Newbie

[justJen]

Hey Everyone! I'm new to the site discovered it recently. I'm stuck on the waiting side for an official diagnosis. I suffer from symptoms like the rest. It's an everyday battle of pain for me :( My ob/gyn put me on the IC diet. I miss so many things...no chocolate or coffee or bbq sauce. I'm going crazy! I'm going into Urology on Thursday for the final tests and such. I must admit I am a little scared not really knowing what to expect. Also, I was wondering if anyone else has had symptoms of nausea...

[traceann]

Hello justJen and :welcome: to the gang! I am so glad you found us!! I am sure you will find tons of useful information and support around here! Hopefully you will get some kind of diagnosis soon and begin a treatment that gets you feeling better quickly!

I can't say I ever had nausea with my IC troubles, but that's just me, I am sure you will get lots of input from around here!!!

Once again, glad to meet you and look forward to seeing you around!

[SharonA]

:hi: and :welcome: to the ICN. So glad you are here.

[Kimchi]

Welcome Jen!:welcome: I hope you find some answers soon. You will have to let us know how your visit w/ the uro goes. I have nausea sometimes. I think I just get so overwhelmed w/ the pain and stuff that I get sick to my stomach. Hang in there.

[Jen27]

Hey Jen (best name EVER!)
When I was dx'd over a year ago, I was going to my regular family doctor because I was ALWAYS nauseated...during the course of my visits and tests, I thougt I had a UTI and it wasn't so I was referred to a URo and that's when I got the cystoscopy and hydro and diagnosis. I'm not sure if it's a classified symptom, but the whole reason I started paying attention to my body was because of my nausea, if that makes any sense?

As far as the diet goes, I was VERY strict at first and then introduced new foods and found out which ones triggered me. Fortunately, no foods cause flares, mine seem period, stress and sometimes sex related, uti's worsen the pain and during those flare times I do not eat anything acidic. I've found that just gatorade and OJ tear my bladder up. Take one day at a time and there are alternatives to chocolate (carob) and a less acidic version of coffee (decaf) @ the icnshop! But as for the BBQ sauce thing, I'm sorry, I also love BBQ and I"m not sure of alternatives

PS, My doc gave me something for nausea and dizziness. First I tried antivert (which is a really potent Rx version of dramamine) And I slept for 24 hours!! Then I had something for just nasuea with very little side effects I want to say it starts with a T, but I'm not sure...similar to reglan I believe. I'll get back with the name of the drug..

[Sarojini]

I get nauseated all the time from pain; I used to take Tigan for it, which had few side effects if any, but now I don't have anything, so I just deal with the nausea on my own. Luckily, it does not always come and is not always there.

:welcome: to the ICN!

[jlp]

:welcome: I take phenagyn ,as needed. you have come to the right place for answers and support!!:)

[Jen27]

YES!!! TIGAN is the name of the drug I was talking about in my previous post! i had no side effects, but everyone is different.

[justJen]

Thanks for the warm welcoming :)

[dg2901]

:hi: Jen!

:)
diana

[justJen]

I am always in so much pain when I first wake up :( How do you guys cope? I'm looking forward to Thursday because I want some answers but at the same time I'm terrified.

[justJen]

I'm going through such a hard time right now...my bf is being pretty supportive but sometimes it seems like people think I am exaggerating my symptoms, which I'm not :( I feel sick like all the time. I need to find a part time job so I can help out more financially with the bills. I wasn't planning on getting sick but I guess I should have gotten a job months ago. Money is tight. Well it's more than tight. We are going under. My bf is about to lose his job with that his health insurance and he is currently undergoing radiation treatments every couple weeks for a tumor in his left lung. I'm on a county health care program which is up in December and I have to reapply. Depending on everything I don't know if I will requalify. Things are falling apart fast here :( I don't know what to do!

[traceann]

Oh Jen - you have quite a bit on your plate right now don't you? Wow, I am so sorry to hear that your boyfriend has serious health troubles as well, and sending you both big :grouphug:

Hopefully you will get some answers tomorrow (it's tomorrow right? Thursday?) - and then they can get you started on some medications to help you get feeling better as soon as possible! Usually with anything like this the time around diagnosis is the worst - so whatever they figure out, hopefully they will start you on some treatment ASAP and get you on the way to feeling better!!

Yes, mornings were bad for me too, ugh. I remember it well. I'd have to get up, take something for the pain (all I had was otc Tylenol at the time!) and wait for it to kick in so I could stand long enough to get ready for work. Ugh. It was awful. I wish I had something that could help you out, but it was just a take my meds and wait thing. It's hard for people who don't have to deal with that sort of thing to understand - you don't "look" sick, which unfortunately people assume you should - to qualify as being sick, lol. Keep your chin up!!!!!

I would think that you would requalify with regards to your health troubles at present for the county help - don't give up on it!!

Please keep us posted on what you find out at the docs - and be the squeaky wheel until they give you a diagnosis - there's something going on and you need to be able to know what it is so you can start treatment - be that whatever!

Sending you both big hugs!
Tracey

[justJen]

Tomorrow is the day. But,they probably won't tell me anything new...:rolleyes:

[mom2kk2006]

Hey there,

All the best to you, with the diet and positive attitude I am sure you will be seen in no time on the success stories forum..honest. I had nausea too but I think mine was due to all the stress my body was under, try walking to clear your mind, it did me wonders.

[lil'longhorn]

I get nauseaus every now and then, sometimes not for a month and sometimes everyday. I'm really nauseaus right now actually and that's why I'm on this website and not working on my research paper, bad me :)

When I first started getting sick from IC the nausea was so bad that it was worse than the constant burning. It wasn't caused by the pain, because I had it even when there was no burning. I had to skip so much class just because I felt like I'd throw up if I stood up for too long. It's gotten better since I starting taking meds for my IC, so I'm guessing my nausea is related to the IC. I think I have IBS though, which I read somewhere that it might cause nausea, so maybe you can look into that. No Dr. has given me anything for it yet, but I really really wish they would!!

:cat:

[justJen]

Yeah, I'm trying to get pain meds...but something for nausea would be great.

[hottytoddy93]

hi jen,
yes, i have nausea too. i think pain causes it. phenergan does help, but makes you sleepy. i just usually fight thru the nausea though because they already have me on so many darn meds! expensive!
hope you feel better soon,
lauren

[iceprincess]

:welcome: welcome!! first of all you are in good company & even better support!
i am new to this site & was recently diagnosed after 10 years of problems. a few things that i have noticed are yes, nausea...upset stomach...loss of appetite. like a few others said, i think it is a coping mechanism that your body goes through when in pain. not to mention u have 1 million other things racing through your mind right now. stress always makes for an uneasy stomach. one thing at a time dear...baby steps. you need to learn to walk in your "new shoes" before u can run a marathon.
as far as pain in the morning goes...my first bathroom trip is always interesting. i can usually tell what kind of day i am going to have. i experience the most pain & pressure after 4pm though. it seams the drive home from work makes everything cramp up. it is almost like standing all day keeps the pressure off my bladder & back and when i do sit down, everything bears down and gets squished. everyone is different.
another thing that i found handy is ask for samples! if they have them, you think they would be happy to hand them out (esp those who are financially challenged). if that doesn't work, contact the drug company. my mother works at a hospital & hears about drug companies helping out when needed. what do you have to loose?
another option is check with your local resources. are there any community programs u qualify for? do you belong to a church or know of one that may consider making a contribution? is there a state insurance program that is based on income? if you run out of options ask if any of these resources have suggestions that may help. never give up and stay optimistic! good luck hun & keep us posted!

xoxoxoxo
beth

[meversole]

You may not hear anything different from the Doctor, but at least you will know for sure. I was just diagnosed two months ago, with a preliminary one a month before that. I've been suffering from IC however for two years. The diet has been a huge factor for reducing my pain, along with the Elmiron and my bi-weekly DMSO cocktail! I'm attending my first support group meeting on November 14, and I know being with others who suffer the same as I do will help. Good luck and take care!

[L. Thomas]

:hi:
Welcome Jen