View Full Version : Today is a bad day.
11-28-2006, 09:31 AM
All I've done is sleep because my phantom pain is back again with full force. I was hoping to have a better day today. I can't take any medications because they make the pain worse so I am suffering like a hurt dog. I don't know where to turn to next for help. One day is almost over. My Husband will be home soon so that helps.
Just checking in. At least I had a good night! ONE good night is better than nothing right?
11-28-2006, 09:52 AM
Sorry today is so rotten. Hopefully things will get better tonight and things will be stellar tomorrow.
Hugs and love,
11-28-2006, 10:08 AM
11-28-2006, 10:15 AM
Oh Kara,I was hoping it would go well for you and you would be pain free. I hope you find something and someone that will help. :kissing:
11-28-2006, 10:42 AM
hugs to you.....well maybe tonight will be better....
PS Dr Tiso asked about you today ;-) and i told him you had lots of wonderful things to say about him!
11-28-2006, 10:49 AM
Kara I am so sorry about your bad day. I am so glad your hubby will be with you soon. Hope you will start feeling better.
Sending hugs, Trishann
11-28-2006, 12:11 PM
Sorry you had a bad day. I hope tomorrow will be better.
11-28-2006, 01:29 PM
I'm glad to hear that you at least had one good night. Hopefully there will be more to follow! You're in my thoughts and prayers!
11-28-2006, 01:45 PM
Kara, I'm so sorry you had a bad day. :( I'm hoping the nerves will settle down again and let you have more pain-free days.
11-28-2006, 03:41 PM
I am sorry things didnt work out the way we expected. But, hopefully, when you are able to talk to the Doctor, you will get more information and find out whether or not it takes a while for the nerves to die or if it was suppossed immeditate.
I still think that a Neurosurgeon would be the best one to do this procedure, since they are the specialists in dealing with nerves, and it's obviously the nerves causing the problem, since you responded so well to the test procedure of the initial block. I know the Pain Dr. wouldnt give you the referral the neuro's require so far, but if it turns out that the ablation didnt work, then hopefully, the Pain Dr. will finally give you the referral and then you will be in the hands you need to be. You know as well as I do that this whole thing is a process, and it is our failures that eventually lead us to our successes, since you cant find out what DOES work, without knowing what doesn't work. So, you are one step closer to finding the answer for you.g
I continue to hope and pray that your pain will subside soon. It breaks my heart to know that you are still suffering.
11-29-2006, 06:48 AM
Kara: My thoughts and prayers are with you. :pray:
05-26-2012, 05:57 PM
I want to post about my doctor appointment and Interstim implant.
I have been put on a 3 month waiting list for a trial Interstim. The specialist I saw tells me that not only will it help with my IC pain, he said it would help with my chronic pelvic pain, my back pain and help my bowels. He said i am a good candidate for the device. He said it wold also help with my bladder leaking : )
The doctor at the Pelvic Floor Center in Minneapolis tells me basically I have nerves that are miss-firing and they are sending messages of pain to my brain. He says that these nerves some how start sending the wrong message.
I have PFD and CPP, my exam hurt but went fine.
I do not want to wait the 3 months if it will help me with all of these areas of pain.
The doctor tells me my Burch or what he called 'a bladder vault suspension' is still intact, he believes my bladder tack is also holding.. He doesnt want to go in and operate or remove the scar tissue. He says i am at the age where i should start menopause so when that happens the endometrosis will stop growing.
I had POP in 2002.
This doctor is going to try to set up some PFD pelvic floor PT : ) I live in Rural ND so this part may be difficult to get a PT with pelvic floor experience to come here. Diagnosed with PFD on 5/25/12.
I also had a bladder scope and the Dr. gave me some peridium s.p. to numb the bladder and an Rx of Tramadol...it seems to help some.
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