getting ready to apply, need help!

[jazz]

Hi I called my local SS office and have a phone interview the end of the month. They are supposed to be sending me a packet or something also.
I have been out of work since January. I went out as I have Huntingtons Disease and it effects my memory and stuff so I couldn't work. It is difficult for me to organize things, concentrate...it is a progressive neurological disease .

I am trying to get things ready for the interview. I have other problems like a bad neck, Ic since I was 20( now 48)
I was thinking that I probably need to get records from all of the Drs I use to support my bad neck, bladder and such. If I go to the Drs offices to get my records what do I need them to copy for me? How far back do I need to go. Do I need to go to the hospital and get records also???
I just want to make sure my file is not lacking anything to hinder me getting the SS.
Any information you can give me would be great...
thanks
jazz

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Jazz,

You can sent a written request to each dependening on how many different doctors you have to get records from. I would turn in as many records as possible that pertain to your disability. There is a great book from NOLO on the ICN shop that was a life saver for helping me understand the system and make it work for me. I was approved on the first time. If SS has to send off for your records it will just delay the case. I would call now and see if I could get the forms to start filling out. I think I went to the office and picked them up.

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[Freckles]

Hi Jazz.....
I am just realizing that a good friend of mine (over 40 years) has huntingtons disease. She has not let any of her friends know she has it, but it is obvious as she has problems with walking etc. Maybe you could help me with something. I email and call her a lot and don't get responses. I don't want to just drop in on her because she has not comfided in me about her disease. Her mother and grandmother and an aunt all had it also. What should I do? Should I tell her that I know and that I want to help her or should I just stay away? I don't want to stay away, I love her dearly. Why won't she confide in me and let me help her?
Thanks
Karen

[jazz]

Hi Karen,
I am glad she has a friend like you that cares about her so much. It is hard when you start having symptoms as you have to live with realizing that the disease has started. I have depression, and it got worse when I realized I was having symptoms. I had to quit work in January and that has been hard to accept. I have had subtle symptoms for 3 yrs, but didn't come out of denial until a year ago and realize what was going on with me.
I am sure your friend is having a hard time dealing with being symptomatic. I isolate from everyone too as it makes it more "real" if I am around people that knew me before I started having symptoms. I too don't answer the phone and answer emails.. when I am depressed I don't want to talk. My best friend was so mad at me when I didn't confide with her. She still doesn't understand and she has been hurt that I didn't talk with her about it. But the more I talk to people about it, the more it makes it real . It is a horrible disease, I hate seeing the changes in myself. So if I stay away from people I don't have to face it. No one calls me from work. and I know they don't know what to say to me. They don't know what HD is and how it effects someone. I feel very alone. I know I should reach out to my few friends but I know they have busy lives.
I would definately go by and see your friend. She needs you, even though she won't reach out to you. You don't have to tell her you know she is symptomatic, just be there for her.
If you want to email me I would be happy to help you & her thru this.
nancysinkhorn@hotmail.com
nancy