klassdg
08-17-2006, 10:12 PM
:help: I had been seeing my Urologist and got him to teach me instillation.
The formula is:
Heparin 10,000 units
Gentamicin 2 - 80 mg vials
Sodium Bicarb 8.4% solution 50 cc
Sodium Chloride 0.9% solution 100 ml Bottle
Oxybutine (Ditripan) 2 - 5 mg tabs mashed up
Found out from his notes sent to another Dr, that he uses Solu Cortef
in house, but didn't write me script for this.
Went to one of the biggest IC research Docs at Univ of MD for consult.
He taught me how to do an instillation using his formula.
His formula was much easier, less volume, less time consuming:
20 cc Lidocaine
20 cc Marcaine
5cc Kenlog- 40
A pelvic pain Doc I go to for my Vulvadynia & vestibulitis uses:
Marcaine
Lidocaine
Kenlog-40
Heparin - 10,000 units (says it helps any bleeding).
My Question: My biggest complaint is PAIN, not frequency, urgency,
but PAIN. So I was excited by the Marcaine & Lidocaine.
He even said I could use Solu Cortef if Kenalog
too expensive for me.
My concern - he seems to use 2 times the amount of Lidocaine and
Marcaine than any other Drs on here.
When they did the Instillation at the Univ of MD - they didn't instruct me
to "empty my bladder" before leaving, as my original Urologist had done
in the past.
In the past, I have been physically unable to Urinate the Sodium Bicarb,
Sodium Chloride, Gentamicin, etc out of my bladder after 30 minutes.
It is as if my bladder is FROZEN.
My 1st Urologist insists that I NOT leave his office without having the
INSTILLATION cathed out of me - As he says it is not safe for me to
be keeping it in for so long.
Down at Univ of MD - with the Lidocaine, MArcaine, and Kenalog-40 -
it was such a small amount - I didn't even think about my prior "problem".
And the Nurse who taught me, never mentioned how long I was to hold it in.
It ended up that I lost the ability to feel the need to Urinate at all.
It was 15 FIFTEEN hours later at 3 AM that I then felt the need to go.
My bladder wouldn't release a thing. Like it was frozen.
So I had to Cath myself.
I had to go an hr later - still couldn't go. Had to call the Univ of MD
Urology ER - they wanted me to come down to insert FOLEY cath.
I promised to cath myself every 4 -6 hrs. They called me next day.
I was slowly getting my bladder back - but it took a whole week.
They did a bladder ultrasound.
Did using LIDOCAINE, MARCAINE, and KENOLOG-40 for the 1st time
do this to me??
Or was it because I have to Cath the instillation out immediately after
30 minutes??
The Dr. was angry - "I have never had a patient who didn't urinate it out
before.
I am confused on what formula to use.
The 1st one has been working - but recently has been giving me wicked
yeast infections a day after instillation - he gives me gentamicin shot into
the bladder besides using gentamicin in the instillation so I get yeast.
Can anyone help me = was the 15 hours just a fluke? If I try it again,
and cath it out after 30 minutes shouldn't I be OK?
Thanks,
Diane from Baltimore
The formula is:
Heparin 10,000 units
Gentamicin 2 - 80 mg vials
Sodium Bicarb 8.4% solution 50 cc
Sodium Chloride 0.9% solution 100 ml Bottle
Oxybutine (Ditripan) 2 - 5 mg tabs mashed up
Found out from his notes sent to another Dr, that he uses Solu Cortef
in house, but didn't write me script for this.
Went to one of the biggest IC research Docs at Univ of MD for consult.
He taught me how to do an instillation using his formula.
His formula was much easier, less volume, less time consuming:
20 cc Lidocaine
20 cc Marcaine
5cc Kenlog- 40
A pelvic pain Doc I go to for my Vulvadynia & vestibulitis uses:
Marcaine
Lidocaine
Kenlog-40
Heparin - 10,000 units (says it helps any bleeding).
My Question: My biggest complaint is PAIN, not frequency, urgency,
but PAIN. So I was excited by the Marcaine & Lidocaine.
He even said I could use Solu Cortef if Kenalog
too expensive for me.
My concern - he seems to use 2 times the amount of Lidocaine and
Marcaine than any other Drs on here.
When they did the Instillation at the Univ of MD - they didn't instruct me
to "empty my bladder" before leaving, as my original Urologist had done
in the past.
In the past, I have been physically unable to Urinate the Sodium Bicarb,
Sodium Chloride, Gentamicin, etc out of my bladder after 30 minutes.
It is as if my bladder is FROZEN.
My 1st Urologist insists that I NOT leave his office without having the
INSTILLATION cathed out of me - As he says it is not safe for me to
be keeping it in for so long.
Down at Univ of MD - with the Lidocaine, MArcaine, and Kenalog-40 -
it was such a small amount - I didn't even think about my prior "problem".
And the Nurse who taught me, never mentioned how long I was to hold it in.
It ended up that I lost the ability to feel the need to Urinate at all.
It was 15 FIFTEEN hours later at 3 AM that I then felt the need to go.
My bladder wouldn't release a thing. Like it was frozen.
So I had to Cath myself.
I had to go an hr later - still couldn't go. Had to call the Univ of MD
Urology ER - they wanted me to come down to insert FOLEY cath.
I promised to cath myself every 4 -6 hrs. They called me next day.
I was slowly getting my bladder back - but it took a whole week.
They did a bladder ultrasound.
Did using LIDOCAINE, MARCAINE, and KENOLOG-40 for the 1st time
do this to me??
Or was it because I have to Cath the instillation out immediately after
30 minutes??
The Dr. was angry - "I have never had a patient who didn't urinate it out
before.
I am confused on what formula to use.
The 1st one has been working - but recently has been giving me wicked
yeast infections a day after instillation - he gives me gentamicin shot into
the bladder besides using gentamicin in the instillation so I get yeast.
Can anyone help me = was the 15 hours just a fluke? If I try it again,
and cath it out after 30 minutes shouldn't I be OK?
Thanks,
Diane from Baltimore