View Full Version : Reorganized the Treatment Boards
11-27-2006, 07:28 PM
Well, here I was in the shower contemplating my navel... well... actually contemplating how to improve the treatment discussions in the boards as well as be sensitive to the very DIVERSE needs of the newly diagnosed vs. veteran patients... as well as mild IC patients versus those with more SEVERE IC.
ironically, I was reading a World Health Organization report on managing cancer pain which gave me this idea! So, I've seperated out our treatment discussions based upon "mild, moderate, severe and endstage" applications.
Check it out and tell me what you think. Yes, there are some still floating in old categories that I've got to resolve but I think I like this structure.
11-27-2006, 08:02 PM
great idea i like it :)
11-28-2006, 01:27 AM
I like the fact there is a little descriptor as to what each stage of IC entails, for each grouping of treatments...funny, I fall into each category, even tho I don't feel I fall into a category of "severe IC".....even tho I do have the Interstim...
I know, I know....its just a guideline and we not all going to fit into neat little compartments, but it does make things easier to figure out!
Great job Jill!
PS: I personally do my best thinking in the shower...I think cos I'm alone, with no interruptions. It's "all-about-me" time! :D
11-28-2006, 01:42 AM
I like it!!!! Good Job Jill! Makes things a lot easier to find when we are in need of info in a hurry.
Hi, sorry, I'm new to this site and frankly have never before used a chat room or message boards or whatever. I'd like to read the newly redesigned "treatment boards" but darned if I can find 'em. I'd have my kids help me navigate (since they'd find it in a hearbeat) but really would rather not!! Thanks!
11-28-2006, 03:31 AM
I like it, Jill. :)
afri...You can find the treatment boards on the page where the forums are listed. Just scroll down the page until you come to them.
11-28-2006, 03:47 AM
I love it! It really helps newbies to see what treatment options they should try first.
The only thing I wondered was, if someone might come in and let's say they've just been diagnosed with severe IC from the get-go (I've heard of that happening) and so maybe they would think that they should start at the severe IC treatments first? I don't know...I was just thinking that maybe there could be a sentence like "treatments to try first" "treatments to try if the first group of treatments don't work" and "things to try if other things don't work..." Just my two cents worth, LOL.
But it is great! And I like how reassuring it is to the new patients coming here - sometimes they really need that reassurance, too!
11-28-2006, 07:14 AM
I like it... but I do agree with ICLori; she brings up a good point. Sometimes severe ICers will respond to, for a random example, a combo of Atarax and rescue instills a few times a week, but the board may lead them to believe they should just go for the Interstim immediately just because their doctor said they had pretty severe IC. I like the idea of having some kind of disclaimer about that :)
11-28-2006, 08:16 AM
Thanks for your suggestions. I have modified all of the descriptions of those categories now and would appreciate your feedback on the new intros!!! ::as she smiles widely::: I think this is a very good move!
11-28-2006, 08:36 AM
This is a great idea! I like how everything is categorized, it makes it easier.
11-28-2006, 10:54 AM
Jill, for someone who is not all that great on computers, this format is great.
11-28-2006, 11:47 AM
Awesome changes. Very user friendly. I also use my shower or my bathroom in general as my zen garden for new ideas. Hee-hee.
11-28-2006, 01:49 PM
Perfect, Jill! :) This will be such a great help to the newbies! :)
11-28-2006, 03:46 PM
I totally agree with the others, I think it will be alot easier for someone new to be able to understand the starting places with the new layout. I think it will also help to clarify to them that not everyone's IC progresses into a severe case. Good job on the new design! Hugs, Amy
11-28-2006, 10:44 PM
I also want to say thank you for giving vetrans with complex cases like myself a place to still post my thoughts and feelings! Even though my case is awful and scary that doesn't mean It doesn't scare the blank out of me too!
Thank You Jill!
11-29-2006, 02:45 PM
Thanks for making the improvements Jill. It looks nice to me.
In terms of feedback on your descriptions, for the most part I like them. However, the description for Mild IC says (no pain). In my opinion, this is a bit misleading to me. I consider myself to be someone who has mild IC, yet pain and pressure were initial symptoms. However, since I'm regulated on medication I only occasionally have pain. I would also consider my pain as a whole to be mild compared to others. Thus, I'm not sure mild ICer's don't have any pain - maybe it's just a different kind of pain that can be controlled. Maybe it could be worded in a way that says that mild icer's can typically control their pain with diet and oral medications. Just a thought.
12-03-2006, 05:33 PM
Hi Jill. Acutally I'm just back on board. I've been working way too much and haven't had time for any personal computer time in ages. The first thing I noticed was the change in the board, I think it's great.
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