Texas

[*FIRE*]

Anyone from Houston Texas area?

[Sandy B]

Hi

I used to live close to Houston, near The Woodlands. We now live near Dallas/Ft. Worth.
I certainly don't mind conversing with a Houstonian any time you need to talk.... hi

Sandy B

[DebraLee]

Looking for someone with IC in the Austin area to go to support group with me, I try but havent been able to go yet, I could use some support!!

[redstonebef]

I am from the Dallas area but will talk to anyone that wants to talk. Hugs

redstonebef

[WendyMKT]

Hi I'm from Fort Worth I would love to meet others with IC Know of any local groups?

[dyno]

I am also from the Fort Worth area. I don't know of any local support groups. There are others on here from the area, maybe they know some. Feel free to Private Message me anytime.

Jolene

[DebraLee]

Wow there are so many from the same area why dont you all start your own??

[Alyson]

We were all going to meet in Dallas once but nobody showed up! I was there and left after waiting over half an hour. Another person came later and that was it! I'd love for us to have a group though!
Alyson

[dyno]

It would be great if we could find a Dr. in this Metroplex area that would do the support group thing. Even if it wasn't every month.

Jolene

[redstonebef]

Alyson, That was me. I got lost trying to get to lthe Hotel and in Dallas when you get lost its takes 30 min. to find your way back. I am so sorry I didn't get to meet with you. I wish we could form a group again but it is so hard to get everyone together. Hugs

redstonebef kissing

[Alyson]

Redstonebef, you're right about getting lost! It takes forever to get turned back around! I wish we could get together. I'll talk to my doctor and ask for some suggestions!
grouphug Alyson

[dyno]

Alyson,
That would be great if you could talk to your Dr.
My Dr. is good, but I have only seen him once and I know IC is not his specialty in his urology group but he has IC patients and knows enough about the condition that I am comfortable going to him. I think if we could find a Dr. who sees a lot of IC patients they may be more willing to help because they would know how much of a need there is for this kind of support.

Jolene :)

[Sandy B]

I think it would be good if those of us that are close in the area could try and get together. We could support each other and maybe meet somewhere every 2-3 mos just to talk, vent and share and support. If ya'll are interested let me know.
I know there are at least 3 of us that don't work at the present...so feed back please.........

Sandy B

[dyno]

I for one am interested, I would also be interested if we could get a physcian on board for a support group also. I have seen some of the support groups that have had a physcian involved. I think that would be so beneficial. I am one who works a day or at the most usually two and am very flexible during the week. My weekends are usually full with stuff with my husband.

Jolene

[jdsimpson]

Hello everyone! I am new to this site. Glad to see this site exists. My mother is 71 years old and was diagnosed with ic about a year ago. Has tried the elmiron(expensive!!!)but was not working. She is currently on Macrobid. She has had severe stomach pain and nausea for a long time. Urologist refered her to gastrologist, but he can't diagnose her symptons. Do any of you experience these symptons. She is very depressed. on anti-depressants, unable to work due to the nausea and pain. She urinates about 17 to 20 times a day, more at night. She is at the point where she wants to give up and this scares me. Seems like all the Dr's want to do is give her pain medicine and antbiotic and send her home. She has been on all types of antibiotics for about three years now. I would appreciate any suggestions or if you can refer me to support group.

Thanks in Advance!!!

[Sandy B]

jdsimpsom,

I am so sorry about your mom's pain. Has she had the hydrodistention of the bladder done? Is that how they diagnosed the IC? I know that the medication Macrobid can cause you to be nauseated.
I could not take it because of that. If there is no infection present then why the antibiotic? it is hard to find a urologist that really deals with IC well. The options for treatment (conventional) are limited, and relief from symptoms using these varies greatly from patient to patient. Is she following the IC diet which resticts foods like tomatoes and chocolate, caffein, vinegar, etc.? I have talked to someone on this board who sees a Dr. Alan Freeman in Plano and she is pleased with his care, and his willingness to listen and try to find whatever it is that helps. I am on the Elmiron and also a supplement called MSM (sulfer)..I have had relief significantly but MUST follow the IC diet. How long did she take the Elmiron? I think IC is one of the most exasperating illnesses to have and to treat because of it's inconsistant nature...everyone's symptoms seem a little different and it is a hodge podge of treatments that bring relief...I don't want her to give up...that is what we on this board are here for and I know we have all felt pretty close to the edge many times...you just have to keep trying various things (suggestions on this board have been helpful to me)and keep searching for a physician who is knowledgeable and will work with you. If I can help in any way, I will.

Sandy B

[jdsimpson]

Thank You for your response Sandy. It helps to know there are peopleout there willing to help and offer advice. I will check this Dr out and keep you posted on her progress.

[Michelli]

hi Fire

I am from houston, tx if you neen to talk, write me a message I will be glad to talk with you.

Lisa

[Michelli]

Hi Fire

I am from Houston, tx if you would like to talk I will be glad to do so.

Lisa

[redstonebef]

jd. Has your Mother asked for a nauseua Med. I take Phenergan. I could not do without it. She gives me 25mgs but I cut mine in half and that is enough for me. It may make her drowsy but maybe that will help her. Hugs

redstonebef

[Jo]

Just wondering if any of our Texas members are in the area of or close to the cities of Brownwood or Abilene? Jo

[Alyson]

Hey, guys! I'm so sorry for not responding earlier, jdsimpson, but I'm the one who sees Dr. Freeman in Plano. His nurse is awesome and is a GREAT support to me! Anyway, you can email me at cknapn@aol.com if you would like any more info about him! I've been in a flare, so I'm seeing him pretty frequently right now-weekly(uggh).
Have you guys seen the new newsletter? Apparently someone is starting a new support group in the Dallas area! I sent her an email today! That would be so awesome!
Hugs to all of you grouphug
Alyson

[MelonyJo]

Is anyone near San Antonio? I live in the Uvalde area and could certainly use a friend/penpal/support group close to me.
toilet
***Hugs***
Joanna

[Suzzy]

I am Near Austin Texas and would love to go to a support group

[TSmart]

Hi, I just really had the time to start looking at this site and found this message board. I have had IC for about 15 years. I started to form a support group 2 years ago but I felt like it would be to much for me by myself. I would love to meet people in my area with IC. It would be nice to have someone to talk to that could relate to what I am going through. I live right outside of Fort Worth and I would love to have an IC friend. Feel free to email me.

[dyno]

Hi TSmart,
Welcome to the boards. You will find a lot of info here but it sounds like you have been dealing with this for a little while now. I live in Fort Worth near Ridgmar mall and know exaclty where Azle is. In fact, until our boat broke down a couple weeks ago we would have been spending a lot of time out on Eagle Mountain Lake. I like Azle a lot. I keep pretty busy most of the time, but please private message me anytime. I usually check the boards and my messages daily. Who are you using for a uro here in the area? Just curious as I found a good one and we have only lived in the area for a few years. I see you are only a few years younger than I am. I was born in 1958. Anyway, you will find this to be a very friendly group.

Jolene hi

[auntiedeb]

Hi Tsmart and welcome to the boards. Please let us know how you are doing. Hang in there.There is hope. Angels among us.

[Alyson]

Hey, TSmart! I live in McKinney and would love to share stories with you! As a matter of fact,we have a new support group for the DFW area. Our first meeting was June 2 and I really got a lot out of it! Subsequent meetings will be the first Monday of every month from 7-9 pm. If you'd like info, pm or email me at cknapn@aol.com. I'd be happy to give you info and the email of the support group leader!
Welcome to the boards---this is my saving grace!
Alyson

[LK/Hope]

I live in Flower Mound TX and I would love to get involved with a support group. I am also interested in a good uroligist. I am very new at this and feel very alone sometimes. I have some great friends that listen to me and a family that is learning to be supportive, but they have no idea how I feel. I am thankful that both my kids seem to have no UTI issues. Any information would be appreciated. hi

[LK/Hope]

I live just north of Dallas and I would love to get involved with a support group!
LK :)

[KenF]

Alyson,

Can you provide some more info on the support group for DFW. I'm a man with IC in Arlington. It's been a while since I've checked this site, but the support group you mentioned piqued my interest. Thanks.

[Alyson]

Ken, I sent you some info on the group-hope you received it! Our next meeting is August 4 at 7:00 pm at Baylor in Richardson! I had to miss this last meeting b/c of babysitting issues, but I plan to be there next month!

[Tim]

Hi all,

I'm a newly diagnosed IC patient (two days ago). I live in the Austin Area (Round Rock), and am considering going to the support group. Mostly I want to meet the leading doctor there and see about having him treat me. My doctor is all about the Elmiron, which is good, but I'd like to also explore some alternative therapies. So far Prelief is great! At least for the last 48 hours anyway.

Tim

[CinSin]

I am the assistant support group leader for the Southeast Houston area. The group is IC patient run. In fact, we don't encourage doctors to attend our meetings unless they are an invited guest and/or speaker. However, we do have many doctors and researchers involved with our group. We have not had the same doctor speak twice at our meeetings--as of yet. We can usually refer you to one of several area doctors who treat IC or to an IC specialist.

[DebraLeeS]

I am also in Austin I havent been yet cause I didnt want to go alone but Austin has a IC Support group thats meets the second Monday in every month.Do you have a good uro if not I will give you my Drs name he is a blessing:)

[ICNDonna]

Sometimes it can be very difficult to enter a meeting alone when you don't know anyone there. But --- if it's an IC support group, the minute you walk into that room, you are no longer alone. I really encourage every ICer to attend support meetings if at all possible. It really does make a difference.

Sending an encouraging hug,
Donna

[andi]

Debra Lee, I would like the name of your uro in Austin.

[redstonebef]

When is the next meeting of the Dallas Support Group. Hugs

redstonebef

[DebraLeeS]

Andi My uro is in RoundRock except Wed he is in North Austin His name is Dr Bruce He is very good!!

[DebraLeeS]

Suzy I sent you a private messege about the support group in Austin.
I havent gone yet:(Let me know if you want to go to the next one with me?

[blue]

Hello, I'm not far from Houston........