Newly diagnosed with eosinophilic cystitis

[knven]

I know that you all suffer with IC. Is there anyone out there that can give some tips on eosinophilic cystitis. I have been diagnosed and sent to the allergy specialist to see if it was due to an allergy. I came back with flying colors and not allergic to anything, so now I feel like I am at square one.

I am thinking of having the DSMO procedure done but I would like to know the downsides to this.

Thanks for anyone who can give me any info on being eosinophilic

[Katrina]

:welcome: to the ICN!

I know of about 3 members for sure that have EC around here.....I know there is more than that but I don't know them all.
You could pm Cricket View Jen_Cole2
I highly suggest you talk to a member with EC before doing Dmso....it is a risky thing for those of us with IC....

good luck on getting the best treatment possible!! :grouphug:


http://www.ic-network.com/ec/


There are pages and pages of results on EC at the ICN.
http://www.google.com/custom?domains=www.ic-network.com&q=%22eosinophilic+cystitis%22+&sa=Search&sitesearch=www.ic-network.com&client=pub-2855607419552384&forid=1&ie=ISO-8859-1&oe=ISO-8859-1&safe=active&cof=GALT%3A%23FFFFFF%3BGL%3A1%3BDIV%3A%23336666%3BVLC%3AFFFFFF%3BAH%3A center%3BBGC%3A003333%3BLBGC%3A105C6C%3BALC%3A66CCCC%3BLC%3A66CCCC%3BT %3A90DCEC%3BGFNT%3A66CCCC%3BGIMP%3A66CCCC%3BFORID%3A1%3B&hl=en

[ICNDonna]

There isn't a lot of information available about EC. Hopefully one of our EC members will respond to you.

Donna