Still not sure what is wrong

[emeelee]

i would like to say that i have been reading all the post for a week or so and have gotten alot of information. I am a 32 year old wife and mother of two wonderful boys. My problems started after my first child...I had my first laparoscopy when my oldest was 6months old...was found to have endo...then had another when he was 18 months old....skip to my sencond child I had my tubes tied after his birth. 6 months later had another lap. this cycle continued til I had had enough and my OBGYN did a complete hysterectomy. Almost immediately started having what they thought was UTIs so they gave me antibiotics this had continued for 4 yrs. I have been on contiuned antibiotics and unrinalays (sp) and that found no bacteria....now OB thinks that it might be IC. I have constant pain in my pelvis and bladder...so now i am not sure whether it is endo or IC. I am on hormone therapy. Just wanted to know what ya'll thought. I go to the IC specialist on the 30th. thanks in advance for the info.

[beachnut]

I can't say that I know if it is IC or Endo. But, I will say that my IC started the same way. I am also in my 30's and a mother of 2 and IC felt like the bladder infection that wouldn't go away. I was getting so mad at my doc because he would do repeat urinalisis and they would all come back negative. I finally said if you don't know why I am in so much pain could you please refer me to someone who can figure it out???? Enter the urologist
He happens to be very knowledgable in IC. He promptly did a cystoscopy and did the k-test ( potassium) which casued great pain but along with my past symptoms and a positive k-test the diagnosis was IC. I have been symptom free for about 10 days now and I attribute that to staying away from the trigger food and beverages. I start a new drug treatment on monday and hope that this will help me in the future. It sucks to have IC but once you know what you dealing with it is easier somehow to cope. Not knowing is the worst for me.
Research IC know what it is and get a uro. to do a cystoscopy and get the answers, in the mean time try taking the trigger foods out of your diet and see if that helps. If you need support you have come to the right place. E-mail me anytime.
Good luck
Sandy

[L. Thomas]

Since he is an IC specialist he will tell you "head's up" or "tails down"... Either way you will know something and he will guide you on your path.:cat:
________
The Cliff Condos (http://pattayaluxurycondos.com)

[Sarojini]

:welcome: to the ICN, and I'm glad you're here :)

As I'm not a doctor, I can't say for sure... but it does sound like it could be IC. I'm really happy you'll be seeing a specialist soon. As the others have said, this will at least give you a direction to head in.

In the meantime, have you tried the IC Diet? It can be found in the Patient Handbook link at the top of the page. Some patients find that just by changing their diet, they can ease their symptoms quite a bit... it can't hurt to try it out!

[emeelee]

I would like to thank those who gave me some advice thanks and I would like ya'll to pray for me. Thanks abunch

[ICNDonna]

It does sound like it could be interstitial cystitis. Hopefully the urologist will have some answers fairly quickly. It's always easier to deal with a problem after the problem has been identified.

I agree that starting an IC diet is a good idea. It's something you can do right now and it just might help you feel better while you're waiting for your appointment.

Warm healing thoughts,
Donna