also stress you, which could have caused you to flare. So, I guess what I am trying to say is that this could be a flare caused by the stress and the urethreal pain, not by whatever they used in the rescue instill. That is another reason to try a different prep method prior to cathing. The Lidocaine only being on for 2 min wouldnt have helped me at all, so I definately think that having it on longer will help. Also, dont forget, that lots of ICers benefit from using smaller caths. Most of us use a 5 French or 8 French, which are very small. It is worth looking into to see what size they used on you, and if they used something larger, ask if they can use something smaller next time.

I do think you need to try it again. Just talk to your Dr. about your response to this instill, and discuss things that can be done to help it go better next time.

Hugs,
Amy

[funinsun18]

The cath was better.I didn't have a straight one this time.
I was wondering how long you can hold it?Is there a time limit?
For some reason and maybe it's cause I'm numb, I can't pee for 1 hr or more.
When I do go I have to push.After I go I am sore but not as much as the last one.

Any ideas?

Hugs :)

[ihurttoo]

Someone else and I were just talking about the "how long to hold it" and the "trouble peeing afterwards" thing on another thread a day or two ago. We both have this trouble. She couldnt go for 15 hours once!! I have gone a while before too, but my Dr. told me not to do that anymore. He said that it is not good. (I think it is the heparin that is bad if in too long, but cant remember for sure!) Anyway, he said that 30-45 min is the max amount of time for me to hold it in, without going, and if I still cant go, he wants me to cath it out. So now, I just leave in the cath (since I do them at home), and cap it off, and raise the end, and then drain and remove it afer 30 min. That gives me plenty of time for the Lidocaine to work and for everything to do its job. Talk to your Dr. to be sure how long you are suppossed to hold it, just in case it is different for you, (if they are using a different formula or something). Hope this helps! Hugs, AMy