Wisconsiner's getting together

[Katrina]

Hi all you wonderful people living in or near Wisconsin....Do you want to meet others with IC??? I do!!!!! I am getting closer to thinking there is enough people to give a meeting a try. So please email me at mailto:carmelann@charter.netcarmelann@charter.net</a> and tell me who you are and where you are if you want to meet!!! If you have any ideas of how to find more people that have IC that would like to be part of this group please let me know. I appreciate the help.

[ICNJess]

Hey Kat,

I think it's a great idea. The local newspaper is doing an article on IC, and I gave them my email address so if anyone with IC wants more info they can contact me or those who think the might have it. I'll pass the info along to them. Great idea!

Hugs and love,
Jess

[allisonfromWI]

hello everyone from WI! I am from Waukesha. i deperately need a new doc if anyone knows of any somewhat decent uros in the milwaukee area (especially ones that arent afraid to prescribe pain killers on needed occassions) please let me know!!!!!!!!! I have had terrible luck with my past uros and have basically educated myself as much as possible on IC so definitely anyone with resources in the area I would so much appreciate it. Fellow Cheeseheads lets unite.

allison

[DanaW]

Hi Allison, Just wanted to say hello to you. I was born and raised in New Berlin!(until I was 13)I lived right off Greenfield Avenue......I wish I could help you with a Doctor. I am sure someone from this board is in that area and can help you. Katrina, I sent you an email about getting together. I think it is a great idea! :)

[Katrina]

I am thrilled with the ammount of replies from actual Wisconsiners in one day......I am hoping for more. I have about 4 people on the list atm....and a few more that have a question mark....I will be thrilled with more question marks...so even if you are unsure....but might consider it....please let me know!!!!!!!!!!

[Katrina]

I believe the list is up to 6 and with that ammount am looking into planning the where and when....let me know if there are some definate no ways not then or please not that far to travel I couldn't do that kind of thoughts. And if you are not on my list but should be please email me at carmelann@charter.net link on the first post.

[Katrina]

let me know when it is a bad time to do this or any suggestion you may have. 7 on my list now....please email me with your suggestions!!!!

[Laura E]

Katrina--that would be wonderful to meet others with IC. This sounds bad, but people without it really dont understand. Well, most anyway. My b/f is the only one who doesnt have a fit when i go to the bathroom 20 times a day!!! But i need others who have this to talk to. Its a common ground thing, ya know? And its not going away!! So, yes, i would be very interested in meeting others in Wisconsin.
Laura

[Katrina]

Let me know how far you can travel
what times are ok
what dates are ok
and what kind of place would you like to meet?

Anyone with ideas please let me know

PS I am excitted this is comming together!

[DanaW]

I am available to meet on any weekend. I am thinking that we should figure out on a map where everyone is located and then just meet in the middle? :)

[KrAzYKaT]

katrina,

I'm not sure if you ever got my e-mail from about 3 days ago, about me wanting to join. Because i never recieved anything back from you. I live like about 30 miles south of Fon Du Lac. I would love to meet with everyone. We could maybe meet on the weekend and go to a nice restraunt that has safe foods and maybe a band. I think a good idea too would to bring someone that is close to us like a husband, boyfriend, or other friends, so they can see from other perspectives that there are ppl out there like you and it's not just things we are making up so we can be lazy. Just an idea. I also know there is a IC support group that meets in Neenah 4 times a year with a few members that i know would be very happy to get involved. I could contact them or give you their contact information. Just let me know Please post on here or e-mail me with update kmbohn@iqtechservices.com

[ICNJess]

I think Dana had the right idea. :) I'm in Hazelhurst, right by Minocqua. Meeting in the middle would be reasonable. Dana and I are up here! LOL lmao

[Katrina]

Kat, please email me at mailto:carmelann@charter.netcarmelann@charter.net</a> , I don't think I got anything from you and don't know why. Right now I am sometimes at the laptop and need to be able to look at the PC to be sure and today I am just too tired. My man is coming with mne forsure....can't travel without him because I cannot drive. I will be making a map soon...that is something I need to do at the PC or at least when awake. I will email the map to all of u on my list but I can't guarantee u will be able to open it. Weekends only ok, good to know....If I look at restraunts is there an ammount of money that is too much for anyone....there might be for me. I am happy no one has said there is a distance somone can't travel. (there was a year I would have said one)
keep the ideas and info coming

Thanks guys,

We are gonna have a party...he he jester

[Katrina]

so excitted 8 people on the list now. :) :)

[Katrina]

ok...working on where....one place I am considering in StevensPoint. I have a little familiarity with the area so it works ok to me.

One big request I have to everyone is to spread the word and try to get members.....ask your doctor if you can leave some info of a support group. If you want feel free to put carmelann@jesusanswers.com as a contact email on a flyer if you choose to make any. Let me know if you have any ideas. I am thinking we would meat in Spring or Summer...let me know when you cant.

[tigger_gal]

Katrina,
Sounds like a great idea, I recall Jess making that same suggestion... I live in Michigan and maybe I might be able to attend if I am felling well and can afford the trip :)
Brat

ps. I am sure I can stay with Jess :)

[Katrina]

Wanted to reactivate because I want to keep people thinking. I have been wondering if we want to have a name?

What do we want to call oursleves?
Do you think it would be helpful if I made a flyer about us you could print and give to your doctors?

Just wondering.

[ICNJess]

Hmmm a name huh? Wisconsinites? IC Wisconsin? LOL I don't know. But ummm a flyer huh? Well what I plan on doing is telling my uro my email addy and that if any of his IC patients want to join a support group and meet up, let's do it. There's on in Appleton, but I don't know anyone. :(

Hugs and love,
Jess

P.S. Cindy there is always room for you! :D

[STACYO]

Hi Katrina,
I would be thrilled to get together. I did find out about another support group-next meeting is in June. The person has her
name posted on either this website under support groups or
the other IC site. She is Karen, and her email is ic2foxvalley@yahoo.com

[Katrina]

Stacyo I have emailed her. If she is the same person I have emailed before about this group she will ignore this email like she has all the others. She has had no interest in sharing info to her group about a different group. I hope things are different now, because right now the Fox Valley group is the only one listed in Wisconsin....and by talking to me some members of her group that are out of the Fox Valley area may be able to meet people in their area. ....In a way starting by covering all of a Wisconsin is a way to begin other small groups throughout Wisconsin.

Anyway...thank you for your post.

[STACYO]

I did email her back in Jan, didn't hear back, then I noticed she had a different email address, so I tried that one. I did hear back and called her last night. She was very helpful, but did add that it is difficult keeping up with all the new people, with working full time and not feeling well at times. She is going to send me a list of folks in the support group, and the next meeting is in June. I will keep you posted on anything else I hear.

Thank you!

Stacy

[Katrina]

She did respond and was very nice. Will see how this goes.

[Katrina]

How does August 7, 14, 21, or 28 look to your callender????:hi:

[Katrina]

I am thrilled!! Got an email today that as a support group we are now listed in the choices on this site....so we have a chance for more members!!!!!!!!!!!:D :hi:

[Katrina]

I plan on the meeting being August 21, in Stevens Point. Now I see this meeting as a chance to meet each other and such....so am planning very little unless someone says the word that this should be more than fun, hugs, and chat.
:kiss:

[Katrina]

REPOST

[Katrina]

Hey group the day is getting closer. I am trying to give the restraunt a good idea as to how many of us there will be.....please email me if you are coming and let me know if anyone is coming with you.

To use that don't know this is the full group of Wisconsin ICers first meeting.

IF you are new to IC you are welcome to join us and meet others with IC. Reservations are made but we can certainly up that numnber!!

On the callender on August 21 there is a link to the rest of the info.

:kiss: :kiss: :kiss:

[STACYO]

Hello Katrina and group,
Sorry I haven't replied sooner.

I unfortunately cannot make it to the meeting on Aug 21. Thank you so much for the advance notice, and I was looking forward to meeting everyone.

I did attend the Fox Valley Support Group mtg on June 8. It was very informative. They expected at least 20 people, but many did not show up. One of the drug companies provided a catered in dinner, and the physician's asst from Theda Clark gave a presentation on biofeedback.

I got so much out of talking in person to others with this disease,
and learning about the resources.

I am sure the meeting on Aug 21 will be a great support to everyone who can make it.

Take care,

Stacy

[Katrina]

:( :( :( :( :( Thanks for letting me know