No Injectibles!!!

[gypsyjoy]

Hi everyone. It has been sometime since I have written anything so...here goes .
I was doing DMSO and after 9 total installs of the"wonderful poison" I had to stop I just could no long tolerate the pain or the odor!
So it was back to Stanford Uro clinic.They are wonderful people down there and I am grateful for there services. I was written the script that I would need to do installs at home with lidocaine, sodium bicarb. and heparin.
I have been in flare off and on for 2 months or longer...so I did the instill and that was at 2:30 yesterday afternnon and I am still in pain with urgency and leaking ( I never leak!)::cussing:
On top of the flares... the instills I had to chase around this town to get the script fill in the first place. Finally got that done.
THEN I AM INFORMED THAT MEDICARE WON'T PAY FOR ANY OF IT!!!!
Because they will not pay for injectibles....What do the think insulin is for crying out loud!!!??? Well, I didn't have the money to pay for it, so the
pharmacist gives me enough for 1 install to use yesterday and I can pay and pick up the rest of the meds today...Now that he went out of his way to help me out I don't know if the pain is worth any of it. I am calling Stanford first thing in the morning!! Something has got to give.
I am so sleep deprived that I don't remember what 2-3 full hours of sleep feels like. And of course the frequency is back in full force.:bonk: :bonk:
I never ask ,What's next" cause I will find out sooner than I care to.:headbang:
Does anyone else have such pain with this type of cocktail? Is it always like this or will the pain stop?:help: Any help you may have to offer is greatly accepted,
Take Care ALL...JOY

[waterflow]

Hi Joy, the sodium bicarb did the same thing to me. I had been having heparin/liod done for a long time and my Uro thought about adding the sodium. That was very painfull and frequency worse. did it 3 times and told him no more. Went back to just the hepairn/liod. Maybe try doing just the heparin/lido. Doesn't it make you mad how insurances will pay for one thing and not the other. I wouldn't worry about the pharmacist. I'm sure he would understand if you didn't pick up anymore. Hope you get to feeling better.

[ICNDonna]

Is it just the heparin insurance won't cover? Heparin is usually injected, not instilled --- that could be the reason for the denial. You might talk with the insurance person at your uro's office and see if they can help.

Donna

[kadi]

Hi Joy,
For me, Lidocaine burned, but instead now use Marcaine- it has been just fine & the instillations are now very, very helpful. Might be another option. (I also see Dr. Payne @ Stanford).

Wishing you better days soon!

[gypsyjoy]

Donna, I have been on the phone all morning over them not paying for this and I think if I continue to use this mixture I will demand a fair hearing...this is medicare part D and Sierra Rx. Wish me luck.:)

[Romans8:28]

My doctor has to fight medicade and medicare and they will not cover many instill meds. Check around on the prices, I have no insurance but found my meds for the most part very reasonible, once I ask around. I get mine now from Walmart speciality pharmacy.
As I've posted before, I had problems with the instill meds. then we figured out I reacted to the preservatives. Now we get all preservative free meds. without a problems.

Hope you find something that helps soon!
Shelly

[gypsyjoy]

Well, I won't don't have to worry about insurance paying for the instills because I won't be doing them. It was worse than the DMSO and that was H*ll. It caused the worse flare I have had in over a year. Thanks, but no thanks. I don't need that kind of rescuing:rant: :cussing: Ouch is an understatement!
So we will try something else,
Wish me luck.
JOY