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View Full Version : Bile Malabsorption and Colestid/Questran


plaedes
11-07-2006, 03:00 AM
Last September I had my gallbladder removed and my Gastro and the surgeon both warned me that I would have diarrhea for a while after surgery. I had IBS going into this and have had it all my life, however this was no ordinary diarrhea. I got Heather Van Vorous' books about IBS and tried changing my diet. Nothing was working. I was taking Immodium Advanced but that made so constipated I just wanted to cry all the time. I lived with the horrible pain from severe cramps and "explosive" diarrhea for a year after surgery trying everything I could to not have to take another pill. I finally went to the doctor last month and found out that my suspicions were right. I have Post Cholecystectomy Syndrome (PCS). This is a condition that keeps my small intestine from properly reabsorbing bile after a meal. My doctor put me on Colestid 1 gram before meals. This pill works great! There is also the added benefit that unlike Questran I don't have to mix it with anything, it has no taste and it has no Nutrasweet to irritate my bladder! Yvette, I highly recommend this over the Questran powder. They do make it in stronger doses that are also a powder, but there are 2 pills I believe a 1 gram and a 5 gram. The draw back with this drug and Questran as well is that they block the absorption of Vitamins A, D and K. I am trying to take either Lomotil or Pamine Forte 5 mg once a day with a vitamin and so far doing ok. I stay slightly constipated now, but it is better than not being able to finish a meal because I just have to test out bathroom facilities! I have not had bloating like I normally would with constipation either. I am starting to wear pants that I never thought I would wear again. Before this my abdomen would swell at least 4 inches making it very uncomfortable to wear anything without an elastic waistband and sometimes I would just have to come out of the bra completely. The only problems I have encountered since I began this new medication was when I didn't take my pill in time before eating. I just came back from 8 days of Vacation and had a beautiful time. No problems what so ever due to my bladder or my pesky bowels! I even took a pill while standing in line at Burger King and ate a Whopper with cheese and fries with no problems! Not even gas! For anyone who thinks this drug might benefit your situation I highly suggest you do some reading about it before hand and discuss it fully with your doctor. For anyone that does not know...blocking Vitamin K is dangerous. Vitamin K is what the body uses to help clot your blood. I was already prone to bruising easily and now even more so. This is why it is so important for me to take a different pill and a vitamin every day! This drug is nothing to take lightly, but I no longer have much of a choice. I couldn't even eat a bowl of plain white rice without having to rush to the toilet. I've only been on this drug a month, but already my life is getting back to some symbolance of normal. I am still leary of certain foods and trying to be careful. I was terrified to eat a steak, baked potato and salad, but I tried it and I was fine. I couldn't believe I could eat steak again. This is something that was bad even before I had my gallbladder removed due to IBS. Again, I agree with all of the posts I've read that if you're having new or sudden bowel problems/changes you should consult a physician. However, do not always assume it is IBS. It could be many things that have similar symptoms. I thought mine might have just been my alternating IBS had changed to IBS-D. I have even read where people that are IBS-D have tried Questran with success. Be sure to research and become well informed of what's out there, but don't jump to conclusions and self diagnose...See a DOCTOR! Thanks for reading and have a great day!
Kelley

Trishann
11-07-2006, 09:10 AM
Kelly, that is great you found something to help you. And yes diarrhea can be caused by different conditions. My husband had thyroid problems and he couldn't even finish a meal without running to the bathroom.

You have a great day, Trishann

yvette
11-07-2006, 09:13 AM
:kissing: You are the best...thanks for posting this. I can bring this to my doc for his input :D

plaedes
11-13-2006, 04:52 AM
Well, there's some good and some bad here. I ate pizza on friday and while I was actively eating it I was in heaven. I only indulge a very few times per year because of the tomato sauce. However, I have not eaten it with any success since the gallbladder removal. The Colestid allowed me to eat it and not have to rush to the toilet and take up permanent residence for a few hours. This is where the good news ends. About 30 min. to an hour after eating this devil in disguise I felt like I was trying to digest a brick. I never did have diarrhea and actually still haven't gone. Yesterday I woke up with the same horrible stomach pain and only at a bowl of soup with 4 crackers and that made it worse. I am not sure if the pain is related to constipation from my meds., a side effect or just something random. All I know is that I am back to being a little afraid to eat at the moment. I just don't understand this stomach pain I am having. All day yesterday I felt terribly hungry, but full like I had just eaten a meal. I didn't take the Colestid hoping that it would make me go to the bathroom and possibly find relief if it was just constipation. The pain was less this morning, but I just don't want that pain back so I haven't eaten anything yet. ARGH!!! I'll post more if I figure it out.