Negative hydro? Bladder capacity question...

[jean fleur]

I was wondering if anyone here had a negative hydrodistention.. in other words, if the bladder capacity was within normal parameters..... I read everywhere that hydro is not a completely fool-proof diagnostic procedure for IC, yet my doctor just told me that if we do hydro and my bladder capacity is normal, that means I don't have IC for sure.... any thoughts? Thanks!

[Ginny]

Hopefully the doctor did a biopsy. Did the biopsy say negative for IC?

Ginny

[sweetangel2080]

I didn't have that, but there are people with IC who have a normal capacity and sometimes no glomerations etc...

[patricia1]

There have been people diagnosed with IC and their bladder looks normal and the bladder capacity is within normal limits. I personnally did not experience that as my bladder showed IC and my capacity was low, but not every test is 100% accurate when diagnose IC. Have you had a PST (postassium sensetivity test) done? I had this done first then the cysto with hydro done after??

[ICNDonna]

It used to be thought that normal bladder capacity ruled out IC, but there are some people with normal, or larger than normal, bladders who have IC. And I know of at least one person whose hydrodistention did not diagnose her IC. I suggest you ask you doctor about a potassium sensitivity test.

Donna

[dg2901]

Like mentioned no test is 100%.
I agree with asking your Dr about doing the potassium test.

take care
diana

[ChrissySunshine]

Hi Jean, I also have a normal bladder capacity. After having a positive Potassium Sensitivity Test at my Gyno's, the cystoscopy I had done by my former Uro showed a "normal bladder capacity & normal looking bladder". It was the biopsy that showed the chronic inflammation and mast cells that are indicative of IC. It's really too bad that they did not do a biopsy while in there! Like the others, I would suggest that you ask about a PST. My thoughts are with you, I know how frustrating it can be!