Had the Hydro today

[KendoSam]

Hello everyone,

I had my hydro this morning and I think it went well. I have the ulcers on my bladder, so now I have a diffinitave diagnosis. The pictures were so scary looking! My best freind said it looked like the surface of mars, lol. Luckily I am not having too much pain. Basically, just feels like I'm on a flare exept when I pee is excruciating! The anesthesia was the worst of it. I had general and I was so nauseated for a few hours after. I thought I was OK to eat soup but it made me vomit.
I feel a lot better than I had anticipated, but I am not gonna overdo it. I know it is crazy but I have to move tomorrow! It shouldn't be too bad, because I wont have to lift anything (that's what guys are for). They are gonna move in the futon first and I am going to supervise. I just cant sit by and have my parents set up my appartment without me being there.
I think having the Hydro has improved things with my parents a little. I think they were shocked by the pictures. I think having them actually see what is wrong has helped them understand it. I thank you all for your support, you have realy helped me through this. It seems like everyone is having hydros around the same time. I wish everyone else luck.

thanx,

Sam

[sacausa]

In a weird way I'm really happy for you! Well, I'm happy that you have a diagnosis... I know that in itself can be a huge relief! Good luck with the move tommorow..

[vm]

Sorry it's IC, but glad you know it is if that's what you've got --- if that makes sense. I was relieved when I finally had my diagnosis. I needed to KNOW.

I'm also glad to hear it helped things with your family. IC is so hard to explain and understand b/c you can't see it. Having pictures of your bladder sure helps, huh?

[KokoBean]

I was glad to get my diagnosis too b/c I finally knew for sure. I am glad you know now too. Sorry you have the ulcers. I hope you are feeling even better soon!
That is good about your parents. I am 22 years old and my parents say to me "don't you just pee all the time?" They have no clue. I wish I had some pictures to show them. I've have two hydros but my uro didn't have the equipment to take a picture each time. The hospital didn't have it I guess. I am glad yours finally understand.

Take great care of yourself and good luck with your move!

steph

[ICLori]

I know it's a relief to just have a diagnosis - that way you can see and everyone can see, that there is a real, physical reason for the pain and other symptoms.

Now that you have a diagnosis, hopefully your doctor will work on a treatment plan that will soon have you feeling like your old self!

Many doctors like to start their patients out on Elmiron, Atarax and Elavil. Elmiron can take 6 months or longer to work, and doesn't always work for every IC'er, so docs often give Elavil to "turn down" the pain signals in the brain so you can be much more comfortable. Atarax helps some Ic'ers, too, so that's often added into the mix.

If those don't work, though, don't lose hope - there are lots of other treatments, some with high success rates (like the one I'm trying now.) The one I'm on now isn't as safe as the standard drugs for IC, though, so it's better to try all the standard treatments first before looking at the one I'm on. But it's there in case the other treatments don't work for you. But I think they will, the majority of IC'ers do get better with those three treatments - Elavil alone helps something like 60% of Ic'ers, and then Elmiron helps some, and Atarax helps some.

Anyway, the worst is behind you now, and hopefully it won't be long before you've forgotten that you even have IC, because you'll be feeling normal again!

Blessings,
Lori

[sandramac]

GLAD ALL WENT WELL AND YOU FINALLY HAVE ALL YOUR ANSWERS! dONT OVER DO IT TOMORROW! HUGS SANDRA:cat: :cat: :cat:

[KendoSam]

thanx for all the replies. I just got settled into my new appartment and the move went pretty well. I didn't have to lift anything and my mom unpacked my whole room. Once the pain meds from surgury day wore off I realised how much pain I was in, the 2 hour car ride from daytona to gainesville was hellish. I have been feeling a little better every day and I think the hydro is going to help my symptoms. I have had IC for about a year and my Uro was pretty sure I had IC before. He did the hydro mostly for theraputic reasons, I think the only people who wern't sure I had IC were my parents. Like I said before, I think seeing the pics have finally made them understand what IC is.
I am very exited about my new appartment and going to university. I hope the hydro helps with my symptoms because I havn't realy responded to the elmiron and all the rest of the crap I'm on. I'm going to get set up with diasability services at school so all my teachers know why I have to pee all the time. Well thanx for all the support.
Sam

[1blessed]

Hey,
Good luck on your move tomorrow do take it easy. I just had my biopsy on Friday. The pictures tell the whole story. My dr. said that my bladder still looks very painful. I have nasty big blisters all over. He showed the pictures to my husband in April when I was in the hospital. My husband told me it looked horriable. Do take it easy I am having spasms now I am geting ready for pain med. til next time take care.

[gab]

I wanted to say Hi and Im glad you are doing well. I am having the hydrodistention on Friday, it will be my 3rd one. Good luck with your move

[mare mare]

Having the Hydro and being diagniosed is such a stress reliever!!! :woohoo: I hope you will like your apartment and school!:smile tee
Thoughts and prayers be with you!!:pray: