Not sure what to do

[waterflow]

I was thinking about asking my Uro to try the oxycontin. The darvacet really only helps as long as I do a lot of sitting. To do the housework the way it should be done then the pain is right back to 8-10. Over 10 when I get groceries. I know with time my body will get use to each pain pill that is why I don’t know if I should stick with the darvacet until it doesn’t help at all or try something stronger? I feel like I'm not doing my "Share of life" and I'm just a lazy slacker. I feel like I'm not earning the SSI money I get either. Feel guilty about having it.

[Moonheart]

First of all, you are NOT a slacker.

Secondly. You are going to hurt when you work most likely. I ONLY get pain control on my dose of Morphine if I don't do much of anything. So I do ALOT of sitting. When I can't stand the mess anymore, or the kids aren't helping as much as they should, then I get up and work and I PAY FOR IT. For DAYS!!!

This is not a pretty disease and it's very difficult to adjust to the feeling that we aren't contributing what we ought to. It's a very depressing feeling and I have yet to completely come to grips with it. It's very hard when you have relatives as I do that imply that we could be doing more.

You need to realize that you are not supposed to EARN SSI. SSI has been awarded to you by many knowledgeable people who have determined that you are incapacitated to the point that you deserve to be able to sit and rest as needed, and not end up in the gutter or poor house. So please, relax and heal as much as your body is able. Unfortunately, if you don't, you may find yourself even more incapacitated in the future. :(

[waterflow]

THank you Moonheart. :kiss: It helps a lot what you said. I do like you too. Clean as much as I possibley can and the then sit it out in pain that not even the darvacet can touch. I used to really push myself for a long time but each time I ended up sitting for 3 days. I just find it so hard to believe one tiny bladder can cause so much pain body and mind wise. I have the relatives and famiily also that say I should be doing more. Nothing wrong or they did this and that while in pain. No one seems to relize mine never goes away and only gets worse. :( Thanks you again for helping me not to feel so worthless. :grouphug: I was thinking that the pain pills were supposed to help so I could live a normal life. I'm learning all the time with the bladder. Can say that is one good thing about it. :bunny:

[IC SARAH-CPP]

I echo what Moonheart said, you are not a slacker! In fact, I have found that we work harder than anyone else just managing our illness and our lives. I know things were a lot easier for me before this happened to me.
I think if it were me, i would try the lortab or percocet before I went to the oxycontin. Just because darvacet is really, really weak and if you go from taking that to taking oxycontin, you might get a little sick. I would definately ask your uro for percocet or the 10 mg vicodin though. I truly think that will help you much more.
Let us know what happens!
Sarah

[Moonheart]

Honestly, until recently, I had no idea it was my bladder that was making me so miserable. I am amazed also that such a little, seeming inconsequential thing like a bladder (that we take for granted) can affect every area of our lives.

It's really disturbing and certainly a powerless, helpless feeling. :(

[SandyRN]

I really think it would benefit you to see a pain mgmt doctor (if you can find one) or talk to your doctor now about switching to a low dose of oxycontin, or another long acting med like mscontin, or even the duragesic patch. I've been on oxycontin for years, and just came off it a couple weeks ago and felt some pretty awful withdrawl, even with new pain med from the patch....

There are lots of things to consider when starting a new med, and one of them is how do I get off these pills when the time comes....it's a slow process, but I wouldnt let that deter you from asking for something that will last longer, and work better.

I wasn't going to tell you this, but darvocet is being taken off a lot of major hospital's formularies, meaning they don't even use it anymore because for the most part, it's not all that helpful. So, it's not in your head, its the med you are on. While I'm sure it works for others, for MANY more people, it does nothing to ease the pain. I could list about 5 major medical systems that I know for sure have dropped it.

Talk to your doc, screw your family, and don't tell them what you're taking....that first day, when your new med kicks in, you can tell em where to stick their opinions!

I've got family that doesnt believe me too, so I know how you feel!!

Call your doc, get in there, and get something that works! :)

Rant of the day! :)