MEDTRONIC INTERSTIM THERAPY

[KHH]

I AM LOOKING FOR ANYONE WHO HAS MEDTRONIC INTERSTIM THERAPY.

WHAT WERE YOUR EXPERIENCES? BAD? GOOD?

WHAT DR?

I AM HAVING THE TEST INSTALLED JAN 30. ANYONE OUT THERE WITH ANY INFO WOULD BE GREAT!

[ICNJess]

Hi KHH--

I have the InterStim, although I'm in WI, and I love it. You can PM through the site if you'd like some info. :)

[tigger_gal]

Hi KH,
I am in michigan, I love my interstim :) www.interstim.com (http://www.interstim.com) is a great place to start, you also can pm me too if you need more info :)
I wrote a interstim diary if you are interested let me know. I had a 2 week stage trial and the implant, over all I would go thru it again:)
Brat

[Katherine]

I have one also.I love my interstim. The trail was hard on me but only because I care for small children The wire keep getting hung. It has been God sent for me. I do not go more then ten times now on a bad day where use to I go every ten minutes on on a bad day.I was so glad that she put it in and never made me wait for weeks or months after. The took the trail one out place the permit one. I do it again.

[auntiedeb]

I will be getting the trial stuy insterm plant done onf feb13.

[carly]

I had mine in October by a Dr. in Lincoln, Nebraska. It did not work for me. I am still glad I tried it though and I hope it works for you. After my first surgery, the Medtronic rep told me that it does not usually work if you have a lot of pelvic pain. I do have a lot of pelvic pain. I don't know if what he said is true, it just didn't help me at all. I wish you lots of good luck!

[tigger_gal]

Oh Carly,
I am so sorry you went thru the trial and it didnt help :( Your dr is dead wrong... the interstim is not in any way shape or form ment to be used for pain. .. How I would love to wrap my fingers around thes doctors necks and choking the life out of them for telling you gals that cussing cussing cussing ... Its only for frequency and urgency....
Hugs Brat

[jen75]

My best advise to anyone thinking about Interstim, is to find a few people who have had great luck...and a few who haven't. I am on my third revision and seriously considering removal. If it weren't for the fact that I get serious retention when my unit is off I would have had it out a long time ago. I'd be happy to talk to you feel free to PM me or email me at phollen@yahoo.com

:)

Jen

[tcbc1989]

Hi!
Just a suggestion...ask your doctor if he could arrange for you to speak to some of his patients that have had the Interstim procedure. That is what my doctor did. With my permission, he gave a few patients my phone # and they were willing to tell me all the pros and cons of the Interstim device.
I went and had it implanted for urinary scream scream retention and I am VERY happy with the results. The IC pain is still present and my doctor made it clear that this was not to treat IC pain. Good luck...Tina C.

[Teri]

Tina~the only problem with that is that the dr's will give you the #'s HE wants to give out.

I had good results for 18months.....non-working for 6 months, revision, then the device removed after 2more years.

[shania]

Hello , i also have a interstim and my freqentie went down from 30/40 till 10 times a day.
You must realise that its not a qure and the pain will not go away but i am glad that i have one.
I come from the netherlands so excuse me iff i don't write english so good.
Greetz from Shania

[KHH]

Hi everyonw,

How long have you guys had your interstim implants?

KHH

[ICNJess]

Have had mine since Oct. 1st (the actual implant) trial went in Sept. 11th, 2003.

[tigger_gal]

my trial was 4/2/03 and my implant was 4/16/03..
Brat

[tcbc1989]

I had my stage 1 device implanted in May and developed a massive infection in my back at the site of the implant. After the infection cleared up, which took about 1 month, I had the permanent device implanted in.....I have had to be reprogrammed about 7 times but i would do it again. When it is working I feel absolutely great!! Everyone is different.
Tina C. hi

[shania]

Hello , i have my inplant since febr. 21 , 2003.

[Tami Stambaugh]

Well sounds like the inner-stem has done great for most. I am scheduled to have the trail implanted on March 1. My doctor has had great results except with one patient. He also has made it very clear that is doesn't make the pain go away but it has been know the help some. He also said there will be days when your flare is bad you will have to use more pain meds. than on days when it is not. He said everyday is different for every patient and you have to do what works for you. He said that if he had this painful disease that he would do it in a heartbeat and not think twice. They also have a conference once a month with a Medrodonic representitive that will explain everything and answer any question you can think of. She is also the one that assists is the implantation of the device. My doctor has two nurses that has been in training for the programming, etc. He lets them do all that and stated he wouldn't know what to do without them!!!! Tami