PT Commitment

[rosesitty]

Just an FYI ladies from my experience - physical therapy for PFD is a commitment. You're going to feel worse before you feel better. My PT hasn't even started treatment internally, just the external pressure points are causing tremendous pain in my right hip and back area. I had an event on Saturday where I was on my feet all day. I couldn't walk on Sunday, couldn't get out of bed, could sit on the toilet, but couldn't get off ...it was pretty horrible. I needed a crane. BUT, I'm convinced that much of my IC symptomology is caused by the pelvic floor spasming. Just something to consider if you're thinking about PT. It's a real journey, because they don't know what symptoms will flare when they treat. My biofeedback results caused her to scratch her head, mine too! Just letting you know my experiences.
Stephanie
:loco:

[ihurttoo]

Stephanie,

Thanks for the heads up! I have been looking for a pelvic floor therapist, but have yet to find one in my area. (Not really sure if this is any of my problem or not, but thought it would be worth a shot!) I am glad to know in advance about the "getting worse before you get better" part, or I might have given up right away, thinking that it shoudn't be that way. I am sure I am probobly not the only one out there who would have thought that. Thanks for letting us know! I hope that you get over the "feeling worse" stage quickly, and move on to the "feeling better" stage soon! Hugs, Amy

[Jo Jo]

Stephanie
I can so relate to your experience with PVD. I myself just started PT and she only worked on my external muscles and yesterday my hip and lower back were hurting so badly. I am a little gun shy about the internal part i know if pain starts I just may not be able to tolerate it but I will see.

What area do you live in? I live in New Jersey and work with a therapist in Clifton NJ.

:angel:

[mary124]

Thanks for the heads up!! I went to my first appointment on Thursday for an evaluation. She said I have the worse case of PFD that she has seen in a long time (along with the notes the doctor sent her on my IC (which is bad- makes me feel so good!!) She doesn't really know if she can help me though. This week we will start the biofeedback and whatever else. We are going to give it 4 weeks and if it doesn't help, then I go back to the doctor and see what else we can do.

[Jo Jo]

Not sure if anyone else has experienced this but I am a bit confused.

Last Friday went to urologist took urine culture said the urine looked terrible and that there was an infection gave me Levequin for 6 days feel much better with the antibiotic got the labs results today and find them to be negative. I feel much better but just do not understand how that can be. This is not the first time this has happen. Can anyone explain to me what a broth culture is and if they have had one done.

:angel:
Hugs
Joann

Diagnosed with IC 4 yrs ago.
Elmiron 3xday
HRT
Predium on occasion
PVD therapy weekley

[rosesitty]

JoJo - it's amazing pressing on external trigger points can cause so much pain in the hip and back area. My IC discomfort seems to be same, but the pain in the hip/back is so bad that it's minimizing the bladder issues. Go figure, it's not supposed to work like that, but...I'll take what I can get.
I've had five visits. She wants to go internal, but I have to go on a plane on Friday and I'm afraid what will happen, so we're going to wait. She said oftentimes internal and external go hand in hand - need to work on both to get the overall to settle down. So, you're not alone. I guess back and hip pain are REALLY common.
She did biofeedback last week. She expected that lying down and trying to relax the tension would lessen. It increased. However, sitting down and standing up the tension flatlined. It had us both scratching our heads. What it told her was that I can't "try" to relax. No kegels, no deep relaxation. All that causes MORE tension. My body's whacked!
Hope my experience helps everyone.
Stephanie
p.s. I live in Portland, Oregon.

[Jo Jo]

[FONT="Book Antiqua"]So nice to meet someone from Portland . There are so many wonderful people on this site . I did notice sitting does hurt much worse for me . I had a good expeirence with accupuncture one time so I may go back to that . Have to see how the PVD therapist works out. I am a little afraid of the internal also. Not sure what to expect from it.

So nice talking with you.:angel:
JoAnn::angel:

[cia]

I started using the pelvic floor stimulator in July and trigger point pressure just a few weeks ago. My left hip is killing me, but not as bad as my IC was before the trigger point pressure. I am trying to stretch my hip out a few times a day, with heat before and ice after. It seems to help.